St.JudeDefillibrator Problems

Last October I was shocked 66 times my defillibrator. I believe I died, temporarily. Doctors said that it saved my life.  I questioned that. After be shocked over abd over and over........ How does my heart maintain a normal rhythm sot have a abnornal rhythm. I can not feel that my defillibrator  let me have me have a normal rhythm. I found out Thusday that my implant has been recalled. I looked it up in the internet. I went to 3 hospitals to try to have it remove. The day before, I had my appointment with my cardiologist.  The ICD was talkinh with the ICD tech, he told me that it was an out patient procedure.The first hospital went to the VAMC in Kansas City. I was told that they did not do that. Ieft a message with my KU cardiologist. Remember I  can not function as a normal, becuse of hearing loss. I went to St. Luke's also in St. Louis. I checked in the hospital. the nurse told me that it was a time. So , I left. Thinking about it returne. Ccecked it again I was not feeling. So I asked her to check my bkood sugar. It was 74. She gave me OJ and crackers. It believe that my lide. I took an EKG. I felt that I was of a heart attack.I began feeling began feeling better. So the doctor releaved me. I asked him to remove my ICD. He refused. Needless, to say I am concerned abount implant. So I went to website, I looked my up test results.I found out that my installed upside . To quote:Capsule was CAPSULE WAS ADHERED TO DEVICE AND DEVICE PUT IN UPSIDE DOWN.POCKET REVISED TO FREE UP RV LEAD ERI/EOL Indicator   0% remaining capacity to ERI; St. Jude

FORTIFY CD 2357 -40C

GENERATOR DERIAL 1,091,698 Date 4/14/2014

I believe that happened thatwas revised to freeup RV lesd. It eventually caused a short, a short circuit.That was the xaused of my defillibrator shocking me 66 times.I believe that I temporarily died. comments

 

5 Comments

comments

by AgentX86 - 2018-09-11 21:40:30

You have so many typos and gramatical errors that I have no idea what you're talking about.  The only thing I get is that you want your pacemaker removed and doctors refuse.  Makes sense.  They're not in assisted suicide business.

Not sure....

by BOBTHOM - 2018-09-11 23:58:04

You really need to try to type it over again and be a little clearer.  I just went through an ICD electric storm recieve 5 shocks in under 20 minutes.  They are not fun!  I was also told that they were all " medically  appropriate" and saved my life.  I'll be getting copies of the logs and review it to see what really happened.   The only ones that can help you are your EP and Cardiologist so you need to rely on them.  The best thing you can do is educate yourself and review your records so that you can have an intelligent converstation with them.

Good luck and I hope you don't go through that again!

Spelling

by Redredwine - 2018-09-12 03:55:33

Just like to say for some reason spell checker does not work in these comment boxes maybe an admin could find out why and enable it.

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Not suicide!

by Gotrhythm - 2018-09-14 16:55:50

While I often appreciate the excellance of Agent X86"s comments, this time I don't think he's got it right.

You speak of wanting your defibrillator removed. Many people don't realize a pacemaker, ICD etc doesn't have to be removed when its function is unwanted. The device can simply be turned off. Both in Europe and the US medical ethics boards have determined that the decision to turn off a pacemaker, defibrillator, or other similar device is not suicide, nor is any doctor who turns it off assisting in suicide.

On the contrary, when death is imminent turning off the defibrillator is considered good, compassionate pracitice. I talked with a Hospice nurse recently who said in she has never known a situation in which the defibrillor has not been turned off.

Legally, pacemakes, ICDs, etc. are artificial life support--just like respirators, IVs or feeding tubes. A patient has the right to refuse it, or if it has already been started, the right to have it stopped or turned off.

I too had trouble understanding this post, but one thing was clear. Being shocked 66 times is way, way too many. It's horrific. And then fearing it could happen again...Wanting something done to make sure it doesn't happen again seems entirely reasonable to me.

There appears to be a serious communication handicap. Most states offer assistance to the hearing impaired so that they can communicate their needs and get the services they require. Perhaps your best next step would be to seek help for the hearing impaired. Then with their help see if you can get the answers from doctors.

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