Pacemaker syndrome

Hi all,
Been very up and down physically this week. Cardiologist said today that best way forward is to implant new dual lead pm as he thinks i have pm syndrome....i was in tears, he has left the decision up to me.....what is it?.....can it get worse?.......is it better to try and live with the symptoms when they occur rather than go through another op at 34......your thoughts people please...xx

Single lead medtronic pm

3 Comments

Pacemaker Syndrome

by Pookie - 2010-02-12 05:02:50

Hi Chippy.

At one point in time (a few yrs ago) an ER doctor thought I might have PM Syndrome...although I have a 2 lead pacer.

Back then I did A LOT of research (thinking that is what I had) and found out exactly what Cabg Patch just wrote is 100% accurate.

The decision is yours. You are still so young and have so much to live for. I guess my question would be: why wait????? why put up with those yucky feelings?

One thing that did catch my eye is: you said: he "thinks" I have PM syndrome....he thinks????????

Get a second opinion if he is not sure.

Pookie



Pacemaker Syndrome

by ppt - 2010-02-12 06:02:14

I have PM syndrome and have a dual chamber Medtronic PM. As Cabag Patch said it is lack of synchronization of the timing between the atrium and ventricle. It took a really good EP to diagnose the PM syndrome from data he received while I was wearing an Event Recorder for a month. Have you done this study? Anyway the EP continually monitored me (ECG, echo, PM interrogations etc) and changed the settings on the dual lead PM and over a period of about 3 months - voila - things significantly significantly improved :-)))) I now exercise regularly and walk 2 miles every day. So see about an Event recorder to support the diagnosis and then why wait? That timing issue is really intricate -

Pacemaker Syndrome

by hreeser - 2010-02-12 09:02:26

Hi Chippi 22;

I also have PM syndrome but it is under control and I can exercise most every day and feel fine. I am 74 and started using a PM about 18 years ago. I am presently using a 2 lead PM made by St. Jude. My 3rd PM will be installed this year.

About 3 years ago, my health and energy started declining significantly. Many days I stayed in bed or retired very early due to lack of energy, could not drive, confused, and disoriented. My cardiologist, GP and pulmonary specialists ran many many tests over a 2 1/2 year period before concluding PM syndrome was causing the problem. This was unexpected since the PM had been providing satisfactory service for several years. My cardiologist increased the PM rate to 80 bpm from 70 and I felt an immediate improvement and now have good energy level and feel great.

I hope this info may be useful to you. Good luck.
Hal

You know you're wired when...

“Batteries not included” takes on a new meaning.

Member Quotes

The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.