HIS-Purkinje Conduction System failure
Hi everyone, I got my Medronic's PM about 8 weeks ago. I have probably been having SVT for years but it was never caught on an ECG. Last April after a day of hiking my HR went up to 158. I was just going to bed and wasn't sure what to do about it. My FitBit caught it and I tested it with BP cuff. it was the same - stayed up for over an hour. I was becoming very anxious as it seemed like a long time for the heart to be beating that fast. They gave me adenosine, which brought it down right away. My cardiologist had me wear a monitor for a few weeks. I had a few episodes of SVT and it corrected itself. In June, while camping, my HR went up to 120 while I was not exerting at all. i stayed back from a hike and as soon as my husband and friends left HR went up to 175. We were high in the mountains and had no cell service. (i know, not very smart) HR stayed up for over 3/5 hours. My watch battery died and when they came back I used my husbands pulse OX and rate was 190. Went to the ER where they were going to cardiovert me, luckily they reached my doc who had them use adenosine again. Hung around for a couple of hours and was discharged. Not an hour later HR back up to 160 with no coming back down. Back to ER and another shot of adenosine. Transported by ambulance to my town a few hours away. My cardiologist referred me to an EP who expained ablation to me and I was all for it. When I asked her about any negatives she said there was only one but it was so rare that she had only seen or heard about it a few times and she didn't want to even discuss it since she was sure I didn't have that. So, went in for the ablation and woke up to find out that they shut down the procedure because I had the thing she said was so rare. Story of my life....the next day she inserted a PM. The DX is HIS-Purkinje Conduction system failure. I had to go back to the ER 2 days post op for redness and swelling (no infection but a reaction to the glue on the bandage) He spelled out the DX for me as I hadn't really hear it before. He told me to not bother looking it up. He had and couldn't make any sense out of the one article he could find.
SOOOO....sorry for the long story, but I was wondering if anyone out there has this condition. I have a dual pacer set to go off below 60 and above 160. I am 71 years old and very active. We hike, ride bikes and camp a lot. (I did get an ebike before all of this started in June because I was getting so tired on my regular bike-no regrets, I LOVE the ebike) My concern is that by HR will go up to the 150s and not come back down, as it's done in the past and the pacer won't help me. Is that a worry? Should I go to the ER if that does happen? I find that I'm restricing my activities because of my fear. Like not going to high altitudes and hiking. This summer has sucked in so many ways and not spending time in the woods has added to my anxiety.
Any comments would be appreciated.