Most Recent Messages in General Posting

Sub Pectoral Placed PM Issues

Hi everyone!

Im 32 years old (female) and had my first PM placed Dec 2017. I ended up getting the PM because I was bradycardic, ended up with low BP, and almost no SA node function constantly. I’m pacing about 20% of the time (in two weeks it paced 777 times). The cause seems to be idiopathic or genetic (I’m adopted so no way of knowing). I have a few questions and hope some of you can help me out. Thanks in advance!

1. My PM was placed sub pectoral - I...

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Heart rate following Biventricular pacemaker / ICD and AV node ablation.

I began my journey with the onset of severe AF on Christmas eve 2008. I was treated for an MI then had an angiogram confirming no blocked arteries.

The AF episodes continued, I was diagnosed with HOCM at London Heart Hospital in 2009, then had a septal myectomy and ablation in early 2010.

The AF continued so had a further ablation. With the AF still occuring, I had a biventricular pacemaker/ICD in late 2014 and then an AV node ablation.

Once all had settled down, i have had...

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Heart rate too high when walking

I had my pacemaker surgery last week for Sick Sinus Syndrome and Chronotropical Intolerance. I’m 44. I love to run, so I was interested to see what the rate would be when I went for a walk (I’m not allowed to run yet). I started out slowly and felt my heart beating rapidly. I checked the heart rate zones after the walk and the average was 145 with a maximum of 175. I wasn’t walking fast and didn’t get a sweat up. I usually get these results from a general run...

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pain

I have a tear in my bicep muscle which is extremal painful, have tried pills creams physio,. no joy, would it be safe to use a tens machine, i know it states  not to use with a pacemaker, just wondered if any peeps on here have used one  

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Atrial pacing is consistently increasing. Thoughts?

Hi all!

I suffered complete heart block back in 2014 and was fitted with a dual-lead pacemaker.  In 2017 I was diagnosed with cardiac sarcoidosis. First cardiac PET showed slight inflammation and fibrosis; follow-up PET six months later showed inflammation had resolved. (I've still got the heart block, of course.)  I'm basically asymptomatic and am not on any meds.

My PM interrogations over the past few years show that my atrial pacing is consistently i...

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I have cardiac sarcoidosis. Should my grown children get checked?

Hi all!

I suffered complete heart block in 2014 and received a dual-lead pacemaker, which I'm now 100% dependent on. Three years later I was diagnosed with cardiac sarcoidosis.  As some experts say, "the first presentation of cardiac sarcoidosis is often the last presentation" (i.e. sudden death), so I'm  wondering:  As sarcoidosis is believed to be partially genetic, should I get my 27-year old twins checked out for sarc?

Thanks! Your advice...

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Can an experienced Old Hat help me with some Answers

Stage 3 Block - Medtronic Dual Pacer installed in March 2017 - works very well, but i am also very lethargic most of the time, tend to get dizzy and have left side aches that feellike stitches (when you used to run at school) - i know most of this is probably normal, but do most people feel glitches from time to tome (no real pain) - and do people get dizzy. Im also concerned taht i am constantly out of breath - ive tried a treadmill but cant manage more than a couple of minutes heavy walking...

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Becoming a pilot...

Ok here goes. Long story short of it. I'm a 42 year old man who was in good shape and not over weight who at the age of 38 had to have a pacemaker put in. I ended up having undiagnosed sleep apnea which caused me to have 4 episodes of rapid Afib. Couldn't figure out why but  out of the total 4 episodes of Afib I ended up having 3 sleep seizures. No one in our family has epilepsy and any type of seizure disorder. Nor have I ever had any seizures prior to my age of 38. Anyhow...

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Implant Tomorrow

Hey y'all!  I'm getting a pacemaker tomorrow (1-11-18).  I'm feeling very anxious.  I'm not afraid, I'm just anxious.  How will it feel? How will it look? I'm a little uneasy about being awake during the procedure too.  My usually slow rate is racing in the 70's today!

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Cardiac repair

Hi,

I just received a dual chamber PM due to a 3rd degree blockage.  My plumbing was fine and nobody was able to explain why the blockage occurred. (Some people said it could have been sleep apnea???)

My question is this.  I am currently pacing st 99%.  Has anybody known a situation like this when the heart has corrected itself over time?  

