Pacemaker Adjustment time

Well I go in for my 1st checkup this Thursday. I have a Ton of Anger to let go on my Doctor. They had the initial settings all wrong! I had to go to the Emergency department a week ago. They had my Movement sensor set to maximum. I couldn't scratch my ASS without getting a 95 Heartrate. Also my return Heartrate was set to 10 minutes which meant that if I walked up my stairs and my Heartrate went up to 100 and I then sat down it took 10 minutes before my Rate would start to return to 60. Plus I have a Occasional PVC with a pause. The Medtronic Tech changed the settings so immediately after a PVC my Pacemaker would Fire my Atrium and normal heartbeat without a pause anymore. The Medtronic Tech was absolutely blown away at the post Surgery settings they had set!! Anyone else go through something like this?? Oh also the Medtronic Tech reset my Return Heartrate to 2:30. That helped so much. 


5 Comments

Sorry to hear that

by BradyJohn - 2023-08-06 01:25:17

Hey Rob,  sorry to hear about your experience.   I have had my Medtronic pacemaker for three and a half years.   Along the way,  at appointments the settings have been fine tuned based on my reporting and what the device recorded.   Others here will have more to say about what one can expect from the doc who installs it.  I hope things go better from here.   I would also add that it's not super helpful for a technician to say more than,  'I think I can help you', and then make the adjustments.  

Take care,  welcome to the club, 

John 

😵‍💫🙄

by Lavender - 2023-08-06 09:28:59

Geez!  All I can say is that during my implant surgery, whatever I was set at, was changed the next morning. The morning after, while I was still in the hospital, the Boston Sci rep came in, checked things and called the EP for permission to change the settings. 
 

I hope your new settings are much more beneficial!

"Ton of anger to let go on my doctor" sounds ominous!

by Gemita - 2023-08-06 11:14:09

Hello Rob,

I know we all feel like it sometimes but I personally wouldn’t go in to your appointment with all guns blazing.  I would go to the gym first and let out all your tension.  In my experience it is better to be courteous and to hold back and wait to hear why the settings were set the way they were?  Perhaps they will give you a valid reason or an apology and make sure that your treatment is better from now on.

Movement sensors/?Rate Response settings that you seem to have had problems with are very difficult to get right even for the most experienced technician and it may take many attempts to get settings optimised for us personally.  Many members report having to return to their clinics to work with a technician or the manufacturer representative while they work on a treadmill.   The symptoms and the problems you describe from Rate Response for example have been described many times on these pages and you are not telling me something that I haven’t heard before.  Personally I am not shocked by what you are telling us, but I am truly sorry you were so uncomfortable that you had to seek emergency help. 

Looking at a few of your settings.  I note a Medtronic technician in the emergency department(?) made some urgent changes for you and that you are feeling better now.  Can I just confirm the changes that were made because I also have a Medtronic pacemaker:-

1. Your Heart Rate Recovery setting to return your heart to a resting heart rate following exercise (which you refer to as Return Heart Rate) was originally set to 10 minutes and the emergency Medtronic Rep re-set it to 2 mins, 30 secs?

2. Movement sensor (?Rate Response) was originally set to Maximum Sensitivity, although you don’t say what it was changed to?

3. Your setting for PVCs.  The pacemaker setting does not wait until after the long pause before intervening with a heart beat.  That sounds like a setting that we would all like to know more about Rob?  Many of us are absolutely plagued by these ectopic pests.

Good luck and please stay calm this Thursday

Ton of anger

by AgentX86 - 2023-08-06 13:42:08

That's really a bad idea. It's not smart to burn bridges in front of you. Asking pointed questions is a better way to get your point across.

BTW, I have mine set up that way on purpose. I'd like it faster so stairs wouldn't suck.

 

I thought they were legit trying to kill me. 😂

by PacedNRunning - 2023-08-07 03:00:06

I thought they were trying to kill me. Not really but dang those settings are rough. I don't need rate response at all and they had it on. Made me feel super old. Very short of breath and could barely walk. They ended up turning it off for me. Don't be too upset. These things have to be tweaked to our hearts and it's function. 

You know you're wired when...

Your kids call you Cyborg.

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I just want to share about the quality of life after my pacemaker, and hopefully increase awareness that lifestyles do not have to be drastically modified just because we are pacemaker recipients.