About to join the Club
Hello from New South Wales, Australia. I have read many of the postings here as I approach the date of my defibrillator implantation on 27th June 2007. I have learned much more here about little things to be aware of than I learnt from my doctor. Any suggestions for a newy welcome!
I need to check, but I think I am having a Medtronics defibrillator. I know it has three leads and that the pacing side of things won't actually be functioning, just recording, because my doctor said with my type of dilated familial cardiomyopathy, the pacing can actually be detrimental to the heart muscle.
I am a 49 year old woman, and have known about my cardiomyopathy for about 9 years, before that I was pretty much brushed by doctors, mostly I think because they didn't know what was wrong.
Genetically my problem is caused by a mutation of the Lamin A/C gene which affects cardiac and skeletal muscle. Anyway...just in case anyone else out there knows about this problem. I have a "big" heart and a conduction disorder with LBBB.
I am a bit nervous about the operation and the 'afters'. Most friends try to jolly me along when I say I'm having it put in, "Oh well, that's nothing to worry about. Lots of people have them". So true, but I'm still new to this.
So, Hi! And thanks for the opportunity to talk to people in the same boat. (I don't actually know anyone with a defibrillator.)
Bye for now.