Exercise + 100% paced ???

Ya'll,
Pardon me, and have mercy, for I don't mean to always repeatedly whine about the same thing.
It seems that I always ask the same questions, but I looked through my recent posts and couldn't find anything. I have memory lapses, plus I talk to myself a lot so it's hard for me to track if I really posted a question, or if I was just day dreaming.
what can I say?....
A good friend of mine has caused me to think seriously about my options, and it's causing me to reevaluate my cards.
I'm at a place in my health where I have some very difficult decisions to make. It's either one way or the other, and once I step off there's no going back. I really feel like I'm dangling on the edge of a cliff, and I can either jump off, or limp back down.
Although I like to think that I've always had a choice, I'm quickly running out of them, and sometimes the lack of control in my welfare is, to me, is very unsettling.
Some of you might not think of it as a big deal, but becoming completely dependent on a pacemaker is not something I ever imagined for myself. I, honestly, don't like being dependent on anything whatsoever, let alone a piece of high tech metal to tell my heart when to beat. I don't know about ya'll, but it's scary as hell to me.
One thing that might help me come to grips with my looming future, is feeling somewhat reassured that being 100% pacer dependent does not necessarily equal disability. Can I still run, exercise, and be active? What do all ya'll 100%'rs do? Please I promise this will be the last time I ask.
I don't know what I would do without this group. People can say all they want, but this place sure as heck has helped me. Ya'll were there for me before my pacemaker implant so that when it finally came time for me to have one implanted I was comfortable with the idea and it was really no big deal to me. I even had a blast during my implant procedure. I would not have been that peaceful with the whole ordeal if not for ya'll.
Out of everything that this place offers, the most I get out of it is reassurance. I mean, that's what a "support" group is all about, eh?
When it comes time for me to jump off that cliff, I'd like to be able to soar and NOT falter. (Isaiah 40:31)
I was just wondering if there's anything, or anyone out there that can get through this thick, stubborn skull of mine.

Thanks ya'll so much, and I promise this is it.
Angelie


4 Comments

Hey

by tcrabtree85 - 2009-01-29 02:01:27

Now from somebody else that feels like life is some what hell sometimes. Let me tell you after this pm replacement and being 100% paced I feel 100 times better than before. I just got done with a stress test that kicked my butt. Though I was able to get my hr up and not collapse what a cool thing.
So I guess what i'm telling you is I don't think being dependent will change your ability to live life. I have a goal set to be well enough to water ski this summer 100% dependent and all. Now who knows if I get up but that would only be b/c I have put on some weight.
I like the way Tracey thinks. You struggle with everything else why not regain some energy and for me it was even color.
I will be praying for you and if you have more questions hit me up as a private message.

Blessings,
Tammy

{{{{hugs}}}}

by Tracey_E - 2009-01-29 02:01:30

Why would you think you couldn't exercise if you're 100% paced? If anything, you should be able to do more than you do now because it'll get rid of the arhythmias.

As you know, my condition is different from yours but I've always been 100% paced, and I can do soooo much more than I could do without it. My pm computer is a million times more dependable than my own heart. I never pictured myself dependent on a chunk of metal, either, and that's growing up knowing my heart was screwy! I just plain never thought my heart was *that* bad, lol.

My observations...
- you've been struggling with this for a while now and it's affecting your whole life
- the meds aren't working
- the meds have side effects
- you've already got the pm, so you're not facing a big, scary surgery

Other than the mental block (which is totally OK!!!), what are the downsides? Have you ever made a decision matrix, written down every up and down you can think of for both doing it and not doing it.

you can do it Angelie!

by Mrs.H - 2009-01-29 12:01:59

I am 100% pacer dependent and I am working full time. I dont exercise but my job is extremely physically demanding-thats why I dont exercise! Sitting still IS my entertainment! I am afraid too! Maybe we all are to some extent? But I know I have no choice. My husband is disabled (end stage renal disease) and I know I have to keep going for my kids sake. Somebody has to support the family.No I dont feel well most of the time.But I force myself and I do sit down when I get out of breath or when I get palpitations.I thank God for my device.Where would I be now without it? I do 3rd shift because it is a little easier.I check my BP and HR often.
And I pray a lot for strength! At least we have our little machines to buy us some time.I say just do it! Start out slow and be sure to keep your Dr posted on any changes.All I know is we just gotta try!

I agree

by janetinak - 2009-01-30 02:01:41

with all of the above. I am 100%-er & feel great, much better than when I was in constant Afib with all those symptoms. I worked full time for several years after the PM implant (always been a 100%-er) & now that I am semi-retired, I exercise in a heated pool 5 days/wk for at least 30 minutes, usually more. My arthritis causes more problems for me than my 100% PM. P.S. My
job(s) were fairly sedentery but feel I could have done something more physical. As I have been more active my PM just gets adjusted up so I can do more.

We are thinking of you. Please let us know how it goes.

Janet

You know you're wired when...

You have a 25 year mortgage on your device.

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I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.