Tricuspid Valve Repair - Regurgitation caused by PM Wire
I read some of the previous forms around this but couldn't find any recent ones. I was wondering if anyone has any experience getting a valve repair? I haven't been able to find as much online about a repair vs a replacement. I am mainly curious about recovery and the patient experience. I have had to get a wire removed before and it was brutal for me, but I have never had a valve issue until now. So mostly just trying to figure out what to expect.
I have posted here a few times before but it has definitely been a while so hi I'm Abi 24F. I have had a pacemaker since I was 9 months old and am currently on my 5th generator. This past year I have been dealing with some serious health issues. I went to the ER in April thinking I was having a heart attack I wasn't (thank goodness) but they noticed I had a severely enlarged liver when they took a chest CT. That led me down a long journey to figure out what was wrong and I just kept getting worse and worse everything from extreme nausea and fatigue to feet swelling and mental fog. After a liver catheterization they realized the liver issues were being caused by a heart problem they thought heart failure so they had me get a right heart catheterization. I just did this yesterday and they found that I have severe tricuspid regurgitation that has been causing all this. My tricuspid valve has basically been stuck largely open due to wire placement since I got my most recent pacemaker in 2016 (the wire had broke and they had to replace it) they are obviously planning to moved the wire but they also said that they will likely need to repair the valve. I wanted to see if anyone on here has faced similar issues and what their experience is with a valve repair and/or replacement. They intend to do the surgery sometime in January.
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