First PM Check Up - medics on the defensive again!
I don't think I am very good at appointments - I have come away with very few answers to my questions and am not terriby clear about the changes that were made.
What I do know is that my pacemaker has been working less than 5% of the time (I think I should be pleased) between the two chambers. For a short time he turned the settings right down and I felt completely different. He didn't actually say he had done this but as I no longer felt my heart beating and my breathing felt better, I asked what he had done. He was really suprised that I noticed the difference! He then decided he would turn the rate response switch to medium level from low. But as I had already explained that my pulse was around 105 with only very gentle movement, surely this would made it worse. He then decided he would switch it off! Turn it up, turn it off! Doesn't seem very scientific. He has also turned down the electrical charge to each lead now that they should have stopped moving about - that seemed to make sense.
I have an appointment in 6 months but he will be happy to see me to make further adjustments if I think it is necessary. When I first went in and he asked me how I was getting on with the PM and I said I felt very breathless and tired, he straight away said that it was very unlikely to be he PM! Why do all the medics seem to go on the defensive if I only hint that I felt much better before the PM implant?
My cardiologist also asked me to ask the technician to give him a call while at my appointment but he insisted it was not necessary as he would be seeing him a bit later and would talk to him then. I am not in awe of doctors and am normally fairly well in control and understand what is going on. But this is different - maybe because it is a piece of equipment - rather than medication or surgery.
I can't get away from the feeling of well-being that I felt when the settings were turned right down (off). I now realise how horrible it is feeling your heart all the time - especially in my neck and fluttering in my chest. Oh well, I just hope these new settings will make me feel better.
Thanks again for this excellent forum.