I've always wanted a pacemaker...
said no one ever, but I am grateful, amazed, and delighted by this wonder of technology.
I am a 50yo newbie here (first post) and thankful for this community of cyborgs.
My story started recently in December. Every time I would go for a run in the morning I felt like I was going to pass out. Over the next few weeks my resting heart rate dropped from 65 to low 40's. I had a massive cardiac work-up, including an angiogram, but they found nothing odd, except a few arythmias on the echo/stress test. After two weeks with a ZioPatch monitor, my cardiologist told me to urgently come in. I had extreme VT with exercise/exertion/stairs and I had extreme bradycardia with resting HR dropping to 27 at night. After a lot more testing, I was diagnosed with CPVT. I got a shiny new ICD/pacemaker and daily beta-blocker.
At this point, I am only three weeks in with the ICD, but I feel much better with it pacing me. It is pacing >80% of the time with a resting heartrate of 50. I am not running or exerting myself yet, but even with a fast walk around the neighborhood I am still getting a little bit of VT (a long string of PVCs). I'll go back in a few weeks to do another stress test to see how the beta blocker is doing.
I've got the new Apple Watch with ECG and a bought a portable ECG monitor that has been extremely useful at helping me see what is going on. I hope to not need the defibrulator, but happy that it is there.
This forum has been a great resource.