Hi everyone - my son, now aged 37 had 2 valves repaired at the age of 5, We were told then he would probably have to have plastic ones at a later date. Over the last 5 years he has been in and out of hospital because of going blue in lips and fingers and cheeks, Each time hospital put him onoxygen and he recovered quickly. He has been told he has epilepsy now. I dont think so. I think because his pulmonary valve is leaking, it is not sending oxygen from the blood to his brain, making his pass out for several minutes. He is now quite lethargic and his color leaves a lot to be desired. He saw another consultant last week who has now come up with the idea it is a Syncopy syndrome he has and not epilepsy. I have had my suspicions about this for some time. I have a pacemaker since 1986 and would not be without it. it is my friend and my guardian.
Any ideas about my son.