Sarcoidosis

After having my pacer di-fib implanted two years ago.. I still have spots in my lungs..new ones. They think it is this stuff, but cannot tell untill a biopisy is completed. They also thihnk it caused my heart issues in the first place. Anyone know anything about this stuff? It has affected my eyes and now my lungs..they think my heart. Permament damage to the heart. i have researched on the internet and found out medical issues, but want to know of anyone else who has delt with this. Thanks.

1 Comments

Yes I have it

by TexasAngel - 2009-02-14 10:02:01

And it settled in my heart which the reason I have a pacemaker. Have you used the search engine on this site to find others and learn more about it? I know there are a few that have it on here. Have they given you any meds to control the sarcoidosis yet? I took prednisone and still take methotrexate. I have permanent damage to the heart as well. My electrical system is permanently short circuited. :-) Fortunately it has not affected my eyes yet. But I do have it in my lungs, spleen, and heart.

I wish you the best!

TA

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