I am tired of being tired

  • by rjlit
  • 2009-10-16 11:10:11
  • ICDs
  • 1914 views
  • 0 comments

Hi Everyone,
I am new on this board so I don't know if this is the right place to post this but I am hoping someone might have some suggestions. I got my dual PM/Defib a year and a half ago and feel worse after the surgery. Prior, my ej frac was 20% but I was asymptomatic. They think it is postpartum cardiomyopathy and fortunately, I had no symptoms whatsoever. They caught the enlarged heart through an xray when I had pneumonia. I had the device implanted and felt horrible for 3 weeks...I was SO tired I could not function or take care of my kids. They finally agreed it was a timing issue and made some changes to the delays and I felt about 80% better. The problem is that I am still tired. I went from sleeping 8 hours a day and having tons of energy to sleeping almost 10 hours a day and not having a lot of energy. They have tried to tweak the timing on the device but can't find anywhere to adjust. Has anyone heard or experienced anything like this? My EF is at 59% so the device is working well but I am tired of being tired.

Thanks!


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Member Quotes

The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.