Help with AFIB I don't know what to ask for
I was diagnosed with sick sinus node syndrome and AFIB April of 2023 and recieved a pacemaker September 1, 2023.
Prior to the pacemaker implant I was taking 40mg lisinopril nightly. I complained of what I thought was cardiac cough and the cardiac nurse switched me to losartan potassium 50mg.
I had issues with this medicine (see note to follow) and then she switched me to clonidine .1mg which I also had problems with. At this point I told her I would rather take lisonpril and cough and instead of giving me a another medicine to try they told me to take the lisinopril.
(Note: I had to look up the BP medicines in my records. For some reason I remembered trying them in the reverse order. From what I remember the Clonidine made my extremities VERY numb. The losartan potassium made me feel like someone was squeezing my heart).
I was sent home from my pacemaker surgery with prescriptions for Flecainide and Diltiazen ER.
I was honestly scared to try another BP medicine and did for long and complicated reasons was not convinced I had that much AFIB so I just didn't take them and continued to take the lisinopril.
My first post op download 3-5 days later showed zero AFIB. However over time I have some occasional AFIB. Maybe 5-7 days of scattered AFIB since Sept 1. My pacemaker does pace 75% of the time. My heart was pretty slow. It set off the alarm for dropping under 40 while I was waiting to go into surgery and not on any meds, etc...
So here is the problem. They talked me into taking the flecainide which I am totally onboard with but I have struggled with maigraines my whole life and sure enough it gives me headaches.
So I quit taking it.
Because of the holiday season I have been having more incidences where I feel palpitations. Sometimes these don't even register as AFIB or anything unusual to the cardiac department but something is definitily going on. The flecainide stops this. My father and all of his siblings have/had AFIB.
I got the bright idea last night to go ahead and try the Diltaizem and see if i could take that with the flecainide and maybe together I would not get a headache? Instead of the lisonpril? I am down to 10mg lisonpril by the way. I lost 20 lbs and my BP is much lower now.
Anyway, I took a Diltiazem this morning and it also makes my chest feel the way the losartan potassium did. It just feels a little "squeezed". I can try it a couple of days. I am scared to take the fleccanide so am going to go with just the Diltizem for a day or two.
What I am asking is what other medicine could I ask for besides fleccanide that does the same thing that might not give me a headache? Also what BP medicine should I ask for that might not squeeze my heart? Honestly for me lisinopril is the BEST but I thought maybe a different BP medicine with the fleccanide might prevent the fleccanide headache. (many people find that PB medicines prevent their migraines).
I want to try to lose another 30 pounds this spring. If I do I doubt I will even need BP medicine anymore so I probably need to focus most on finding something to replace the fleccanide.
Oh one last thing. I can control my AFIB by never getting past a "fat burn" heart activitity level. never over stressing myself, eating too much, eating too little, keeping my type 2 diabetes suger level perfect, never having a sip of wine, never catching a cold. Living a perfect life. It's like walking a tightrope. My surgeon told me i was a good candidate for ablation and if I lose the 30 lbs (which he wanted me to) I think I will push for it.
Thank you for any input!
I read other people's posts and realized i have very little cardiac knowledge.
You know you're wired when...
You always run anti-virus software.
I've never had a problem with my model.