Most Recent Messages in General Posting

Advice and Wisdom for Newbie - CRT-P 101

Now for CRT-P 101 boot camp basics .....  

What advice would you share to help help the hospital / returning home process go smoothly?

1) What should I make sure I have available immediately after placement?  Seatbelt pad? Bra strap pad?  Front button down shirts?  Front closure bras?  I live about 40 miles from the "big city" where the docs and hospital and retails stores are located, so it will not easily convenient to run back and forth f...

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New Pacemaker

Just had a St Jude/Abbott Labs PM-2272 installed 3 weeks ago.

Since installation, I have been getting intermittent shock feelings in the area when the PM was installed.

They feel like a TENS pad type of shock.

Have Dr appt Feb 27

Any comments?

Thanks

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why do i continue to check this site

  Want to see if someone asks a question that i might know the answer.  I am not technical and do not take any prescribed medications, only practical knowledge.

new to pace

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Pacemaker self-test and voltage

Hello everyone! 

I have a question about the self-test voltage vs. manually programmed voltage. 

I have an Astra Sure Scan Medtronic pacemaker (Model X2DR01) to manage my LongQT (Type 2). I'm paced at 80 bpm all the time. I've had this particular pacemaker for 5 years (but have had a pacemaker for nearly 25 years). For the first 4 years of this pacemaker I couldn't feel the self-test and only in the past year started feeling it. This seems weird to...

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CRT Placement

Honestly not sure which group to post in so I'll start here.  I'm about to get my first CRT pacemaker sometime soon - waiting to hear about scheduling.  My concerns are about placement.  I do not want to "see" the pacemaker after it's been implanted. This is very important to me on both a mental and physical (esthetic) side.  I'm also a very active lady who likes to backpack / hike, wear strapless tops, and participates in sports like Pilates...

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When you finally allow yourself to take more meds...

A lot of people in this club have been following my journey for the last several months, and you are the ones who know the literal battle I've had with not wanting to titrate up my meds. Carvedilol to be precise. But lately, I've had a change of heart... no pun intended. 

I realized something rather important. No... I'm not kean on the idea of taking more Carvedilol, I'm afraid of kidney damage and more side effects. However... I had sort of an epiphany the other da...

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Spirit World

I had a strange experience during what I assume was REM sleep recently and received what I can only describe as a 'visit' from a deceased relative. 

I don't (or didn't) believe in spirits and this is totally new to me.  It wasn't a relative I was super close to either. 

My heart was playing up and missing beats and as I walked up some steps (in a dream) and entered complete darkness, I thought my time was up! Then a luminescent and very real imag...

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Pacemaker Tapping - Left Side Sleeping

Hello, I've been reading older forum posts on this, it's a weird one and seems to be a few different takes on cause / resolution.

Anyway, it's now just over two weeks since I received my PM and life has changed for the better, I feel like I'm thirty again and not in my mid 40's.

The only thing I am experiencing, not overly concerning just odd, is a tapping in my PM if I lay either on my left side or front. It's not painful, but feels like a rhythmic finger...

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Patient app

Does anyone use the "Patient App"?  I tried putting it on my iphone through Biotronik, but it always says the server is having problems.  I would like to use it if it could help me.  I'm new to all this pacemaker that I had put in at the end of December.  Santa said I was naughty, so he gave me surgery for 2023.  Actually, I'm very thankful for this modern technology.  Does the Patient app only work on Android devices?  Thank you for your h...

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Interesting interview

Saw these two items on the news today about a footballer's experience of heart failure on the pitch.

https://www.bbc.co.uk/sport/av/football/68346705

https://www.bbc.co.uk/sport/av/football/68346337

I didn't catch if he was still playing though.

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not receiving email notifications

Now not recieving email notification's when someone posts an answer to my query.  Have to keep checking this site to see if any adds to my post.

Also only spell check in the subject line not in the message.

new to pace

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New role health questionnaire

Hi.  I have an Abbott Gallant ICD for Cardiac Sarcoid.  Health wise things are stable. Work has not been easy though with the pandemic and generally being in a competitive business. 

I have just been offered a excellent opportunity with a new role that I am super excited about. They have though sent me a detailed health questionnaire asking a range of questions which include - Have I ever had a heart problem and have you ever been on medication. I hate sharing information...

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Pacemaker pulsing me when on left side

I had my pacer installed in 2009. I only use it during sleep when heart pauses. Last year my use went down to only 4 episodes. I am currently on vacation and in the last month I've noticed when in bed if I lay on my left side it triggers the pulsing 6 times each time until I shift off that side.  Is this normal? I've never had this issue before.

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magnetic scanners

I pace 100% of the time.  Is it safe for me to walk through a magnetic scanner at a sports event?  Ii've noticed many PVCs since I did it the first time and since (about a month).

Will my at home monitor pick this up?

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Knowledge is key

I like to keep myself knowledgeable about things when it comes to health... and I don't know anyone personally who has had heart attack symptoms.. or a heart attack at all. Thank goodness... 

so I read up on this.. what are some symptoms if any pacemaker recipients have experienced? 

 

 

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from Jodi

I signed up a few  days ago and yesterday and today I was unable to login in. I emailed the help center email.  in the interim I  started a new log in so I can still interact with the club.

I am scheduled for thurs or fri for a PM and am nervous.  I am a woman with large soft breasts (not overweight) and now concerned about the leads healing with the breast movements.

I am 65yo

I think I will sleep on my couch and not a bed I am nervous to have too much m...

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Bpm going under 60 update

Rather than tack onto my other thread, I am starting a new one. This regards my heart bpm going to 58, 57 and 55 briefly in the ER. My cardiac nurse consulted with my cardiologist and called me back this morning.
 

She said, "there's no need to be concerned about your heart rate going below 60 when you were in the ER as long as it's not sustained that's normal for your pacer not to do anything. "

She said she rechecked my last pacemaker report and a...

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Confused and working a plan

I had a 30 day post op appointment wth my EP -  I wat to shout him out!  

I had a bypass in 2007 and have seen many heart doctors and general practicioners.

My current one was said to be very well liked but tends to run behind.

My Pacemaker imp,ant was scheduked for 2:00 and happened at 5:30.

At this follow appointment the nurse came in thw waiting romm to announe "the doc doctor is running 3 hours behind"

I galnced around the room (hoping som...

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choosing a pacemaker

Looks like my lengthly first post didnt get posted.

I just joined the apacemakerclub.

I need to make a decision tomorrow asap for a PM. I was in ER thurs after a Cardio visit. my PR was 36,  I knew it was 38 since spring or more and put it off.   on friday I was getting a PM, I had questions and wasnt able to ask them to the dr. until I was on the gurney at pre op. At first the PM rep came in and I asked questions, when I found out about getting a BlueSync. &nb...

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PULSE

Hi everybody,

I had my 3rd pacemaker installed in Nov. of 2022. They were going to replace the 20 year old wires at the same time. One is causing interference. But the last minute they decided not to to, I think mainly because of the complications it could cause (bleeding?) and my age of 87 back then.

Immediately after that, my pulse at home was sometimes normal, but often between 38-48! Still going on 15 months later. The nurse at my Electrophysiologist's...

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You know you're wired when...

Your device acts like a police scanner.

Member Quotes

It's much better to live with a pacemaker than to risk your life without one.