MRI’s w/ “SureScan MRI” Medtronic PM
Who on here has had MRIs since PM? Was it difficult or challenging to make the appointment? How was the MRI? I'd like your feedback!
I'd also like to share what I know (so far) for others. I've had multiple MRIs of my brain & ankle, pre-pacemaker.
42yo, got PM 4/2019. I'm in the mid-Atlantic region in the USA. Have a Medtronic SureScan MRI PM, I was told casually that this meant I could still get MRIs. I have a LOT of idiopathic "stuff," from Sick Sinus Syndrome to MANY musculoskeletal & nerve issues (started seeing doctors around 20yo, but wasn't taken seriously until I hit late 30s.)
I was being run in circles until I called the toll-free number on my card & they emailed me a list of hospitals that could do it, only FOUR locations in the Baltimore metro area! (Folks, they can tell you a lot on that hotline! It's worth calling when you have questions.)
Several of my diagnosed idiopathic conditions require MRI's. One is OCD in my Left ankle (Osteochondral Defect,) strongly suggested to have surgery 5 years ago. I couldn't be off my feet then; I put it off. I've lived with it; walking/hiking is my main form of exercise now that I'm not allowed to swim (pinched nerve in neck) but despite ankle braces & good shoes, I am in agony after walking any more than 2-3 miles now. (Also have an "unstable joint" in a toe, OW!)
I bit the bullet & saw my foot & ankle specialist. He gave me a shot, which HELPS (& I'm a Baby!) I need a new MRI, it's been six years. I called Advanced Radiology & was told "we don't touch anybody with pacemakers, doesn't matter what kind."
For those who didn't know (like me,) it's far more complicated than I was led to believe. Out of four spots, only one will take me (Hopkins wouldn't only b/c MRI was not requisitioned by a Hopkins doc, I don't have a doc there.) University of Maryland Hospital is the only one unless I want to go to DC (farther away than one would think by looking at a map.)
I now know that all MRI spots near me have to be done @ hospitals (I'm in a large urban area.) They have to have a Medtronic Rep there to turn the device off, a form filled out from my cardiologist, and a form filled out from the referring doctor. I'm not 100% pacemaker dependent (yet, apparently my condition often evoloves, yay,) so I'm not scared of it being off, nor am I scared of MRI machines (close your eyes, pretend you're at a club & the DJ is terrible. NBD, bad boots-in-the-dryer techno.)
I was told Medtronic is the biggest Pacemaker manufacturer, and yes, I'm aware that people before couldn't get an MRI at all... still, I'm curious about the experiences others have had. Is making an MRI appointment this convoluted for everyone with a pacemaker? And is there anything different during the MRI I should know about? I ❤️ my cardiologist, he's great, but I don't understand why this wasn't explained more to me.
Thanks, Hope everyone is having a great day!