Most Recent Messages in Success Stories
Hallelujah!
- by Tex61
- 2024-09-07 07:55:16
- Success Stories
- 234 views
- 7 comments
posted this to some friends...
So had a major tweak on my pacer last week or so ago.
Upper HR had been set to 140
When I would hit that upper limit, the device auto drops my HR to around 80.
Imagine going along on a ride or a weight workout and all in a sudden you body starts pumping out half the blood it was
Yeah it’s that dramatic.
So we talked at the doc about what I do etc.
220...
I am Blessed
- by Kenny A
- 2024-08-13 19:32:49
- Success Stories
- 224 views
- 4 comments
I had a pacemaker implanted in June of 2008
I have had no issues infact I know it saved my life
I was lucky enough to have a great surgeon and everything went well when they replaced the battery
My current cardiologist is amazing it makes life so much easier when your surrounded by competent medical people
I never even think about it
3 Years Pacing and All is Well
- by Mad Hatter
- 2024-08-07 11:51:41
- Success Stories
- 231 views
- 9 comments
It's been a while since I've even been on the forum which says a lot about how little the PM has affected my life the past couple of years. Had some initial difficulties with rate response on my Biotronic Edora. It was eventually turned off and I have had no issues since. I forget that I even have the PM. Just wanted to thank everyone here for the good advice in year 1 and encourage others to keep advocating for yourselves. This forum is a great resource!...
Beyond the Moon!
- by Andiek11
- 2024-08-04 20:33:23
- Success Stories
- 292 views
- 6 comments
After a long discussion with my Cardiologit at my 12 week check-up, we agreed to get a follow-up Echo this month to see if any progress was being made towards an improved EF and to check my lipids to see how they responded now that I've been off the Beta Blocker for about 10 weeks. Quick recap, I ended up with a Conduction System Pacing set-up on May 1 in that the original plan for a bi-ventricular PM was derailed during the procedure when they discovered a Persistant Left-side...
Late 2013: Diagnosed with Dilated Cardiomyopathy
- by nonischemic
- 2024-07-29 17:52:19
- Success Stories
- 214 views
- 3 comments
November 2013 I was diagnosed with Dilated Cardiomyopathy. This didn't look good, as my heart was severely weakened . I had severe shortness of breath, and congestive heart failure. My heart's EF was only 15% at the time. An angiogram showed no obstructions. The left ventricle was dilated and the mitral valve was re-regurgitating. I spent 3 days in the hospital under observation. Given Lisinopril and Carvedilol even though my blood pressure was normal.
Mo...
Update on thread dated 2009-05-18 (!)
- by Gemita
- 2024-06-24 06:49:40
- Success Stories
- 245 views
- 0 comments
I am re-posting a new comment left by member “tuck3lin” yesterday on his old post from 2009, ref: BY TUCK3LIN 2009-05-18 01:05:58 EXERCISE & SPORTS 1532 VIEWS 5 COMMENTS
It is good to hear from you tuck3lin. Congratulations on the arrival of your first grandchild. Glad you are doing so well. Gemita
by tuck3lin - 2024-06-23 21:38:32
It's 15 years later, and I thought I would loo...
Sinus pauses=pacemaker choice
- by Fabmom55
- 2024-06-19 18:47:11
- Success Stories
- 391 views
- 6 comments
Hi,
I am 55 and haveng a paceaker 7/10. I am wondering if anyone is/was in a smilar situation?
I was diagnosed with Bradycardia 4 years ago-no symptoms. Wearing a monitor noticed sinus pauses of 3 seconds, not sytmptoms. Has continued for a few years, then pauses recently went to 5 seconds, and have a loop recoarder. All puases in day-and I have no symptoms. Recent puase was 3 seconds, 2 beat, then 5 seconds. still did not notice. Since times are gradually increasing m...
30 years paced
- by Tracey_E
- 2024-05-10 09:51:46
- Success Stories
- 587 views
- 21 comments
Today marks 30 years since I got my first pacer! I live a full, active life and don't plan on slowing down any time soon. There have been a few challenges and bumps in the road, but overall it's been nothing but a blessing. Technology is so amazing.
PM
- by jsb
- 2024-02-25 11:54:06
- Success Stories
- 805 views
- 3 comments
I went on a birding trip to Thailand Jan 5th this year. During the third week of our trip I had trouble walking up hills, steps, giddiness and breathlessness. Then on one particular day I couldn't even walk up 4 steps. Our friends, who were Thai, took us to a hospital where I was diagnosed with Bradycardia, pneumonia and a stomach infection. My heart rate was under 38 and down to 20 at one stage. BP extremely low and also dropped lower at one s...
One year update
- by Poppa1313
- 2024-02-17 14:52:36
- Success Stories
- 505 views
- 2 comments
Assuming you can read my earlier messages, you'll know I was implanted a year ago in March, and had my AV node ablated in June. All this the result of a long term paroxysmal afib condition which had decided to no longer spontaneously self correct within a 30 hour period. This required 6 cardioversions in a 9 month period.
Since June of '23 post AV node ablation, the world has looked VERY much better. Complete stability of my heart rate and as promised, whi...
