ANYONE WITH COMPLETE HEART BLOCK AND NO PACEMAKER FIXED ?

Hello Ash02

by NiceNiecey - 2018-08-13 03:48:51

Can you please give us more information?  I am afraid that I do not understand what your situation is.  What is your diagnosis?  What brand of pacemaker did you get (Medtronic, St. Jude’s) and what type (one lead, two leads, CRT-D)?

Thank you for your question and your patience as try to help you.

Niecey

Already posted

by Strange - 2018-08-13 04:00:43

I have already posted the situation in my previous post . 

 Would be nice if u can read that and suggest something

What is the question?

by Gotrhythm - 2018-08-13 11:23:26

A number of people responded to your previous post.

Are you looking for different answer from the ones already given?

If so, it would be help if you could be as specific as possible. What exactly do you want to know?

Use of club site.

by Selwyn - 2018-08-13 12:35:21

Yes, we all do our best to answer questions. There is no obligation to so do,  and no liability. 

Having responded to a private message from ash02,  I have supplied the information and the web sites for reference and futher reading as to why he should have a pacemaker with third degree A-V block and symptoms such as he describes on exercise, and the guidelines as below: 

Indications for Permanent Pacing in Acquired Atrioventricular Block in Adults
Class I:
1. Third-degree AV block at any anatomic level associ- ated with any one of the following conditions:
a. Bradycardia with symptoms presumed to be due to AV block. (Level of evidence: C)

( ref:ACC/AHA Guidelines for Implantation of Cardiac Pacemakers and Antiarrhythmia Devices: Executive Summary). 

I had also asked him to read my first response to his question which contained all the information needed re. background outcome of not having a pacemaker, though it appeared not to have been read.  In his defence, I can only presume that there is here a youthful impetuousness, and some distress at the situation someone so youthful finds themselves in!

Selwyn 

Dear all

by Strange - 2018-08-14 08:52:23

It is not that i am not satisfied with the answers given . 

I wanted to know if there us someone in my situation and lot more...

Nothing is as what all of u think . 

I consuder this as a gods ears where i tell everything .

Pls dont feel bad . 

My situation is  atmost the worst . 

Which only i know ...

Regards . 

av block with no pacer

by Tracey_E - 2018-08-23 21:15:16

My situation is a little different than yours, I have congenital av block. I got by without a pacer until I was 27. I was never full of energy, I tired easily and wasn't allowed to do anything strenuous, but I got by ok for a long time without a pacer. When I was about 25, I started getting more tired, dizzy more often. By the time I got the pacer at 27, my rate had dropped to the 20's and I was a mess, barely functioning. When it started to drop, it dropped very quickly and I was at risk of cardiac arrest.

The younger we are, the easier the body can cope with the heart being out of sync and a low heart rate. As we get older, it catches up with us and pacing goes from optional to necessary. I'm not sure what's behind your question, but my advice is get another pacer before it gets crucial, before you lose quality of life. If you can't do what you want to do,it's time to get it.

Feel free to message me if you want to chat. 

complete block as well

by dwelch - 2018-08-28 02:56:42

Tracey and I have similar stories.  I have complete congenital heart block.  So complete block from birth.  Detected in pre teens first pacer at 19.  Was very active, my heart was beating pretty hard though, didnt realize it until they put the pacer in and there was this very empty feeling, I could feel every beat for 19 years, was normal for me.  Then that all got fixed and smoothed out with the pacer.  I was very active, lucky that didnt kill me I was told not to do stuff but gave up one sport and just did a few others instead.  Heart was growing too big and the muscle too thick that is what the doc was most focused on to make the decision to go for the pacer.  Pacers were only just getting common at this point in time.

So looking at your other question, you have had some back luck lets say, but absolutely you want a pacemaker.  heart block an easy problem for pacemakers to solve.  Statisitcally I would not be here today without a pacer.  I might not have made it as far as tracey we will never know complete congenietal heart block the stats I remember before pacers completely re-wrote the stats, you didnt normally make it past your teens into your twenties, the odds were not with you on that.  With a pacer I went to college, got a job/career, raised a child.  Fully believe not all of those things would happen.

Now you have had issues but for me living with a pacemaker has been pretty easy you dont know its there, it just does its job every 10 years give or take you get a new one.

If nothing else you will have the same issue, the upper and lower chambers are not in sync, so they do not work efficiently the ventricals have to work much harder to do the same job as if they were in sync, this creates a thicker muscle wall, a bigger heart.  You cannot sustain this forever, it gets worse over time.

If you have complete heart block, this is very easy for a pacemaker to fix.