Too Good To Be True ??? !!! ???

Well, as most of you know, I had my first ever pacemaker adjustments with an EP this past Monday. I've had my pacer for 5 yrs and just shook my head that with all of my problems, that it took 5 yrs to finally get to see an EP. However, I did, and he changed some settings this past Monday.

I thought my world had changed for the better, I really did, but I was also cautiously optomistic.... because after the pm settings were adjusted, I skipped up all those stairs and truly felt my world was going to be back to normal. Tuesday I was busy all day & went to a surprise bday party until quite late that night; Wednesday I was busy around the house & that night went out with a friend of mine for a late night supper; Thursday I was busy around the house again & then went to puppy school, where I usually was the "listener" & Lloyd worked with Maxx, our puppy, but this time we reversed roles because I felt fine. Those 4 days were the best days EVER in the past 5 yrs and I was over the moon with happiness.!!!!!!

Then, and you guys all know MY luck, the bottom fell out.

Friday I awoke and I just wasn't myself. I was very short of breath again but even worse than ever before and just had to sleep most of the day away. I was so disappointed, but thought, ok, it's just because I was so busy and my body wasn't use to this. But in my gut I knew things weren't quite right.

Saturday came and I mustered the energy to get showered and head to the mall to do my last minute shopping. I did okay during the day. However, while getting ready, I did feel my heart "take off" (speed up) but it was for such a short period of time, I just recognized it and then forgot about it. At supper time, Lloyd and my friend and I went out for supper and by this time I was feeling AWFUL, but didn't say a word. When we got home, I immediately changed into my PJs and hit the sofa.

There is when my hope went crashing down. I started to feel all these weirds rhythms in my heart. I felt faint. (Lloyd was out walking the dog at this point in time). So, I just layed there, hoping & praying these feelings would just go away, as I was thinking I perhaps pushed myself a bit too far this week. But the palpitations got worse and more crazy and then my chest began to hurt. It felt as tho my heart wanted to beat right out of my chest. I was having pauses. It was racing. It was slowing right now. It was like my pacer was competing with my pacer. So, I had no choice but to call 911.

I just got home after spending almost 24 hrs in hospital. I was seen by numerous doctors, they tested my blood just in case I had had a heart attack, etc. They took Xrays of my chest. They even called in a cardiologist (intern) that could run the pacemaker computer (is what I call it) and he said that I had had a few events of atrial tachycardia, but nothing alarming.

To make a very long story short: the ER's only suggestion was that I get in contact with the Pacemaker Clinic first thing tomorrow morning. When I did leave on this past Monday, the last thing I double checked was: that if I began to feel "crappy" that I wouldn't have to go 6 months before I could come back, and my EP gave me his phone number, so I guess I'll be dialing his digits tomorrow!!!!!!!!!!!!!!

I am very sad and disappointed right now, and did A LOT of crying in the hospital throughout the night (when I was alone) because I had truly thought and hoped that things were starting to go in my favor. HOWEVER, I still have hope that perhaps my pacer still needs some adjustments and I'll be good to go. although I know I am dealing with Junctional Rhythm, I know there is an answer out there, I've just gotta find it. So, I haven't given up hope quite yet. I seem to have this endless supply of it....I don't know how or why, but I'm sure glad I do!!!!!!!!!

So, that is my latest drama. Never a dull moment with me. But I can tell you for sure that those 4 good days I had will never be forgotten. BOY oh boy, was it good to feel alive again and I know I'll get that feeling again. Perhaps I'll have to be put on beta blockers, perhaps I'll need a cardiac ablation, I don't know, I just know I won't give up.

I guess my message is: never give up hope. Yes, I am sad, disappointed and even a bit angry, but I'll still fight this fight to my very last breath.

Hugs to everyone, and thanks again for ALL of the support and good wishes I received especially this last week but also for the years before and what is to come. This supportive group is just awesome.

I know my postings are long, and for that I apologize :)

Happy Holidays to everyone,

Pookie


9 Comments

Ugh

by wenditt - 2009-12-20 10:12:17

Pookie,
Sorry to hear the "new you" was only for a short few days. But I am so glad to hear that they sent you home. They wouldn't have done that if it were anything crazy serious.

