We need a little hope/ CTR+D

Good morning! My husband received his CTR D last May. However, this has represented the emergence of certain symptoms; Edema and lack of oxygen. Everyone said that this would change her life and it really is. It's 39 years after being an athlete now it's almost impossible to climb the stairs.It feels good for a few days and the symptoms return.

I wonder if any of you have gone through something similar and after a while got better results. His diagnosis is a dilated cardiomyopathy, FE 20%.

4 Comments

THANKS ROBIN1

by Nat corrales - 2017-10-26 14:26:47

Hey Robin!

Thank you very much for your answers, totally agree with you. We will do our best to follow some of these recommendations. It has really been a process in which emotions should be handled, and not forgetting that my husband needs support, someone next to him to keep fighting. My role is defined, that's already a plus! I have also taught by 8-year-old son to have this attitude too. Many times we mentally incapacitate and that's a big mistake.

Every day is an opportunity, and life is very pretty to live worried. I'm glad your health condition is good. :)

 

Nar

Go somewhere else

by Gotrhythm - 2017-10-26 15:01:54

I echo Robin's advice but in my opinion the most important thing she said was go to a different clinic.

These handy-dandy devices we've been given are not one-size-fits-all. If your concerns about quality of life aren't being addressed, find another doctor. In my experience, if your response to getting a device isn't good, and a couple of return trips hasn't netted any change, it's reasonable to assume they don't know what the problem is or how to correct it.

If it's at all possible, consider going to a hospital associated with a medical school. They have more resources and more experience in dealing with unusual responses to getting a device.

Gotrhythm

by Nat corrales - 2017-10-26 15:44:25

Thank for your reconmmedations!

All Great Suggestions

by Grateful Heart - 2017-10-26 16:29:28

But has the doctor made any adjustments to your husband's device since the implant.  Often after a few months we need the settings adjusted.  Once the leads settle in and our hearts get used to being paced, the voltage can be decreased, especially if he is active.  Sometimes that alone makes a huge difference. 

Grateful Heart

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