For those interested, looks like my diagnostic mystery saga is coming to a close. After 4 cardiologists and a pulmonologist, I went to see the Director/MD of the Cardiac Performance Center at MGH/Boston. He was awesome from several angles. He put together all the pieces and came out with a strong and optimistic diagnosis. Basically I have complete LBBB, but because of my fitness level many of the tests such as CPET and cadiac cath showed some good test results, and some moderately poor LVEF. When I had a major climbing accident a few years back that took me a year to recover and get back to training I found my training capacity was severely limited. Once my skeletal muscular endurance dropped due to the accident and recovery, my LBBB really showed up.
So, bottom line is I now have an appointment for a Boston Scientific CRT-P pacemaker that has both the accelerometer and minute ventilation sensors for rate reaction HR. On top of that, the EP doing the procedure is using the lastest LB Area Pacing technique and has done more of this procedure than any EP in New England
Once I get up and running, I'll fill in what it feels like