Backup Pacemaker

Actually l am pretty unfit now as it's been 5 years since l was able to do anything in a gym. I don't have an enlarged or athletic heart and just suspect that l always had a problem with Bradycardia, but as l was so active the specialists always put it down to that, and so didn't take me seriously. Now that l don't get below 49/50 l do feel better than l did. The max HR of 115 just seemed to stop me being able to dig deep and give my exercise that extra push, but l could still maintain constant fat burn and work up a sweat. Unfortunately for me l developed an aggressive prostate cancer in 2017 and after that everything ceased up and arthritis set in so now l am about as much use as a hand break on a canoe lol. Regards the arteries, the large ones are clear but the small ones are problematic and l have micro vascular angina which l get treatment for.


7 Comments

115 max

by AgentX86 - 2022-04-30 13:40:27

ERABUS, If you open your thread ("READ MORE") then "ADD COMMENT", you'll keep the thread together instead of starting a new thread every time you want to expand on your thoughts. It helps readability of the thread and reduces misunderstanding.

The maximum HR could be set by your EP as a temporary measure so he can see how your heart adapts is to pacing. There are reasons to be  conservative at first. You should be asking to explain what he's doing, why, and about his long-term plans. Tell him your about your lifestyle, your progress or lack thereof, and where you expect to be.

The point is that if you're passive, he'll assume that you're a couch potato, everything is going fine, or probably both. He can't help you unless he has information.

Settings

by Julros - 2022-04-30 17:22:47

AgentX86 is spot on. When I asked the tech about adjusting my settings based on my activity, she chuckled because "no one asks for that." Lesson learned. You need to advocate for what you need. It is much easier for them to leave you at the initial settings and never discuss dialing them in. 

I think there was a post here recently about how a great deal of  settings, other than outputs, get left at the factory settings for the life of the pacer. 

The trouble with doing this is that one's comment doesn't.....

by sgmfish - 2022-04-30 22:29:57

......bump the message thread up to the top of the "Recent Messages" list. So if your intial post is several days ago and you post a comment, the odds are no one will ever see it.

P.S. Seems to me this site is broken and unfortuately is only effective for newly posted threads, and is poor for making comments.

--------- In response to the above ------

"ERABUS, If you open your thread ("READ MORE") then "ADD COMMENT", you'll keep the thread together instead of starting a new thread every time you want to expand on your thoughts. It helps readability of the thread and reduces misunderstanding."

Broken

by AgentX86 - 2022-05-01 16:52:25

The site is past life support. There is no maintenance on it anymore and we're lucky it's still working at all.

It doesn't matter how we think it should worked, it works the way it does. Deal with it. Starting a new thread to try to circumvent the way it's supposed to  work just makes threads more difficult to read and makes a real mess. I told any newbies how it works (most figure it out themselves). Its not hard.

Please don't think you know more than others or are more important than others. Use the group as designed or all you do is make yourself an ass.

Kind of presumptuous I'd say....

by sgmfish - 2022-05-02 16:15:05

"Please don't think you know more than others or are more important than others"

Please show me where I even hinted at any of that!!

All I posted was fact. (BTW, you made no mention of the downside that comments are easily "lost".)

Important

by AgentX86 - 2022-05-02 17:06:30

I didn't say you did but to say that the design is broken so you (third person) can do what you want (third person) is self-centered and self-important. The action of INTENTIONALLY changing norms to fit self is...

Sure, the design could be better but it's not. Work with what we have. "Comments easily lost"? Look harder. The club isn't so busy that a walk through the few threads won't find everything. It's a whole lot better than everyone posting replies as new threads. That WILL push threads off the front page, losing even more.

If you want to build a new site, I'm sure every one of us would have an armload of suggestions and run to something better. In a perfect world, none of us would be here.

<enough meta-discussion for me>

comments

by Tracey_E - 2022-05-03 14:18:28

Adding new comments as a post actually has the opposite effect- it buries your initial post and makes it difficult to track the conversation.

First thing I do when I log on is go to the posts where I commented last. I click on my name, then comments and they're in a nice neat little list. I click through them to look for responses. Then I scroll new posts. 

This site is now, and has always been, free for members. Yes, the software is dated and a bit clunky, and I think new comments first is at the top of everyone's wish list, but it's full of valuable information so many of us choose to deal with its quirks. The site is privately owned and the ads barely make enough to keep the lights on. There is no easy or affordable way to update the site while keeping the massive archive of posts. Yes, he's looked into it. 

Tracey

Moderator

 

 

You know you're wired when...

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Member Quotes

I have an ICD which is both a pacer/defib. I have no problems with mine and it has saved my life.