Different recommendations on each visit still cannot get it right.
I have recently returned from toronto where I was checked before receiving my remote monitor. I was hoping for better help with my PM as after 5 months and 6 pror appointments, they still cannot agree on settings. All but one one left me SOB and exhausted and set me back on my exercise program to almost post op. Another symptom which is really problematic for me is brain fog or confusion, memory and focusing issues. So on the 6th I was with the cardiologist for about 7 minutes and he told me my ventricles have to work on their own sometimes and there needs to be a delay to get them to heal and do some of the work. (I have complete AV block). He also told me that he didn't have enough background information (I spent 6 weeks gathering all my reports etc and they were right there. He sent me home feeling so awful, I was afraid I might not be able to make the drive. SOB, head sponning really fatiqued.. I called next morning to get back into the clinic and the cardiologist ( a different one) put me back on the PM taking full charge of getting the V to pump. I am trying to understand it all. In the meantime sometimes I feel so bad I get frightened. Noone has ever checked for or mentioned the possibility of pacemakre syndrome. I have had only one doctor who took the time to examine everything and set it up properly but he is a fello and cannot be requested. Nor do any of them have enough time to look at everything to make an informed decision. And seldom am I even asked how I am feeling. Basically the stqndard "the pacemaker is doing its job." How do I get on topof this? I am frightened sometimes but I don't know if any of them really has a handle on the working s of the machine, yet I have been at 3 teaching hsopitals...
You know you're wired when...
You name your daughter Synchronicity.
The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.