hypertrophic cardiomyopathy ( HC)

• by Selwyn
• 2017-07-19 12:42:01
• Conditions, Meds & Tests
• 1285 views
• 2 comments

At last a diagnosis for my 'LVH' ( Left venticular hypertrophy)!  2% of the population have a hypertrophic cardiomyopathy. The obstructive form is associated with fatal arrhythmias from exercising. The condition runs in families. My children and siblings have to be screened  (echocardiogram/ECG).  There has been a lot of media exposure concerning HC this last week-  for screening and awareness.

Should I be reassured that my HC is said to be non obstructive, or do I need an exercise echocardiogram? 

I am, for now, on a beta blocker, Nebivolol, though cannot exercise on it and am getting break-through atrial fibrillation, flutter, and palpitation symptoms. 

I have opted to have a redo flutter ablation, and an atrial fibrillation ablation, and take my chances with the complication rates.  I do know that the ablation success is about 60% given the underlying cardiomyopathy. There is a 3 month wait. 

I wonder whether I should have my PM changed to an ICD next time it needs replacing?   Cardiomyopathies seems to cause all sorts of arrhythmias.

I thought I would wait for the ablation, and then have a word with the cardiac rehabilitation nurses ( they offered me rehab. last month, after my coronary stenting) . 

If anyone has any advice as to exercise investigations or ICDs  for hypertrophic cardiomyopathy, I would be grateful for their advice/experience. 

Selwyn