pacemaker after NCS/vasovagal

Does anyone have this problem - have had a PM for almost 4 years. Lifetime of vaso vagals but every 4-6 weeks I get periods of what I call brownouts (I dont blackout) It is like Im going to crash and then it passes off lasts about 1 minute.
They usually start in the early morning (wakening me from sleep) and continue on a roughly hourly basis and then just disappear sometimes only 4-5 sometimes more No idea what precipitates them or why they just go. Drs are stumped

2 Comments

brownouts / de jevu feelings

by busby - 2009-11-03 03:11:56

Hi sparky,
Yes I get that too, sometimes. It is really weird. It seems to be worse if I am stressed and jet lag will always bring on an attack. I also get them 4-5 times in one days and then not again for a month or so.
I have had my pacemaker for 6 yrs now. The 1st 2 years nothing happened, then I went overseas and had one of those days, then another year until the next attack. Then for about 2 yrs an attack about every month (I was stressed at work at this time). I finally had the rate drop response feature turned on and although I can still have these days they are not as bad and I have now not had a bad day for almost a year.
It is a wierd feeling in that if you get an attack the thoughts that you have in your head at the time go round and round. I also turn white and get that pre-faint feeling.
Hope this helps
Robin

Vaso Vagal

by donb - 2009-11-03 10:11:48

I also have Vagal problem, for many years prior my PM which was 17 years ago. At the time I was assured by my Cardiologist that a PM will take care of this problem. Not so, still have it come on with Flu onset but not anywhere as bad. I did fall with my last attack and ended up with a broken nose. I don't know if everyone feels the same with with these attacks but I feel like I'm about to die just before everything goes black which has only happened twice in my life.

I keep Compazine suppositories around which help a lot keeping the nausea and vagal from acting up with any digestive disorder. I've learned over the years that my PM does have some control but not completely. DonB

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