Heart failure follow-up / check-up satisfyingly good

Hi everybody

CRT-D equipped since Feb 2021, my story is in my bio if you are interested.

I just wanted to share my good news.

My check-up was this week. France is a great place to recover from heart failure, I'll tell you. My device was checked and is fine.  I had an echo cardiography and my FE is now (drumroll please....)

55% !

So happy about that. (Was between 15 and 20% in Nov 2020 when I was diagnosed)

They also seem to say that the reason I had my cardiomyopathy is "broken heart syndrome" or Takosubo.

They changed their mind about that, because I had asked about that before the procedure.Specially since I did have a big emotional shock some time before.

Anyway, this is really good news for me.

My meds and the CRT-D are taking care of the situation.

She said she'd see me next year !! (In stead of every 6 months)

Just wanted to share, and maybe cheer up people suffering from HF

Keep hope !

Hug you all

Tulp


5 Comments

Good for you!

by USMC-Pacer - 2023-06-09 16:53:52

I had a CRT implanted last March and I'm hoping for the same result! I also had an aortic valve replaced (severe leak) so fingers crossed.....

Wonderful news

by Gemita - 2023-06-09 18:04:55

Tulp, I know health care is very good in France but we are not doing so badly here in the UK either.  My sister went into heart failure in November 2021 with a fall in ejection fraction down to 16%.  She wasn't offered a pacemaker or anything other than medication, so we were all very worried about her and wondered whether she would ever improve.  Her Ejection Fraction today is back to 49% on medication alone.  We are all relieved.

55% that is really normal again and out of danger.  I do remember your early days with heart failure, your struggles and I can hardly believe you are the same person.   It is a real success story and hopefully helps others worried about their hearts to start believing that it can get better.  Heart Failure sounds so frightening, so final, as though there is no way back to health, but it isn't always like this and many of us can live normal lives for many many years with the right combination of medication, lifestyle and choice of device.

Hugs to you too Tulp for many more wonderful years in perfect health.  I hope no one ever breaks your heart again.  Happy painting! xx

Thanks Gemita and USMC

by Tulp - 2023-06-09 20:02:32

Thanks for our reactions.

USMX I hope you will be recovering well.

Thanks Gemita for your encouragements.

They tried to put me on meds only, but the Entresto they prescribed was really horrible for my system, and I was "allowed" to stop.What a relieve! 👍. The side effects were really bad...

The "broken heart" was actually à very emotional letter my father had written to me on my 19th birthday, back in 1984.

I got to read the actual letter in 2018, eight years after he had passed away...

(My stepmother had found it, and thought I should have it)

It was a lovely declaration of love I had never had from him. He wrote things in this letter that made me cry so much... touched me soo much.

I actually cried in the doctors office today when I mentionned the story about the letter.

So it was not a broken heart in a sad way, but in a very previous loving way.he had opened up to me in a way he had never done. And I had a physical reaction.

As my cardiologist said, tacotsubo can be caused by emotional shock, or stress.

Thanks for your hugs Gemita, I'm quite fond of them

Hugs to you too.

Tulp

Emotions

by Gemita - 2023-06-10 05:53:56

To touch the “emotions” can be a painful experience, but I would rather be able to “feel” such emotions, to really soak them up, than never to experience such emotional depths.   But it may come at a price.  

I never considered that a deeply felt emotion like joy or relief that a parent really understood could have caused such lasting trauma to the heart.  In many ways it is understandable especially if we didn’t feel so close during our childhood and really needed to know that a parent loved us.  

Learning after the death of a parent that we were truly loved, understood, accepted would no doubt stir many difficult emotions (and regrets?) in many of us that during our lifetime, neither side was perhaps able to express these deeper feelings when it most mattered. 

It has been a difficult period of illness for you Tulp, but I am so glad that you have navigated your way through this trauma so successfully and hope that you will continue to do well xx

What a treasure

by Lavender - 2023-06-11 07:59:51

Loved your post. What a priceless treasure that letter from dad was for you!🌸

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