Biopsy scheduled

My EP has scheduled me for a biopsy in mid November.  My heart function and echo has changed since mid June, including additional thickening and stiffening and a change of movement in the septum wall.  He spent 2 hours doing the echo, working with the tech and many times doing the imaging himself, having his med students write down areas to biopsy.  What a difference with him doing it at the hospital, as when it is done in the office he will pop in and out between patients and look at the images.  I saw him several weeks ago and he was explaining the importance of the biopsy.  He has adjusted meds since the echo and spent a lot of time at my last appt. adjusting the pm settings on the ICD.  I have become paced 100% in the RV, no block, and he is unsure why.  I'm 100% paced in RA due to SSS.  He mentioned amyloidosis. The nursing assistant called me last week to set it up and I will see the EP the week before.  He says it's very important he try and figure out what is causing the cardiomyopathy.  He said I need a LV lead but right now I don't meet the criteria due to my EF above 35%.  He said the biopsy results may allow it.  My battery was down to 6 months but with no therapies for VT for the last several months it is up to 11 months.  He will also check for a possible lead fracture in the RV lead.

I'll keep you posted.  Thanks for listening.  I continue to work as a private plant and animal biologist, although it is a struggle.  I push myself every day despite my exhaustion.  


1 Comments

I hope Biopsy results will provide answers and an additional left ventricular lead for you

by Gemita - 2021-10-25 05:22:47

Dear Islandgirl, it was good to hear from you and to know that you are being well cared for.  What a difference that makes and what a wonderful team you have to support you.  I do hope for the very best for you.

There is obviously a lot going on and a biopsy will help to provide answers where other investigations may have failed.  I know this only too well from my own experience.  I am reassured though that your VT (Ventricular Tachycardia) has not needed any control therapies for the last several months and that must have been a blessing for you.  It is a sign for me at least that you are on the right treatment to prevent your VT from occurring, despite your concerning echo results.  Hopefully a future "upgrade" to your system is all that will be needed to keep you stable and well enough to continue to work as a private plant and animal biologist.  In the meantime, please don't push too hard

You know you're wired when...

Microwave ovens make you spark.

Member Quotes

Yesterday was my first day mountain biking after my implant. I wiped out several times and everything is fine. There are sports after pacemakers!