Cardiac Sarcoidosis & ICD/Pacemaker
- by braver
- 2019-03-14 17:04:42
- Conditions, Meds & Tests
- 1137 views
- 2 comments
I had an ICD/pacemaker implanted two weeks ago for cardiomyopathy. I also have cardiac and lung sarcoidosis. Can anyone with these conditions please tell me their treatment with meds and what to be concerned with?
2 Comments
Sarcoidosis
by BuddyN - 2019-03-17 17:25:09
I was diagnosed mid 2017 with Sarcoidosis and by December the Sarcoidosis had affected my breathing to the point I was so short of breath that I could not walk up a flight of stairs. Wife took me to the ER and through various tests it was confirmed that the Sarcoidosis was affecting the electrical heart signals....thus a PM/ICD was implanted 12/17.
My prescribed meds were 40mg Prednisone daily, 50 mg Metoprolol tartrate twice daily, and a daily 81 mg aspirin. The 1st month after the PM and with the new meds, I was wiped out...irritable, could not sleep and ate constantly. Fortunately, I was weened completely off prednisone over 8 months (40-20-10-5mg). Body weight eventually returned to pre-Prednisone weight. The Metoprolol is a lifetime med (2x daily) I’m told. Every 6 months I go to the Pulmonary Dr for a breathing test and the Cardio Dr for an EKG and PM check. I’ve had one echocardiogram since PM. (My EF was good (55%) as I recall). Overall, I now feel normal for a 71 yo, but don’t quite have the endurance I had pre-PM. The Metoprolol may be the cause. Hope your recovery goes well.
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Cardiac Sarcoid
by Jmiller - 2019-03-15 00:53:24
I was diagnosed with cardic sarcoid in 2013 ( also had lung envolvement). Once diagnosed they changed out my PM for an ICD and started me on 20mg Prednisone. Over the next 6 years I was slowly weaned to 5 mg/day. Unfortunately my EF started to drop again recently and I'm back on 20mg and will decrease to 10 mg over the next few months and stay at that level where I appeared to do the best. One of the biggest battles is dealing with prednisone ( make food like crack). I started gaining weight as most claim to do. I found that watching daily calories using MyFinessPal helped me stop and control the weight gain. Not sure what your %EF is but mine started out at 35-40%. With pred it increased to 45-50% but now I at 35-40% again. What are they proosing for your treatmment?