Thanks!

I wanted to thank you all for the encouragement. I have been starting to do a little more now and that is nice. My left hand still has been going numb and I continue to have the spasms but they aren't as bad as they were or i'm starting to just get more use to it. I scheduled an early apt. for next week because I still have been getting dizzy some. My surgeon told me that I still most likely will have the neurally mediated syncope but I was overall hoping I wouldn't. I was also wondering if anyone knows much about nerually mediated syncope?
I thank you all and am so blessed to have met (well talk) to some amazing people. I think that we need to all meet up in the middle somewhere and have a huge get together someday soon.
Many blessings my friends,
Tammy

3 Comments

don't know

by bambi - 2007-04-07 09:04:13

Hi Tammy,
I was wondering if you could explain to me what neurally mediated syncope is? Syncope means fainting right? I always learn something new on this site. It's great! Although I can't help, I do hope you keep feeling better and better! Happy Easter!
Bambi

Neurally mediated syncope

by winelover - 2007-04-09 01:04:05

Hi Tammy, About 10 years ago I suddenly fainted without any previous episodes or illness. After many more fainting episodes I was diagnosed with neurally mediated syncope (NMS) - also called vasovagal syncope. I was put on different medications to help the brain regulate my body's bloodpressure and heart rate. Neurally mediated syncope is the brains failure to regulate blodpressure and heart rate appropriately. Why it happens is still unclear. My heart was fine at that time but after ~7 months on this medication it went into 3rd degree heartblock and I eventually got a pm. I still have the NMS and at times feel dizzy and like I will faint, which in the beginning after receiving the pm freaked me out, but I learned that the pm would react fast to the drop in heartrate and make sure I didn't faint, so I hardly think about it anymore. For me not only does the pm keep me alive but it also stops me from fainting. 2 for 1 deal.
Hope this helps some.

NMS??? New term for me!

by ela-girl - 2007-04-09 11:04:18

I have never heard VVS being called NMS?! WOW! I learn something new all the time. I have VVS/neurocardiogenic syncope and understand a bit what you feel. The syncope and bradycardia are what led me to have my pm implanted via emergency surgery in October. I was told that I could still blackout or have my "spells" even with the pm because the pm can only do so much. The nerurological part of the syncope is controlled with medication (I take Toprol 50mg a day--it's a beta blocker).

I have not blacked out since the pm was implanted, but I did have my first set of "spells" in the middle of March. It was terrible! And I was afraid because I didn't want to black out with them (thankfully, I didn't). These "spells" take the wind out of me and it takes days for my body to find homeostasis. Ugh. I was under A LOT of stress during that time, and I know that severe stress really triggers my health issues at times.

I wish you the best and keep us informed. You are NOT alone!

Happy pacing,
ela-girl

You know you're wired when...

You are always wired and full of energy.

Member Quotes

Sometimes a device must be tuned a few times before it is right. My cardiologist said it is like fine tuning a car.