Just Me...Pookie

• by Pookie
• 2009-04-07 08:04:44
• General Posting
• 937 views
• 5 comments

Hi Everyone.

Anyways, I know this should be an Off Topic posting, but what the heck....

I have been living in chronic pain for 5+ years now. I have been passed around like a hockey puck from doctor to doctor. I too am sick and tired of being sick and tired.

Well I landed in the ER twice the last week of March (on my birthday no less) because of the chronic pain I have in my head, jaw, neck, shoulder, etc. But this time (March 21st) I woke up with my entire right side of my face completely frozen and painful at the same time, very weird feeling to say the least. I then waited a few days hoping it would go away, it didn't, then went to the ER on the 25th as the frozen feeling spread into my ear and mouth! It's like being thrown in a snow bank face first and left that way for about 4 hrs. Not numb, not pins & needles, but frozen and painful. Then I ended back in the ER again on the 27th because it spread further into my scalp and teeth and my tongue is frozen! Now I could eat eggplant or raisins I suppose.......Yuck. One has to keep their sense of humor.

Anyways, long story short.....I have had many diagnosis!!!!!! None of which sat right in my gut, if you know what I mean. But out of this last ER visit one particular doctor actually reviewed my medical file and something didn't sit quite right with him, so he sent me for CT Scans,etc. and wants one of my OLD diagnosis revisited.

I say OLD diagnosis, when really I mean a Radiologist found what he said was Eagles Syndrome...a fractured and calcified ligament that runs up the side of your jaw and head, which causes head pain and dizziness, (as it can impinge on the carotid artery) which I suffer with terribly. This "Eagles Syndrome" was found in 2007 by a Radiologist, but when I went to the specialist with what the Radiologist said I had, the specialist disagreed!!!! I went to a 2nd specialist and he also disagreed, so I dropped that diagnosis as the source of my pain.

Anyways, back to the ER doctor....he sent my test results to yet another specialist and 2 new Radiologists and ALL of them agree that I do have Eagles.!!!!!!!!!!

So, now I wait. I wait, in pain, which has worsened, to get into see yet another ENT (ear, noses, throat) specialist. I am stressed to the max hoping like hell that I get the sensation back in my face...that is my main concern. And I am scared. Also a bit hopeful, frustrated, angry, sad, etc.

The good news is: is IF this is indeed Eagles, then it would certainly explain ALL of my symptoms. Surgery is the only answer, but I'm game!!! Hey, what's another scar? Except this time, it would be on my neck.

Sad to think that I've been suffering for over 5 years now. Only because of my being a royal pain in the butt constantly going to the ER and doctors, well, I just might be on the road to recovery. I shudder to think if I had a laid back type of personality!!!!!!!!!!!! That is why I encourage people to go to the ER or their doctor when they know they don't feel right...better safe than sorry. But as we all know, wherever we live, our medical systems are so jammed up and overworked and underfunded that things can be missed and are. Frightening.

Again, I apologize as this is not heart related. However, I do understand that a lot of us here deal with more than just our pacers or defibs and I just want everyone to know that I am certainly here to support anyone even if it's not heart related.

I also wonder IF this is Eagles, I wonder if I could sue...not for the money, but someone (some doctor) should have to be held responsible for the mess I'm in. But...I live in Canada, and unless you are maimed you will be throwing your money into the wind. I just want someone in the medical field to stand up, face me, and say that messed up ~ royally.

On the funnier side of things....(if you have a sense of humor) a lot of my friends say I should write into that TV show...Mystery Diagnosis. And you know...I just might.

Thanks for listening.
Pookie