Most Recent Messages in General Posting

Depressed

As i posted earlier i'm 22 years old and getting a dual chamber  pacemaker for complete Heart block... I'm so depressed 

I'm losing interest in everything...continuously thinking about surgeries and leads ( how replacement of leads is life threatening its like living with the fear of dying) .. I'm trying to be positive by reading the success stories but still in depression..

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Newbe

I'm new to a PM, still can't believe I've really got one!  I had afib and decided to not have an ablation, as I didn't feel anything.  I thought"no problem".  Then I needed a hernia repair and the surgeon wanted a cardio release.  Cardio did a test and didn't like it so recommended a PM.  Got it done and now most everything is way better.  My sleep is the best in a long time.  I don't see the dr for 6 months, so how do...

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Medical alert jewellery beneficial?

There was discussion (I think) here recently about medical alert jewellery and efficacy. Unfortunately, I had the chance to test mine yesterday. I was at a restaurant with my wife and 4yo granddaughter. After the meal, just before leaving, I had what the think (still doing tests), a seizure. I remember my wife telling for the manager to call 911 and the next thing the ambulance was pulling into the hospital. One of the EMTs mentioned that my medical alert tag was extremely helpful. It gave th...

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dance music

Tonite for the first time since implant of PM the end of Aug., attended a dance.  Had to leave as i could hear and feel the thumping of the base in my chest.  Is this  normal ?

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Parylene coated pacemaker

My wife needs to have a pacemaker installed. She is very allergic to titanium. Where can her cardiologist get a parylene coated pacemaker?

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UpToDate? Information my cardiologists didn’t have.

I am a young physician wirth an uncommon, asymptomatic, congenital heart condition. My recent experiences as a patient have inspired me to document my journey. By sharing my writing, I hope to raise awareness about my condition and potentially help other patients or medical practitioners.

My first entry has been published by KevinMD: https://www.kevinmd.com/blog/2019/08/uptodate-information-my-cardiologists-didnt-have.html

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Housekeeping

Looks like we've had a rash of spammers again. I deleted a spam post and a couple dozen spam comments. If I missed any, please message me or post a link here.

 

Tracey, Moderator

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Working out again, shortness of breath, chest and pain down left arm

I'm 37 and a year ago I was in the routine of working out in the morning. One evening I passed out and my heart stopped. It didn't stop long and restarted on its own. From there I had the typical tests and the tilt table test confirmed I have Vasovagal Syncope. I was put on meds but they didn't help so I needed a pacemaker in April of 2019. I was told at my last appointment with the doctor I have cardiomyopathy. Instead of the pacemaker working 20% of the...

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New pacemaker

I see a lot of varied posts on Pacemaker, and subsequent SOB. I went into hospital with SOB, and never had a heart issue. They said I had AFIB, thinking for almost a month. Had gone to my Primary Care Dr. And was sent via ambulance to the hospital. HB 160-135.  Did lots of tests, then a Cardioversion, and an Ablation, then a Pacemaker. All strange to me. In hospital for 8 days, now on 3 meds. Came home,  and for few days home felt good, until SOB again. I cannot walk more...

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Travel insurance

Hi had my pacemaker fitted on April this year,Now I am looking to go on holiday abroad but I am having silly quotes for travel insurance,any help please 

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PM site pain/uncomfortableness

Hi just wondering how long it takes to get used to the Pacemaker under your skin?  I got mine 8/22/19 and still feel like a burning, soar sensation.  Also how long before I can lay on my stomach comfortably?  Can anyone relate?

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A-Fib and Pacemaker

I got Assurity 2272 implanted on August 1, 2019.

Whenever I check my pulse it is regular all the time. My doctor says I been in A Fib all the time.

Can I have Afib or Aflutter as my heart has been  beating regularly.

Thank you in advance.

Raghbir

 

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Can anybody explain this to me

Last week I felt like my heart did something I don't know what then my Pacer area started to heat up a little bit for a couple seconds kind of like my Pacer did something. Has anybody experienced this before and should I inform my ep. I just saw her last month and she gave my heart more time to think on it's own because of intermittence. First time feeling that sensation.

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Insomnia

Hello,

I´m 43 years old and have had my pacemaker for 4 months.

After pacemaker implant been suffering from insomnia (sleeping 3 to 5 hours a night and waking up during those few hours).

Before pacemaker my rest rate would be 20-30 bpm. Pacemaker is set to 50 bpm.

Contacted my Doctor but she says it´s not related.

Anyone struggling with insomnia after pacemaker?

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Safari on iphone not showing latest posts

When I go to recent posts on Safari on my iphone, it keeps referring back to 10/2/19.. I have reinstalled the site, but that does not resolve the issue..   Anyone else having this issue?? If so,  anyone have a resolutuion.. the site works fine on my laptop and Google Chrome.  Thanks for any resolution.

                                              R...

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wheelchair bound

I had a fall 4 weeks ago and broke a bone in each foot, as you can imagine it has been extremely difficult.  I have become reliant on my friends wheelchair but am now having alot of pain on my pacemaker side and wondered if this was just muscle.  I am worried I may be moving the wires with the continual repeated movement of my arms.  Hopefully the plaster will come off this week and I will be able to stand again and stop using wheelchair. 

Has anyone else had this pr...

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Pain

I have had my PM for 6 months, and recently I have noticed a dull small pain that last for a few seconds in the heart? It is random and mild pain, but enough to make me curious. It is about a 3/10 pain level. Is this normal?

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Frequency specific micro current therapy

Can someone with a pacemaker use "Frequency Specific Mico current  (FSM)" therapy as long as they avoid placing it over the chest/left arm?

Am interested in it for low back and feet pain

Thanks

 

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Abnormal heartbeat

Hey guys, 26 been dealing with heart issues, rundown real fast,born with tof got valve replaced in Jan 2019 then in March...had to have pacemaker for slow-fast heart rate... past two months.... we still trying to figure out what's happening....long story short in June is when I first noticed my heart rate was beating to fast over little things....walking to long.....working out.....sex....getting nervous.....it would be fast then slow down from 130s then drops to 60-70 beats for a while t...

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Scared PM is scheduled for 10/24

PM is scheduled for 10/24 as well as loop recorder removal and I am so nervous about it. Scared how it will change my life and put limitations on my life. I am 43 and was told my bradycardia has gotten to the point I need a PM. My heartbeat just randomly drops and I get lightheaded with shortness of breath. Heart issues have taken my brother, sister and most recently my mother. I have been very proactive with my heart health but coming to the realization that this is happening has me que...

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You know you're wired when...

You can feel your fingers and toes again.

Member Quotes

I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.