So, I have (apparently) an MRI-conditional lead. And an MRI-conditional pacemaker, following an AV node ablation (for longstanding persisten atrial fibrillation). However the combination is not MRI-conditional (according to Boston Scientific and my current EP/cardiologist) so I can't have an MRI. (As an aside: What????)
Which matters, because I have heart failure (HFpEF) and my cardiologist thought to order a set of blood tests so obscure the vampires at the hospital had never come across them before. This was, of course, just in case to eliminate various unlikely scenarios, before we went down the road of managing the heart failure.... and investigating the possibility of a heart transplant.
And lo and behold, one of the unlikely scenarios is looking probable (400 people a year diagnosed with it in the UK). So I have a batch of other tests scheduled including a bone marrow biopsy and a three day appointment at the only UK centre specialising in this thing for them to poke and prod and scan (2 different CT scans with different chemical markers pus the usual ultrasounds, ECG, 6 minute walk test). And they'd dearly love to do an MRI of the heart to measure how badly it's affected, but of course they can't.
Which means that, if they diagnose this thing, they can't optimise the treatment (chemotherapy -- repeated as necessary for the rest of my life) to address any involvement of the heart. Not treating it is not an option (6-12 month prognosis).
Maybe I'll be lucky and they'll give me the all clear from this thing, in which case I'm already scheduled for a heart transplant assessment...
I get all the fun diagnoses!