Thanks,

Edgebull

 

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Looking to move more or eat better in 2018?

Want to join me on a Whole Life Challenge? 

It starts Jan 20 and goes for 6 weeks. You track different lifestyle habits- nutrition, activity, mobility, sleep, hydration. I've done it before and it's a great way to get back on track after derailing during the holidays. Most lose weight but that isn't the primary goal.

I started a team called Turbo Charged, would love for some of you to join me! http://www.whole.lc/wlc1801/t/turbo-charged/join

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Hello All. I just joined after my 2nd device was put in

My first pacemaker was intalled in Jan. 2012 because of Bradycardia and blackouts. My heart was ticking away with so much smooth rythme I was just amazed. I still could not do anything because everytime I pissed off my Vagus nerve my whole body would become sort of fuzzy. No way I was going to pass out again or lose my rythem but fuzzy was the feeling when that Vagus nerve was aggatated. 

I just had my second pacemaker put in Dec. 28th. 2017. Yeah, 11 days ago. On Dec. 24th my...

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PM Extraction and ICD Insertion

Hi. Firstly, Happy New Year to you all.

Secondly, it has been a number of years since I have posted on here. I had my pacemaker put in in 2011, after ablations for arrythmias. I have been doing great. Got a full time job again, my children have grown up into fine adults....life has been great. UNTIL.....

In 2012 I started having episodes of ventricular tachycardia (VT). My previous arrythmias were all atrial prior to that. Over the years I have had occasonal episodes of VT, only l...

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His bundle pacing may prevent need for CRT

Happy New Year everyone!

I just thought I'd find out whether anyone has heard about a new pacing technique which is attracting alot of attention amongst leading EPs.It's called His bundle pacing because the right ventricular lead is placed in  the Bundle of His, which is part of the heart's conducting system lying just below the AV node. The advantage is that this produces a much more synchronised contraction of the ventricles compared to standard pacing....

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Life expectancy with a pacemaker due to congenital 3rd-degree AV block

Hello,

My girl was born in April 2017 with a congenital 3rd-degree AV block. She has a pacemaker since her birth.

I would like to know the life expectancy in this case ? It worries me a lot even if the Doctors told us that the life expectancy is the same for "normal" people.

Sorry for my english if it's full of mistakes but I am frenc mother tongue (we live in France).

Best regards.

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pacemaker and continuous glucose monitoring

I am thinking of buying a Freestyle Libre continuous blood glucose monitoring kit as I am an insulin dependent diabetic.

Does anyone know if these devices are incompatible with my pacemaker?

The readers are, I believe, similiar to a mobile phone.

I have been unable to find any relevant info on the internet.

 

Thanks

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Still have some scary/puzzling symptoms: angina, shortness of breath

Hi -- thanks for reading! I tried to be thorough, but not waste your time.

I'm about to mark one year post-pm dual lead implant for Bradycardia. Heart rate at 20-30 bpm with diagnosis of SSS, was what prompted the pm implantation. When implant done, surgeon did nick my lung, causing a pneumothorax. I understand while they get better, there are always a few, small bubbles left in such a situation (general physician mentioned that to me after this incident).

As preamble, I'l...

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Chronotropic incompetence

Hi, I'm a 32 yo female. I have been diagnosed with chronotropic incompetence, with no background heart disease. I think I have had it all my life - have never had good exercise tolerance despite trying, and have always had very low BP and postural symptoms. Since having my baby 18months ago my symptoms of decreased exercise tolerance and postural hypotension have worsened dramatically. I am having a device implanted in 2 weeks (unsure of device details, biotronic I think?). Just wond...

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So happy I found this Club

I’m Melissa and I’ve had a PM since I was 6 months old. I’m 32 now and still trying to live as normally as I could. I didn’t know about sites like this one until today and I am so glad I stumbled upon it. 😄

 

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Pulse 61-63

My mom says her pacemaker is set at 70 and her pulse is usually 68-70. The last 2 days it has dropped to 61-63. I looked at her literature but couldn't find any settings listed but through reading here I noticed there is a high and low setting. Could it be that her high setting is 70 and her low is 60 and this is normal?

Her blood pressure has been 160-170 / 80-90 the last 2 days which is high for her. Could that lower her pulse?

We live in the Philippines and Medtro...

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