Andersen-Tawil Syndrome

I would like to communicate with ANYONE who has been diagnosed with Andersen-Tawil Syndrome.

Thanks!
Victoria

3 Comments

Andersen-Tawil Syndrome

by scpck - 2007-09-30 04:09:28

I had never heard of this so I did some reading. Apparently there are only about 100 cases reported. Is this your child you are asking about? Bless you.

P

ATS

by luckyloo - 2007-09-30 07:09:28

hi victoria,

i was diagnosed with andersen-tawil syndrome by dr. tawil himself. i was diagnosed in the year 2000.

you can email me at zaphearty@yahoo.com.

luckyloo

Andersen-Tawil

by cubbysmom - 2007-09-30 10:09:29

There aren't very many reported cases, and I'm trying to find someone to communicate with. I'm asking on behalf of myself and my 11-year-old son.

Thank you very much,
Victoria

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