Most Recent Messages in General Posting

Post Message!

Hi Pals

Hi everyone. Especially all those who are new and a little confused and uptight. I often wonder what we would do without this wonderful site and all the good answers we get to our questions. I wish to thank you all, especially Smitty and Electric Frank whom I find a great comfort.

It has been so hot here. Not as hot as where Kay is. We have been gardening. I am putting all my pot plants into the garden for nature to look after them during the winter rains. My family are not gr...

Read More...

Why do some Doc's keep you awake?

I'm just wondering why some doctors seem to keep their patients concious.

When I went in for my initial EP study and ICD implantation, I Was out cold, which is what I prefer. I'm going in for an ablation in a week and a half and I need to let my new Doc know that expect to be out cold.

I know that general anesthesia is more dangerous than milder drugs, but I'm not interested in being aware of someone tugging, slicing, or exciting a 300+ bpm vtach in me.......

Read More...

Peter Nash

Just noticed that we havent heard from Peter Nash for some time.I do hope he is OK...If you read this Peter just let us know you are still with us.
Kay

Read More...

Chat

Anyone wanna chat?

Read More...

Just a suggestion

I love this site and have found much help and information here. What is missing are just a few little things. These things would help us all to enjoy the site much more in my humble opinion.

1. New messages -- I am always checking and no one ever sends me a personal message. You don't have to be a close personal friend to send a message. I don't need a boyfriend, a husband, anything from you except being a PM buddy. That is all.

2. Chat -- I go in there all the t...

Read More...

pacing

Will someone please explain the feeling when you say you know your pm is "pacing"... Does it mean aware of heart beat or the feeling of afib? I would really like to know. Thank you aldeer

Read More...

Chat room

Okay, where are all the people who want to chat?

Read More...

This is for Rick (Hotform)

Thanks for you comment. But considering I do not have a Medtronic POS Pacer your statement does not apply to me. I have heard from my pacer rep that I should stay away from the alternator of a car because it can interfere with my pacemaker. So yes I had the guy at the parts store who was more then happy to take my New alternator out to my car. Now i'm sorry that I was unaware that the alternator had to be hooked up to actually interfere. But since I am not willing to mess up my nice brand new $6...

Read More...

Hacker and our pacers

I have studied the recent research article on pacemaker hacking and done some of my own. To start with the following article on frequency use in the world shows that there are radio stations in Europe of1 million watts or more on the frequency band mentioned in the hacking article.

(155 to 281 kHz: This is another AM broadcasting band in Europe and parts of Asia. In Europe, there are numerous high powered (1,000,000 watts or more) stations here. These stations are capable of coverin...

Read More...

Pulling Leads Loose

Does anyone know how common it is for someone to pull leads out of place after surgery by doing too much with the arm too fast? Has it happened to anyone here?
I'm just scared to death I"m gonna do that, and wondered if I did , would you even know if you weren't PM dependent?
Christina

Read More...

Hackering IMD's! What???

Have anybody heard this on the news or read about it on the web anywhere? It's horrible and scarey!!! But I think it is worth sharing... Here are some of the sites on the computer that are carrying the news: secure-medicine.org/icd-study/icd-study.pdf, schneier.com/blog/archives/2008/03/hacking_medical_1.html, nytimes.com/2008/03/12/business/12heart-web.html?_r=3&oref=slogin
Just a little bit spooked at the moment...

pacie

Read More...

Not necessarily a death wish

I've noticed that every time someone says anything about wanting a pm/icd removed or wishing they'd never got one, people seem to think that's the same as saying they don't want to live. People have varying degrees of needing or not needing their devices. Some of us never had a serious life threatening emergency, just indications of that being a possibility. Kind of like everytime you drive a car, you risk having an accident. I know people who had a car accident, and never drove again becaus...

Read More...

Hello!!!

Hey guys, I know you are tired of hearing from me, but I think this place seems desserted any more. Hardly anyone posts comments, although you may prefer to email an answer instead. A LOT of people have left, and I don't understand why. They say there are problems with others, but I have resolved all my issues. On a more positive side, I am thinking of publishing a book of qoutes, so if you know any please let me know! Bye! Remember, "It's not what you look at that matters, it's what you see." -...

Read More...

Query

Is an ICD the same as a pacemaker? Sorry to be so ignorant but only had mine since January, a pacemaker that is.

By the way, don't want to speak too soon but since they altered all my settings I have been feeling better. Still tired but I think at last I am on the way up.

Thanks for all help given when I have been whining on the site - all your responses were helpful and I still log on daily just to have a read.

Take care everyone

Love Jules

Read More...

Patient restrictions

I am a retired 70 year old active male (I play tennis year round)
who on February 21, 2008 passed-out while walking from my car to a restaurant. This is the first time this has happened.
On the second day of my hospitalization a defibrillator was implanted into my chest after the completion of a number of tests. It has been 3 weeks and recovery is going well except for some swelling which the cardiologist is not concerned about.
I would like to hear from other implant patients wha...

Read More...

Time for a Update!

Hi my friends!
I am still in Chicago for a couple more days before returning home. I have enjoyed my trip besides the hospital stay from hell.
My heart is still a little out of sync though on the 19th I will figure out what is going on exactly.My doctors gave me help and advice over the phone to prevent myself from not landing myself back in the hospital here.
I have had some problems lately and I believe some of you have heard me talk about this before. As the weeks hav...

Read More...

Thanks

Thanks for all of your input, to set things straight it's not a joke nor am I in need of a pshrink,and I don't have a death wish. I do have issues with implanting foreign objects the human body be it mine or yours..it's not right. now we went back and forth about this and in the end it came down to being tired and beaten so I gave in. A fact that I am not proud of but there you have it. As for considering the consequences I have weighed everything time and time again and my answer is always the...

Read More...

Chat

Going to the chat room to see if anyone will join me.

Read More...

I want my icd removed

I am the recent recipient of and icd that I fought tooth and nail against. My Doctors overrode my objections with their sanctimonious arguments about how they know what is best for me and implanted the damn thing anyway. Should I have one? Most definately my EF is less than 35%. This is not, however,about treating my "condition",this about respecting the wishes of the patient. What can I do, who can I see or talk to? I completely understand the risk of sudden death due to ventricular tachycardia...

Read More...

support needed

can anyone tell me if lying on the side of your pm can cause damage / i cant lie on my right side as my pm(implanted on the left) flips over but by lying on my right i always wake up inpain i think im squashing the pm.also ive developed a feeling of pressure in both sides of my neck tight chest heaviness and fast heart beat especially on standin/minimal exercise and after eating ive tried beta blockers that ease symptoms slightly but make me feel ill with asthma like symptoms so ive stopped the...

Read More...

You know you're wired when...

You’re a battery-operated lover.

Member Quotes

Your heart’s electrical system has a manmade helper. A helper that only knows to do what it is programmed to do and will perform that function day in and day out, without fail. Now, go enjoy your new grip on life.