Complex Regional Pain Syndrome post-pacemaker insertion
April 25 I had my aortic valve replaced (2nd time, first time was 2004). Because of my age, I was advised not to have TAVR, as the replacement valve would not be a good candidate for replacement in another 12 to 15 years. I therefore underwent the whole sternum-cracking surgery. Six days later, I had to have a pacemaker inserted due to heart block caused by the surgery. I have been suffering with intense sensations of stinging, biting, burning across my chest from armpit to armpit. Taking pain meds (OTC) brings a bit of temporary relief. Topical analgesic helps for about an hour. Every professional I have mentioned this to says they've "never heard of this before." Not my cardiologist, not the cardiac rehab folks, not the device clinic. So I googled. Found several articles on the NIH.gov website: Complex Regional Pain Syndrome, basically nerve damage from the pacemaker surgery. Nice to know it has a name!! I have found some comments on this group that are encouraging. Seems it may subside in a few weeks/months. I cannot begin to describe what a comfort it has been to find that I am not alone.
You know you're wired when...
Titanium is your favorite metal.
The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.