ICD Site Complications

I appreciate any suggestions you can provide on this matter. I have had my 2nd ICD (first one recalled after 6 mos.) for approximately 4 years. I had complications with this replacement as the first one was still quite new and shouldn't have been removed other than for the fact that it was recalled.

Although I was to have another subpectoral implant, I've had nothing but problems with a large portion of the device protruding out from my skin. Just recently, the scar area cracked and was bleeding.

I've asked my EP and her rude nurse on several occasions if this is appropriate. They basically tell me to deal with it, it's not infected, so there is nothing they can do until it is ready to be replaced, which could be another year or longer. I'd appreciate any advice on how to approach my EP on this matter again. I'm almost afraid to call and ask to see her as I ultimately get her arrogant nurse, who obviously has no understanding of what it feels like to have an ICD and I seem to get nowhere with either of them.

Thank you for taking the time to read and respond to me.

2 Comments

not something to ignore

by Tracey_E - 2009-02-24 10:02:25

I would be looking at new doctors. An open wound needs to be dealt with now, not a year from now when they need to open it again. Maybe check with your GP? It sounds more like a wound care issue than an ICD issue.

I had problems with a nurse at my ob's office during my second pregnancy. I had a chat with the doctor and never had an issue with her again. I was trying to reach him and she was trying to answer the question for him, assuming she knew his answer. He didn't realize what was going on, but once he did he was able to fix it and I never had a problem again. In this case, it was an awesome doc and an overvigilant nurse doing what she thought the doc wanted so it was easily resolved. In your case it sounds like they're both a bit insensitive so I don't know if chatting with him will do any good.

Cause of rude medical types

by ElectricFrank - 2009-02-24 11:02:13

It's hard to accept, but the cause of a rude nurse or doctor is a passive patient.

I find the best approach after trying to be congenial, is to do something unexpected. A couple of examples.

1. Tell them that you want to see someone competent to deal with your problem since they can't

2. Make an office appointment. Then refuse to leave the examining room until they deal with your problem. They need the room for other patients and this gets their attention.

3. Get out a notepad and write down what they have told you (while they are in the room with you). Read it back. Include something like "doctor says there is nothing he/she can do about it). Also, ask for the nurses name and write it down. Don't make any threats. Just thank them and say you will be in touch. Leave them wondering what you are going to do.

frank

You know you're wired when...

You have an excuse for gaining an extra ounce or two.

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