Icd removal

  • by Johnl
  • 2021-09-24 19:55:29
  • ICDs

Has anyone been able to convince their doctors to remove your icd or pacemaker?

I'm 28 years old, I got my icd put in at 25 due to 2 random collapses, since having the icd I haven't had any other episodes

The icd has caused 2 blood clots which led to 2  heart attacks and a few episodes of AF

i was on rivaroxaban with the second clot, changed to warfarin which made me feel sick and tired everyday, changed to eliquis which was fine for a year but now struggling to sleep and I keep getting inflamed cartilage around the chest and ribs, not sure if this is connected to eliquis but it started not long after 


I have asked numerous times for the icd to be removed which is denied every time, 

prior to surgery I was very active, running 10ks everyday and spending 2-3 hours at the gym daily, I struggle to run at all since surgery and my whole body aches if I try go to the gym 


has anyone had their icd or pacemaker removed

any advice is appreciated, cheers 



ICD Removal ?

by Gemita - 2021-09-25 05:58:13

John I would like to refer you back to your earlier post on the same subject and the helpful comments you have already received from valued members.

You state you had your ICD placed "due to 2 random collapses, since having the icd I haven't had any other episodes", perhaps that statement suggests that the ICD has protected you from having further episodes of collapse or paced you out of any dangerous heart rhythms which could have led to collapse?  

I too am uncertain about your continuing calls to get your ICD out and whether it will really help you to overcome all your difficulties.  I have my doubts.  I too think it is far more complex than your post suggests.  I would therefore agree with other members that you really should be discussing this matter with your trusted doctors and if you do not trust them, find one that you can trust and work with.  There are still good doctors out there and if they cannot help, they should be able to refer you to someone who can.  Good luck

ICD Removal

by Revco - 2021-09-27 00:40:36

Hi John

I have had pacemakers since 2004 , the doctors and all those involved have been excellent, Shifted to different part of the country and came under different medical team, Before moving they put a new pacemaker in as battery was getting low,I had to have checkup with the new medical team and that is where the shit hit the fan , ihad a leak coming out from my wound 3 months after my new pacemaker ,they said it was a healing process, and told me that it was all okay even after a red blister showing on wound, end result was emergency operation to take all leads out and replace with an ICU unit,which has not worked as well as my previous pamcemaker,after 3 yrs I finally have a cardio specialist (at another part o the country )doing a full check ,Its the first time in 3 years that i finally have a doctor that I feel is actually listening to me and checking all my concerns,I think you need to find a Doctor that you can relate to and trust , Good luck I would hate for anyone else to go thru all my concerns that i have gone thru.


I feel you pain

by Superman - 2022-01-18 16:07:11

Hi John. 

I am in a similar situation to you. PM me your email address if you fancy a chat



Problem is who will pay for removal.

by BOBTHOM - 2022-02-06 00:36:09

Insurance paid to put it in, and they paid a lot.  They are not going to pay to have it removed unless you can show a clear threat to life, which would be very hard to do, and then, they would want to implant another device to help solve your issues.  It is the way the medical community works.  The alternative is to pay for it on your own.  Good luck!

You know you're wired when...

Your ICD has a better memory than you.

Member Quotes

You now get to start a new life it's like being reborn.