Subclavian venous stenosis at the level of pacemaker leads

Has anyone experienced this?  Just got results (mentioned in subject) of a CT scan w/contrast which was done to determine cause of circulation problems in R arm (same side as PM).... arm swelling, aching, discoloration, pronounced vessels, etc.  Next step I'm told is to discuss with an "Interventional Radiologist" who would possibly go in and try to dilate vessel.  Really don't want to live like this, and don't know if it will get worse.  Being told it is probably from scar tissue, developed over time (1st PM put in in 2011), which reached a threshold.  These symptoms were obvious over these past 3 weeks.  Has anyone had this happen and subsequently had it fixed?  How? 


3 Comments

Arm Issue

by Suzypoozy - 2019-02-09 01:16:37

I had a dual lead pacemaker 8 weeks ago. About a week or two after surgery my left arm (pacer side) was discolored; pinkish/purple, and had a "tournequit" feeling to it. Had an ultrasound and a CT scan w/contrast that didn't show a blood clot. The doctor didn't have any explaination and prescribed blood thinners. I am not satisfied with that explaination (or lack of). It's not painful but is irritating and worrisome. Going to get a second opinion.

Good luck to you

stenosis

by Tracey_E - 2019-02-09 08:29:21

I don't have any personal experience with it but we've had a few members deal with it so if you do a search it should come up. If the dilation doesn't work, they'd move the leads either to the other side or epicardial. But fingers crossed the dilation takes care of it!

Subclavian venous stenosis at the level of pacemaker leads

by Aulee - 2019-02-09 10:15:24

Yes, Suzy, it is worrisome.  Keep pursuing until you get a clear diagnosis/treatment options.  Thanks Tracey.  I'll try to do a better search here to see what other feedback I can find.  Been reading medical journal articles and treatment options are not clear cut, plus carry risks of course, but am trying to at least gather appropriate questions for referral meeting.  Who does any treatment will be next important question!  Thanks again.

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