Glad to hear you have some fight left in you. You are an inspiration. Don't give up....someone will get to the bottom of it all....they just will.

Try to relax and enjoy the holidays. Rest and take it easy.

Keep me posted.

update?

by IronMan66 - 2009-12-20 11:12:36

Hey Pookie, be sure to update your status and let us know what the doc said tomorrow. . .

Hang in there. Sometimes the PM adjustments can take a while to get right. I hope that is the case for you.

Karen!

by tcrabtree85 - 2009-12-21 01:12:41

Karen,
It's funny when I can really say I understand those feelings you have b/c normally I am complaining to you about how I feel weird. I have junctional rhythm also. It takes time for the settings to get adjusted to fit you give it time stay positive.
I went in multiple times for that to the ER and there is nothing they can really do for you but wait to see your EP. I learned which may sound stupid but really has helped me when I go into those weird horrific chest feelings that you can't stand is to close your eyes and focus on the black that you see and just breathe slowly. Sounds weird but it has helped me out a lot.
I am praying for you that you continue to stay positive and that you can get in tomorrow to get some more adjustments done to that pacer of yours.

Love and Prayers lady,
Tammy

It may not be all bad

by ElectricFrank - 2009-12-21 02:12:47

If your heart was able to do that good for 4 days, then it likely doesn't have any serious damage. It's just a matter of finding the combination that works. It could be something as simple as a food allergy or all the excitement.

Your idea of overdoing it with all the skipping up and down stairs and stuff may also be a good one. The heart is a muscle and muscles complain when we over work them. Overworked muscles don't suddenly feel better just because we rest for a few hours. They are sore for several days.

Otherwise there is always the old saying: "They told me to cheer up, that things could be worse. So I cheered up and sure enough things got worse".

best,

frank

Great Comments!!

by donb - 2009-12-21 04:12:03

Things sure happen fast in our site, can't believe your ups and downs but at least you've got better medical support from your Drs'. You remind me so much of myself as to limiting my activities when I feel good. I also go, go, go and later lay low. Over the years going to Cardiac Rehab, even at my age I have been able to build on my energy and activity level. With the setback this past year I am now back to even a much higher level of workout by gradually building this last 6 months. This also was helped with medication change. Wife just reminded me about that as I'm typing, not working Cardiac today. Ya, I know how you feel when you finally feel good, but cool it!!! and hope that report today is good. DonB

OH DEAR

by pete - 2009-12-21 04:12:52

Hi. K, I did think you were probably pushing yourself too hard and your heart would react against it. You must now rest , wait until you feel better , hopefully and then take life easy. Just because you felt brilliant did not mean that you could just run around like a steam engine on heat. With LVNC your heart will always let you know when you have overdone it. Your heart was not up to it. All that extra running up and down stairs really strained it big time. Never forget that you have LVNC, keep telling yourself that.
I like to think that I am more or less normal but I suppose I have to accept I am not. One days really hard slog can knock me out for 3 days. So there. You have found your limits so be careful . I do feel sorry for you. I also think the new setting were a good thing for you.You need to rest rest rest right now.
Have a good Xmas K. Cheers Peter

Franks point is right on the mark

by walkerd - 2009-12-21 06:12:10

I cant believe we, I didnt tell you to take it a little slower, maybe just maybe you over did it to fast my friend. Keep the Faith, Keep the Faith, and take it a little slower, dont try to live 3 months in a couple of days. I sure hope it does get better like those 4 days. I pray for you my friend that those 4 days return for good.

dave

Disappointment

by Wannabe - 2009-12-21 08:12:14

Poor Pookie - what a disappointment for you after all the fun you'd had in the previous four days. However, I'm inclined to agree with the consensus of opinion here - i.e. you overdid it! The combination of physical activity and over-excitement probably gave your system such a shock, and the PM so much to think about, it all went pear-shaped. Do so hope you'll soon be feeling better and, despite all, manage to have a very Happy Christmas. All love, Sheila

Poole where r you no post since 2009

by Matt - 2014-11-10 06:11:35

Just joined and reading and noted so many are from 2009 why?

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