Most Recent Messages in General Posting

One week post op!

Hi Everyone,

My name is Megan and as of last week I am the proud new owner of a pacemaker. I don't know if proud is the right word actually with all of the anxiety and unknown feelings that have seemed to come up. I was rushed to the Emergency room on January 3rd by ambulance with a heart rate of 25, after figuring out that I was in a 3rd degree heart block that lasted approximately 48 minutes I was told I'd be receiving a pacemaker. Now for a little backstory! In September 2014...

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Backpacks!

Hi guys! I'm a college student, recently I got a pacemaker (Dec 30,2016)  it sits a few inches under my left collar bone. As I went back to classes this week I found it slightly painful to wear my left backpack strap, my backpack is generally heavy with my work load. Should I not worry about it for now until I heal up more or is it typically unconftable to wear a backpack with a pacemaker?

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Merlin@Home Security Flaw

Does anybody know details on the potential security flaw that's been identified in the Merlin@Home?

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Weight gain

Does anyone feel like they need an adjustment when they gain weight? I gained 10 pounds in 6 months and I feel terrible. I'm working on losing it but I'd like to know if weight gain/loss plays a roll in pm function. I've had my pacemaker 2 years, I'm 34 years old and I have two kids to keep up with.

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Has anyone gone to the Aiguille du Midi or on the Jungfrau railway?

Hi everyone,

     I'd love to go to the Aiguille du Midi or ride the Jungfrau train, but the Aiguille du Midi says, "No pacemakers."  Taking the Jungfraubahn brings me to an altitude almost as great.  I'll be talking to my cardiologist about this, but I was wondering if anyone has been in altitudes of 11,000 feet or greater.  Please know that I'm not talking about in an airplane.  This means being out in the good ol...

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Pacemaker and defibulator

I have had my pacemaker about 3 years now and recently I have begun to have pain as I try to sleep on my left side It feels like the pacemaker has moved or is pressing on something. I cannot sleep on my right side where as I have a catheter in the right side This allows the medication to flow directly to my heart. Don't know if there are devises that may help the pain to sleep

 

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Walt Disney World Trip

Hi, just a quick question.

I have a pacemaker/defibrillator and am going to Disney World in Florida this June and was wondering if there were any rides at any of the theme parks (Magic Kingdom, Epcot, Hollywood Studios, Animal Kingdom) that I needed to be worried about or shouldn't ride. 

When I go to Disneyland I ride everything except for Space Mountain because I'm not too sure if that is ok for me as well. 

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BPM goes lower than setting

Hi I recently got a Fitbit for Christmas and have noticed that my BPM normally sits at 59 when my minimum is supposed to be set at 60bpm, it's also been as low as 57bpm a few times is this normal?Many thank's Christian 

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high level, 83 year old politician get pace maker

..http://www.latimes.com/politics/essential/la-pol-ca-essential-politics-updates-sen-feinstein-recovering-at-home-after-1484150069-htmlstory.html

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New Pacemaker

Hi all

Totally new to this site and found it by chance (I'm glad I have, as its answered alot of questions that I had).

I had my pacemaker fitted August 2016, after having some strange passing out sessions earlier in the year - it was if someone just turned the power off on me. They werent very frequent, over a 6 month period i had 4 inceidents (the first 2 i put down to over woking, not enough sleep etc etc)

After visting the DR they found i had left bundle branch block...

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What features would you like in a future pacemaker?

I've had a dual lead pacemaker for a little over 2 years now, and don't think I've had any issues with it at all.  A friend of mine who is profoundly deaf has a cochlear implant to enable him to hear, and has a remote control to adjust things like volume and several other settings.  It made me wonder if it would be any benefit to have our own remote control for pacemakers.  I am aware that there are a number of settings that technicians can change, such as rate per...

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Can other illnesses affect PM timing?

Got myself infected with an upper respiratory thingy.  No fever, but lots of nose blowing, and feeling "beat up."  Most obnoxious part is the formation of a cold sore on my lower lip (OUCH!).  Obviously a Herpes Simplex attack.  I have a 20 day supply of acyclovir on hand which I began using at the first sign of the lip thing forming. Can an incident like mine affect the function of my PM?

-Dave-

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Dont understand this

Hi, I just came from my first pacemaker check. The tech said I was pacing at 48% She said that was good. It was in the Atrium. None in the Ventricles. Well, she caused my heart to skip when she did the check. She told me she did that! Yippee, did not feel good. My question is, is 48% good or bad or what. I read that the more your heart is paced, the weaker the ejection fraction becomes ( yes I read that on the internet) I don't see the Dr. till next month. She said my leads were in the ri...

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Sleep

I have been waking up early starts about 4am lately, not in pain, but then wake-up about every hour till it is my regular wake up time. Been doing  this since pacemaker. Is this because my heart is beating faster at night. Most hearts go down into low 50's at night. Mine is not allowed. Not liking this waking Starting to be concerned.. Thank you very much in advance.ileen

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Viagra

I had total AV heart block in 2011, but as far as I know other than that my heart is healthy with all my blood vessels in good condition etc.

My testosteoron levels are very low and do not want to have injection to boost it for the fear of incresing the risk of protrate cancer .

Can I as an elderly man of 76 use viagra with  a heart pace maker installed I am a bit beyond a real interest in sexual activity and have a very low libedo?

Regards Alan

Comments...

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FDA issues new security guidelines so that your pacemaker won’t get hacked

I'm not trying to scare everyone, but as a gaget guy I found this article to be rather interesting.  As more communications is added to medical devices, manufacturers have contend with possible hacking.    The article can be read at:

https://techcrunch.com/2016/12/28/fda-issues-new-security-guidelines-so-that-your-pacemaker-wont-get-hacked/

 

 

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Personal message has been answered!

I have had a reply about my personal message! All you people who were just dying to know what it was... well, let your imaginations fly! Thank you so much, Ileen

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Personal question, really personal

I would like to ask a question  of one of the younger members here. Could someone PM me that does not mind a " fifty shades of gray" question. I am to embarrassed to post it on the general site. And, if that person will swear not to post the answer , to everyone!!please! I just can't ask my Doctor. Thank you in advance. Ileen

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Tens Units

Getting active again.  Pain in back starting up again... talked to Doc about TENS unit and he said I could do it... found this article: https://www.researchgate.net/publication/19897259_Can_Transcutaneous_Electrical_Nerve_Stimulation_Be_Safely_Used_in_Patients_With_Permanent_Cardiac_Pacemakers

Anyone with an active lifestyle here use a TENS and could you comment your experience?

Thanks!

 

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Doctor recommendations in London UK

Hello, just wonderig if there are any London-based members here who might be able to recommend a doctor/clinic to me? 

I've recently moved to the UK from the USA and I am very overdue for a pacemaker checkup and genearl heart checkup! I do have some private bridging cover to allow me to see a dr privately initually before I can see one in the NHS system. Any thoughts on Harley st vs London Bridge?.... and further down the line, are there any NHS hospitals that are particuarly g...

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You know you're wired when...

You can shop longer than the Energizer Bunny.

Member Quotes

In fact after the final "tweaks" of my pacemaker programming at the one year check up it is working so well that I forget I have it.