Struggling with recovery
I’m kinda struggling with my recovery after having a pacemaker fitted January 31st.
Some background info for you. I have had blackouts on and off since I was 7, I’m 31 now, doctors had always chalked it up as just something I do. Following a bad blackout which put me in A&E with concussion doctors decided to run some tests and they discovered I had vasovagal syncope. They couldn’t work out a treatment plan for me but I was still having faints and so in October 2018 I had an insertable loop recorder fitted. On January 26th I had a blackout which I didn’t come round from as I normally would. I got checked out at hospital, who cleared me and I went home. The next morning the hospital that had put my IRL rang me to say I had to go back to my local hospital immediately. It turns out during that blackout my heart stopped for 29 seconds! I was admitted and eventually transferred to the heart hospital and my pacemaker was successfully fitted.
Since then I’ve been struggling with my recovery. Everyone told me how much better I would feel after my pacemaker was fitted and how I would bounce back! But I’m not. I’m still in some pain both where my pacemaker was fitted and also where they took my ILR out. My pacemaker is pacing in my chest which feels horrible and is freaking me out. I was told it can be normal and that it is settling in but is still doing it now. It’s painful when it does and is waking me up in the night. I also can’t get over the fact my heart stopped for that long! It’s been an emotional time and I just can’t seem to get my head around it all!
Please reassure me that these feelings are normal. Did anyone else have these pacing episodes and how long for? How long before you began to feel “normal” again?
You know you're wired when...
Youre officially battery-operated.
I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.