End of Life
I have had cardiomyopathy w/severely low EF for 18 years. I am on my second pacemaker. (1st one only lasted 5 yrs). My Cardio recently told me all I have left to do is a mechanical heart or a dobutamine drip w/a port. I would like to know what the 'end of the road' will be like. I would like to avoid the 2 options I have been given. I imagine I'll feel like I'm drowning at some point. Anybody out there on one of these options & what is it like? I was told this week I am no longer able to be considered for a transplant due to my age, failing kidneys, & sensitivity to a lot of different meds. My cardiologist is on the transplant team so I believe him when he says I am no longer able to consider a transplant. Right now I am still doing ok but things are becoming more difficult. I think my Cardio is preparing me for the not too distant future. Anybody at the same place or worse???