Need help & nonstop problems after shocks.

  • by bunnykin
  • 2010-02-17 11:02:20
  • 734 views
  • 3 comments

Hi friends I think I need some help here; I have been trying to deal with my situation since last month after I had VT and my ICD came in to shock me 5 times! For the life of me ever since then my life was upside down. I couldn't get back to normal and everyday for the past 4 weeks was great ordeal. I had to deal with my ongoing fear of the shocks recurring, something that my EP said was common esp in patients who had multiple shocks, but I also had fatigue together with other arrhythmia that complicate matters. I had seen my EP almost every week to every other week for palpitations that sent my blood pressure sky high & sometimes low. Normal days I'm known to have low blood pressure or mainly normal. I usually have very optimistic outlook of life and a good Christian if I may admit. I have not been sleeping proper since the shocks and this cumulative effect of sleeplessness of course caused more discomfort plus triggering abnormal heart rhythms. I've also done a 24hr holter which showed weird junctional tachycardia and on interrogation of ICD I also had some retrograde conduction...Oh help I wonder what's going on. I've been so unwell ever since and had actually been to the emergency dept. after a weird arrhythmic episode at the airport 2 wks ago when I had to turn back and not travel. What can one do at this stage? I've a very complicated case and my dr actually mentioned a 4th ablation when he can document better this arrhythmia aside from my basic VT that was the reason for the ICD implanted. I'm at the end of the tether I think and I feel I must not keep silent anymore and pretend to people around me that all's well; I think I ought to ask for some assistance...opinions...advice or whatever...thanks.
bunnykin


3 Comments

Oh dear...

by Pookie - 2010-02-17 03:02:52

Bunny, I don't know anything about VTs. Sorry.

I think I can understand the huge amount of stress you have after being shocked 5 times by your ICD. I'm so sorry that happened....did it happen for a reason or was it a misfire?

Where has your doctor left you? Meaning do you have a follow up appointment with him to decide on what is next? Are you going forwards with another ablation?

Perhaps (and don't take this the wrong way) but I think you need to be able to talk to a professional like a therapist or someone as bottling it all up inside is not helping matters...I did that and it make things worse. If not a therapist perhaps somebody from your church or something like that. You need support.

I know that when I went thru stress and depression at it's worst, I had panic attacks and I had the weirdest heart palpitations. But I sought help and now I am a lot better. Depression can cause pain, fatigue, chest pain, the list is endless.

I had my pacer on November 2 of 2004 and on November 4 I ended up dieing in the ER not once but twice because of complications from the pacemaker surgery. I went into a deep depression and stress was my middle name. The panic attacks were absolutely horrible. But I eventually sought help from a psychiatrist and a psychologist and still see them monthly to this very day. However, the 3 of us knew that what I had experienced was way more than depression and stress and both of them tried SO hard to get me help...fast forward to last March (almost a friggen year ago now & how many year AFTER my death experience) and I was finally diagnosed with Post Traumatic Stress Disorder and TOMORROW I finally get to see a professional who deals with this. Talk about a slow medical system, but...I am finally getting the help I need.

All I can suggest is keep on your doctors with your care and perhaps you should seek some help like I did because it really did help me.

I wish you all the best and remember we are here to support you too.

Hugs,
Pookie

Dear 'Need help'...

by JulieH - 2010-02-17 12:02:22

I'm not sure anyone here is qualified enough to give any kind of specific answers on your situation. Probably best that you either contact your doctor or, if you are worried about the quality of care that he/she is providing, perhaps find a different doctor. Whichever you choose, good luck finding relief.

Julie

Thinking of you!

by tcrabtree85 - 2010-02-17 12:02:36

I don't have very much advice as I don't know what the best route would be. I will be thinking of you a lot and sending some extra prayers up for you.

Take care of yourself and relax as much as you can.

Tammy

You know you're wired when...

Your life has spark.

Member Quotes

It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.