Exercise following a shock
Sorry for this long message but I need to give some background before asking some questions (if you dont mind)
I had a Medtronic ICD fitted about 2 and a half months ago (dual, pacemaker and defib) following a cardiac incident while out jogging that eventually led to me being shocked in hospital to get my heart rhythm back on track.
Turned out I had Arrthymgenic cardiomyopathy that had finally reached a point of "no return" (was told most likely just an age thing being 61 as there had been no previous warnings)
All was good at my 6 week check up and was told I could ramp up my exercise and nothing was out of bounds other than golf and tennis (which was to do with the ICD instalation wires nothing else, which didnt bother me as I don't play either).
So I built my jogging back up and for the last few weeks had been happily running 10k (about 6 mile) with no issues until yesterday, without warning, I suddenly couldnt take a breath. So I stopped jogging, took some breaths but within about 20 seconds the defib went off (the sudden ability not to take a breath was the same sensation that occured when I ended up in hospital the first time).
After the "kick" I felt OK (although shaken up) and my wife came and got me in the car and took me home. After this we had such mixed messages.
The notes given by the hospital said if you have just one shock and feel ok you should notify your doctor (or pacing team) but need take no further action at that time. My wife was understandably worried and made me call 111 who arranged aa doctor call back. He recomended going into hospital to be checked out.
I didnt want to do this as I knew the pacing teams dont work weekends but still went anyway as I didnt want to go against his advise.
They ran the normal tests, ECG etc and all was fine but as expected there was nobody available to chekc the icd data and they wanted me to stay over night so that hopefully I could be checked the following morning.
They did say they had spoken to one of the cardio consultants to get his advise and part of his response was to tell them I shouldnt have been running anyway (whiuch was not what I was told at my 6 week check up)
I declined to stay overnight as I said that by chance, I was seeing the pacing team the very next Tuesday as I wanted to discuss the settings on my ICD anyway and had luckily managed to get an earlier apointment rather than wait to the next 6 month check up (I have the normal preset of 60/130 BPM and wanted to see if they can turn on the night time mode which reading this forum I know exits so as to lower it to 50 bpm at night as well as discuss increasing the max rate to be closer to my normal max running rate of 160bpm).
They werent very happy about me going home (duty of care which I understand) but agreed to discharge me (after signing a waiver form) and I returned home and have felt ok now for 24 hours since the ICD first going off.
The reason for this long post (apologies again) is to ask the following.
1) Should I be running in the first place (as mentioned to me in the hospital and said to have come from the cardio consultant) as this incident has occured twice now while out jogging? (I'm just a jogger not a runner and the incident happend both times at around the 6km mark well short of my usual 10k and even before I hit a slight hill on my retuurn)
2) After a defib goes off, how long must you wait before undertaking any further exercise (even if its just walking)?
3) Is ther anything else that can be done to stop me having a cardio event that causes the need for the defib to go off (can the pacemaker settings help or is there other medicines to stop my heart going out of rythm causing the defib to fire.
Thanks again for reading and appreciate any advice.
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