Questions and more questions
Hello to all. As others have said, finding this site 6 weeks ago, after that casual "complete-heartblock-you-need-a-pacemaker" day, has been so meaningful to feel, listen and learn from others.
I have an appointment with the cardiologist next week and I wondered if anyone had any suggestions as to what I should ask about. Sorry for the length of this message.
While I was in the hospital getting a dual chamber PM (3 leads), my bp continued to be higher. I'd been on Losartan for a few years and it wasn't really doing the job, imho, but my GP said it was as good as it gets. The cardiology team added Amlodipine and said to follow up with my GP. It seemed to really solve my higher BP which continues to be very stable and good so yay.
I had a visit to the device clinic shortly after being discharged and I heard I was working fine but didn't really have any questions other than how not to break it.
A few weeks later I saw the cardiologist (belongs to the system, has hours in my small town 45 minutes away from the hospital/clinic). He heard a murmur and recommended I get a sonogram to rule out an aortic bruit. I was pretty flipped when I read up on that and contacted my GP to whine a bit. My question was who was running my show--cardiologist for heart, device clinic for PM, GP for bp meds....seemed so scattered. He did research everything that had happened at the hospital and said they'd found a regurgitation (level 1/6) that wasn't a huge concern--sure was a surprise to me though (& uncool not to have been told). The sonogram turned out fine.
My device was read remotely last week but I haven't heard anything about the results--maybe at the cardiologist next week?
Question part. Although I'm in good health otherwise and overall do feel well there are a few occasions daily where I feel my heart (y'all know that feeling of feeling your heart, right?) become irregular for a few seconds (less than 15 seconds). It commonly happens when I try to walk at a good clip. I just slow up and it rights itself. In the old days I'd describe it as trying to run a 10 mile race after only training for a 1 mile jog--like you hit a wall and your body can't give more. The difference here is it's really just walking (quickly but not training for the Olympics). Occasionally, when I'm reading before going to sleep at night, I'll also feel irregularity for a couple of beats before it gets back to being regular.
I thought I got a PM to make my heart beat regularly--what the heck? I've read some meds correct irregularity and, of course, I'll take what's prescribed but do I really need yet another medication (and some of them are a little scary too). I hear some of you talk about adjustments, sometimes even repeated ones. What sorts of reasons do people get adjustments for? What questions do you ask or what conversations do you engage in? I definitely have more to learn.
Thanks for reading this really long personal situation. If anyone had any suggestions on questions, I'd be most grateful.
You know you're wired when...
You take technology to heart.
I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.