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Hi everyone,

Could someone answer a question for me please! Having a tough time adjusting to the pacemaker!

Had settings changed from 60 to 70 due to very low bp! At 70 bp raised and felt very wired and couldn't excercise with lightheaded feeling! Felt the pacing in throat and had nausea with it, set at 65 now blood pressure stabilised somewhat still getting spikes! 

Could someone explain the pacing in throat with nausea, is there a setting I could request turned on or off?

my pacemaker technician is young and said she has never heard of it!

thank you in advance 

 


6 Comments

Nausea

by Violet West - 2019-12-18 19:11:59

I think nausea is a bad sign (I had it during one period, related to the cardiac stuff); if I were you, I'd call my doc. 

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by soggy123 - 2019-12-18 19:49:11

Thank you for your reply I have said it to cardiologist and he said my heart looks good on echo! Awaiting ct after Christmas to make sure everything is ok as he doesn't know why I went into block! I feel paced in the throat area which causes the nausea, was wondering if settings could be off!

Cardiologist

by AgentX86 - 2019-12-18 21:22:49

If it were me, I'd be dealing with an electrophysiologist for this but basically the back of the heart is pretty much in contact with the esophagus.  It's possible that the pacing leads are somehow pacing the esophagus, as well as the heart. It's common to have the diaphragm paced (when it shouldn't be).  It wouldn't surprise me it's a similar problem here.

The reason I say that I'd be seeing an electrphysiologist is that they're trained to deal with electrical problems that cardiologists just aren't prepared to treat.

 

I've heard of it.

by Gotrhythm - 2019-12-19 11:55:40

Around the Pacemaker Club you'l find posts about all sorts of symptoms/problems that some medical people say they never heard of.

I'm happy to say I've never had your symptom but I have heard of it. Here. Unfortunaltely, that's all I can tell you.

You might try looking through the archives to see if you can find those posts. I can't remember any specifics but I do know there have been three or so.

There are answers. Keep looking for them.

Caveat to post above

by Gotrhythm - 2019-12-19 12:22:54

I think we all wonder at first, why did I get this heart problem. I know I said there are answers, but when it comes to the "why" we got heart rhythm issues in the first, sometimes there really aren't.

Except for something like congenital heart block, the exact cause is usually unknown. There are many, many possible causes. But it is often impossible to say which cause was the culprit in any particular case.

Moreover, even if you did know the cause, it wouldn't change anything about how the problem needs to be treated now.

Part of memtally adjusting to a pacemaker is accepting that there isn't anything we or anyone else could have done to prevent it. The good news is that we live in a time and place where pacemakers are readily available to all who need them.

I'm old enough to remember when they didn't exist, and there was no help for people like us.

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by soggy123 - 2019-12-19 17:14:14

thank you all for your input, I will look through the archives and do some more research! Thank you Gotrymth I have had Lyme disease so ct of heart is needed to see if there is infection or damage caused by block! Cardiologist is confident there isn't but being careful!

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