Persistence pays
- by BradyJohn
- 2024-01-20 22:30:18
- Success Stories
- 516 views
- 3 comments
Hi all,
I received a dual lead PM almost 4 years ago. It has taken until just a few months ago to get the settings just right for me. I was blessed to have a technician team that takes genuine interest in her patients and their health. Shout out to Rebecca and Erin if you're on here 🙌. I'm also benefiting from remote monitoring (thanks again Rebecca). My recent phone check up revealed that my 'numbers are 1000% better than befo...
8 months after implant
- by goodu
- 2023-12-30 14:08:41
- Success Stories
- 619 views
- 3 comments
I'm a 62 year old male, I'm 8 months in since my implant . I was asymptamatic when I received my implant. I feel the same as I did before I got my dual chambered device. No issues what so ever. I am a welder and still welding with no issues. I did speak with a tech from Boston Scientific 1st before returning to welding. I have returned to doing cardio , somtimes getting my rate up to 160 .I was told to go ahead by my cardiologist. If anyone has any questions pl...
Pulse Oximeter Update
- by ANDREW75
- 2023-12-23 15:10:34
- Success Stories
- 781 views
- 8 comments
I have previously mentioned my low pulse readings from my Finger Oximeter. The explanation was the PVC’s were giving false readings for my pulse. I was advised not to use this device, fair enough. My EP and his Tech both proved my pacemaker was working properly with the minimum setting of 60 bpm.
At my last visit I was given a prescription for Flecainide to calm down the PVC’s, this works by blocking Sodium Channels and slowing down the electricity. I have been o...
quarterly transmission
- by new to pace....
- 2023-12-20 16:32:13
- Success Stories
- 564 views
- 6 comments
My quartely transmission was on Dec 19,2023. Here is the summary. There were 229 atrial high rate episodes detected. Most were at rest only 6 while active and on Nov 25, which was day i cooked for 5 of us. The longest lasted 0:00:54:52 in duration. There was a 1.8% cumulative atrial arrtyhthia burden which was much less the last quarter of 11%. Review of EGMS shows AT/AF. 1 ventricular high rate episode detected. Review of EGM show nsVT13 b...
How many of us are happy with our PMs?
- by Repero
- 2023-12-09 12:18:11
- Success Stories
- 853 views
- 15 comments
I was just wondering what percentage of PM recipients might be more or less happy with the way their particular device performs?
This Club is a massively helpful hub for us all, especially those with tricky heart problems and those with issues with their PMs. The level of knowledgeable technical and emotional support on offer is superb.
One understandable consequence of this is that postings tend to be dominated by those with serious questions to ask about their own health, or the...
Long off the club but…..I’m Back!
- by PJinSC
- 2023-11-13 21:21:01
- Success Stories
- 696 views
- 3 comments
Hey, y'all! I am back after long hiatus from the club. Not many will remember me but that's what happens.
Had first pacemaker installed 2013. All was well for many years but the pacemaker was getting low on juice, a bit early since I am 100% paced, so got a new generator installed March 2021 rated for 13 years this go round!
In the the meantime, started having chest pains, thought it was reflux, but endoscope said no. Had already planned it with cardiology...
New to club
- by ANDREW75
- 2023-11-08 15:45:07
- Success Stories
- 586 views
- 2 comments
Hi, I have recovered well from the surgery implant five weeks ago and swam 50 laps this morning. I am so pleased and privileged to have my device, I live in USA and am on Medicare, so this is at very little cost to me.
I am 75-year-old Mechanical Engineer, who has windsurfed for 22 years. I have had two years of gradual reduced energy and strength. For my age I am considered very fit, I eat well don’t smoke or drink and exercise regularly, I weigh 160lbs. For the last two ye...
Life post pacemaker
- by Deltoid
- 2023-10-18 19:36:21
- Success Stories
- 808 views
- 3 comments
Hi everyone, I'm new to the forum and I've had my pacemaker since March 2023. I'm 34 and adjusting to life with a PM and more surgeries to replace the battery going forward.
I jwant to share my story. I was quite fit in my 20's but I always felt like I had something wrong with my heart. There were times when I couldn't control my heart rate with breathing and at other times I had strange feelings and 'auras' where I felt unwell, like a general feeling of doom...
Success Stories? CRT, Biventricular Pacing, LBB Pacing
- by DoingMyBest
- 2023-10-12 11:50:02
- Success Stories
- 970 views
- 8 comments
Hi friends. I'd like to hear from some of you that have lived with CRT pacers for significant time and have good outcomes to report. I've heard plenty about the poor symptoms people have to begin with, but where are the success stories? Did your symptoms resolve? Did you have subsequent echocardiograms that showed beautiful, wonderfully remodeled hearts? Are CRT devices ever turned off after a heart recovers, or are the imbalanced conduction issues always permanent?
More to my o...
PM & Ablation
- by palpations
- 2023-09-24 17:07:45
- Success Stories
- 652 views
- 8 comments
I have a two lead pacemaker and am getting an ablation for palpations. Does anyone know if this will stop my palpations and how successful is it in stopping the afib?
You know you're wired when...
Your life has spark.
Member Quotes
I finished 29th in London in 2 hours 20 minutes 30 seconds which is my fastest with or without a device so clearly it didnÂ’t slow me down ! I had no problems apart from some slight chaffing on my scar - more Vaseline next time.