"I can't tell how long you've been this way..."
Hello everybody FG back!
Well, after talking a while and looking at my EKG, asking my wife and I multiple questions and criticizing me mildly for having gone so long without getting an EKG (I guess about 20 years or so before all this started), my 3rd opinion EP shakes his head and says, "I can't figure out how long you've been this way. When did you first start having symptons?" I said man I told you, I really don't think I have any symptoms, I'm 68 and and can't run quite as far and fast as I used to and I only like to bike about 70-80 miles max and have no trouble going up stairs. All this started when I was required to get "cardiac clearance" for neck surgery which still hasn't been done.
I have slow aFib, complete heart block, and a junctional escape rhythm with normal narrow QRS at 40 bpm, which can go to 37 overnight. I had a cardiac CT which only showed enlarged atria. Then a cardiac MRI which showed an EF of 65%, but a small area (2% the report said) of reduced inferior wall motion which the cardiologist said was a sign of possible cardiac sarcoid, so I had a PET CT specifically set up to look for cardiac sarcoid. It was normal.
So now what? I know my heart is slow. But I guess I'm used to it. And I'm not like the rapid ventricular response folks that need ablation. I have slow aFib and no symptoms. But I'm told an escape rhythm can be unreliable and I might have some sort of sudden cardiac stoppage. I read that I still have at least two more natural pacemakers in line before I run out of tissue with intrinsic automaticity.
Some of you on here are incredible sources of information. Please give your opinions. Is this really needed? We all know that something as serious as a pacemeker can have complications. I heard of one person who had a stroke during insertion, I guess because of a clot knocked loose from the left atrial appendage. I sure don't want that!
If I do go through with it (and probably will, my wife wants me to) I would like to get conduction system pacing such as HIS bundle, LBB or septum to avoid the PM induced cardiomyopathy that can result from long term RV apex pacing. I would be paced 100%.
How many of you have HIS, LBB or septal pacing? How many with RV apex pacing have needed CRT because of PM induced cardiomyopathy? I know this is long but a lot can be covered in this thread and we can all learn a lot. Thank you all sincerely. FG
You know you're wired when...
You run like the bionic man.
Today I explained everything to my doctor, he set my lower rate back to 80 and I felt an immediate improvement.