Most Recent Messages in ICDs

99% paced

What does it mean when they say I'm 99% paced?

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ICD

In August of 2016 I had an emergency pacemaker implant.  All was fine and I was back to myself very quickly.  In January of 2018, my pacemaker was removed and replaced with an ICD because of ventricular tachycardia.  The recover was not so easy.  I had major swelling at the sight.  Now the swelling is all down, but the site is painful.  Also, You can see the device and what looks like leads.  I’m not so concerned about the look of the site, but the con...

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ICD extreme tenderness & pain

I am 45 years old. I have had Hypertrophic Cardiomyopathy since birth but, was not diagnosed until I was 13 yrs old.  Been on meds since then. I got an ICD on Jan 23, 2018 & am experiencing  EXTREME tenderness, pain in area & below of ICD. Can not barely touch it without pain & I get tingling & pain there. It is extremely bulged out.  Is this normal to be hurting there still after 4 months??  I am so sick & tired of it. I a...

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iCD in power plant

New to the forum, first post.  After having an ablation done for a fib a few years ago, two weeks ago I suffered a ventricular tachycardia and had an icd implanted. I am an engineer in a power facility with two 4000 KW steam turbine generators as well as transformers, electrical breakers, diesel generators, etc. I am having trouble finding out if it’s safe for me to go back to work or if I have to retire two years early. If anyone has any input regarding th...

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ICD Fired this morning 4:10 AM

Implanted Feb 28, 2018. I was told most people live a complete life with it never going off.

I called 911 and was taken to the local hopital, xray blood tests and sent home with. Well it did exacly what it was supposed to do and good luck, these things go off all the time.

I will call my GP and cardiologist on monday, but now I'm worried that things are just going to go downhill from here. When will if fire next, what can I expect? How can I go to sleep tonight?

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1st day of cardiac rehab

My mom: CRT-d implanted March 2018.  Being tested for heart transplant due to ef of 20% along with NYHA class iii symptoms. Cardiopulmonary stress test seems to indicate transplant is in the future. Let’s prove them wrong! 

Started cardiac rehab yesterday. Bp was a bit low 84/49. She felt fine so they let her start. 10 mins walking on treadmill. Kept her hr below 106bpm. She said afterward that she was disappointed in her performance - I reminded her that it was onl...

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CRT-D verses meds

I had a CRT-D implanted Dec 2016 after an electrical storm I was also put on 200 mg of ameoderon a day.

My question  is isn't the Crt-d doing the same as meds why do I need both.  Will the Crt-d keep my heart beating at the proper rate without the meds

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Ameoderane

Has anyone stopped taking ameoderane after having a crtd implanted

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Pacemaker may have saved my life

I am brand new to this forum, though I have been an avid reader. I decided to join because of what happened to me very recently. 

I received a pacemaker after I went to the emergency room with erratic heart beats. Three weeks prior, I had a crash on my bicycle that included me blacking out. At the hospital, a cardiologist monitored me for 4 days and together we decided a pacemaker was what was needed. 

Problem was, it wasn’t. 

I went through al...

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boston scientific model g247 CRTD

Hi.  Im new.  Just had device installed this past Monday.  Have a few questions.

Went to mall yesterday. In and out 5 stores and heart was uncomfortable  Rate went crazy. Husband wit me and pulse reader on. Tried driving my car. Both bluetooth in car and phone off  same results. 

Was just sitting watching tv felt a few pvcs and then a small pop  not painful center of chest 10 minutes later another small pop.

Saw EP yesterday said all ok but...

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Driving?

Ugh.  My ICD just fired -  first time for this device -  second "appropriate" shock in 11 years -  (one other when  a recalled Medtronic lead broke, and two when a Boston scientific  device failed a mere five weeks after implantation - and the techs were messing around to see if they could get it to do anything - all they accomplished was shocking me twice before determining I needed a new implant..........)  -  any way -  I cannot f...

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Nausea

My 61 year old mom has had her crt-D for almost two months now and recovery is going, just slowly. One annoying thing that keeps happening is every morning (usually earlier in the morning but there is no set time), she seems to get really nauseous. Sometimes she’s able to breathe thru it and other times she’s not. If not, she ends up vomiting and feels better after that, then goes about her day.

 

Has as anyone else experienced anything like this? I can’t fi...

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How did you feel after an ICD implant

  • by Johnl
  • 2018-04-21 03:18:46
  • ICDs
  • 243 views
  • 5 comments

I had a ICD implanted 4 weeks ago now and I have felt 10x worse since the surgery, I'm a 25 year old Male, very fit and active before implant and now I can barely get out of bed longer then half hour. 

I constantly have an odd feeling around the heart, it's hard to explain. Dizziness is more frequent then before. 

I thought it was normal to start with but it seems to get worse as time goes on,

Has anyone been through the same thing, is there something wrong...

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HAD AN EPISODE ALERT

DOCTOR CALLED ME SAYING I HAD AN EPISODE 2AM WHILE I WAS SLEEPING ???? IF IT HAPPENS AGAIN I HAVE TO GO INTO THE HOSPITAL.ANYONE HAVE A SIMILAR

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Blockages

IF I HAD A PARTIAL BLOCKAGE WOULD THE PACEMAKER MONITOR SHOW IT? I HAVE SHORTNESS OF BREATH AND CLEAN X RAYS OF CHEST

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Shocked 24 times Almost DIED....HELP

My first ICD was a single lead St. Jude device.  This was put in 2007 due to having an episode of VT.  I was also told that I had Cardio Myopathy.  Installing the device was like an insurance policy.  That device shocked me 7 times by reading SVT as VT 2 years later.  The unit was replaced due to a low battery, got an infection, and an IV for 6 months. 

The unit and the lead were removed in Nov. of 2013 and a dual unit installed on the right side  &nbs...

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recent crt-D -- new veins, hot feet

Hi all, 

so my mom has had her crt-D for LBBB and CHF for a couple of weeks and some interesting developments -- we've noticed "new" veins in her hands and wrists that were not noticable, or maybe didn't exist before -- could this be a sign of better circulation?  Also, her feet get very red and hot when she's asleep - could that also be a circulation thing? The body is so mysterious! She's my bionic mama <3. 

Before the surgery her EF w...

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CRT-D heartbeat still irregular?

I have had my CRT-D since 2/1/18 for LBBB. Everything has been going great. I am healing and Im feeling better each week. I have only had my first checkup 12 days after pm with tech. He said everything looked fine. I will see doctor in April. I am waiting to start cardio rehab so I can find out exercises I can do. I am ready to get back in shape. I have gotten myself walking one hour every morning with no discomfort or SOB. I have one concern. Whenever I take my bp at times my machine sh...

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MRI friendly ICD

Hi I’ve recently had a pacemaker fitted but now need an ICD. Are there any MRI friendly ICDs available privately in the UK? I assume they aren’t generally available on the NHS.

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Left ventricular pacing only?

Hi all, very new here. Appreciate this board so much. my mom was diagnosed with chf last April with an ef of 20% and LBBB. She was still doing Pilates last summer until she ended up with pneumonia and pleural effusion and was in and out of the hospital for months over the holidays. Her then cardiologist had failed to mention it would be good for her to get a pneumonia vaccine. At one point they had her on milrinone, things were so bad. But, she made it out and just had a Boston...

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You know you're wired when...

You have a little piece of high-tech in your chest.

Member Quotes

My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.