was told nothing

hi everyone well hubby had his pm about 8 weeks ago had a few little problems since ,well he had his first pm cheak yesterday ,and as this all new to us we asked a few questions and was told absolutly nothing ,and was just told you dont need to no that ,all you need to no is that its working fine ,i asked a few questions on how much work his pm is actuly doing ,she done a few adjustments we came out feeling like he had had somthing done but not told what .any one else hit a brick wall when asking questions at pacer cheaks ?

6 Comments

Welcome!

by GrandmaD - 2008-12-05 03:12:29

As with any medical condition, it is your (your husbands) body and you have the right to know what all the settings are, how much it is being used, and anything else in regards to the implant. I myself ask my EP, and book an appoitment with my GP for right after my interrogation so he can maybe clarify ( or dum-up) anything I am not sure of. In my case there is no cardiologist involved, but that would be the person to go to if he (she) is involved in your care. If you want to know something, make sure you get the answers and not a brush-off.
Good Luck and all the best to both of you.

My Take...

by chip - 2008-12-05 03:12:38

Before my EP or in some cases the nurse/tech leaves the room I would insist on understanding everything about my visit.

If you have any questions be politely insistent that they are answered to your satisfaction.

If the doctor is still evasive – I’d say it’s time for a change!

Hi,

by Gellia2 - 2008-12-05 04:12:08

Tell your doctor or techie that you know you don't "need" to know the answers to your questions, but that you WANT to know the answers! If they do not know that answer, to please go get someone that does.

Put it in your own words and let it become a mantra until you are satisfied that your question is answered.

Don't you just LOVE cop-outs?? You deserve to have each and every question answered, and in a respectful manner.
You pay for the service.

Good luck and please, persevere.
Gellia

Law in Unitted Kingdom

by ElectricFrank - 2008-12-05 06:12:43

I'm not familiar with the laws in your country. Here in the U.S. doctors are required by law to give you the information you requested. You might check into it.

frank

answers

by Tracey_E - 2008-12-05 09:12:24

I always make it clear when I see someone new that I want to understand what is going on with my body. They usually respect this and after a while they automatically tell me without me asking. If you cannot get answers, I would go up the chain of command at the drs office. If the tech won't answer, call back and get the nurse. If the nurse won't answer go to the office manager and explain that the tech and nurse are blowing you off. If that doesnt' work, I go to the dr last. If the entire office has a bad attitude, I would seriously consider changing doctors.

We don't need to know every little detail, but it's important that we understand enough to be able to explain our condition to someone else. Example... my condition (congenital complete block) is really common here at pacemaker club but most internists and even many cardiologists go an entire career without seeing more than one or two cases of it. Specialists, forget it!, it was a one day lecture in med school and they can barely tell you what it is.

always ask

by alice G - 2008-12-06 05:12:25

i had my pm in july i come from the uk and when i had things done i just assumed the doc knew what they were doing and went along with them . things went wrong and i began to wonder did they know what they were doing.. so i started to ask and like you i didnt get much luck . we dont have as much help here as in usa but we still have rights. so i started asking i cam e here and learnt more in one week than i had in three months of seeing a doc. i had more information so when the doc said you wont understand i could say yes i do actually. as it was said before start off polite and then get serious to them it is a every day thing to us it isnt its a life changing thing. they do these operations as a matter of course they have a certain number to do in a day and thats all they want to know. i had no counselling or advice they give you a small piece of paper with a few instrucitons on and that fits all cases well i soon found out it didnt sorry didnt mean to rant all iam saying is make them listen you dont have to get angry just be firm as let them know that you arent just going to be fobbed off with a smile. please let me know how you got on.

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Member Quotes

In fact after the final "tweaks" of my pacemaker programming at the one year check up it is working so well that I forget I have it.