Hey everyone!! I'm a new member here and wanted some advice and thoughts on my situation. I've been to several different cardiologists over the years and don't seem to be getting anywhere. I'm too young to see an adult cardiologist and the doctors I'm seeing are waiting for me to grow out of it.
It all started when I was about 13 and I would frequently have dizzy/blackout spells. As I got older my symtoms continuously got worse. My mom is a RNC and became concerned one night when she listened to my heart and realized it was irregularly irregular. This lead to countless EKG's, an echo, a 24-hr holter moniter, two 30-day event monitors, 2 stress tests, and a tilt table test. Needless to say we haven't made any progress.
The EKG's all came back normal. And both monitors recorded 200 bpm during sleep on several occasions. During the stress tests, my heart rate reached 210 bpm and as soon as I stopped, my BP dropped 30 pts. Afterwards, it took my heart 15 minutes to recover. My tilt table came back negative, however the doctors still feel it is either NCS or POTS.
I'm currently taking midodrine and florinef, but they barely take the edge off. I was also on beta-blockers at one time, but that didn't seem to help. I used to be extremely athletic, but now i'm unable to do sports or even gym. The other day I attempted to run, but after 5 minutes, I was doubled over in chest pain and almost passed out. And after any activity, I'm exhausted for days.
Tomorrow I'm headed back to my cardiologist, and hoping for some answers. An ablation or a pacemaker is the last resort, but I'm wondering if it would help. Does anyone have a similar problem?