Most Recent Messages in ICDs

Flying with an ICD?

Am flying to Atlanta this Friday. First time flying with my ICD. 
A little nervous about airport security - any advice? 

Thanks! 

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ICD/CRT-D: Inappropriate shocks

  • by BarbD
  • 2018-10-02 17:35:20
  • ICDs
  • 162 views
  • 11 comments

Does anyone know the real statistics on how many people get inappropriate shocks from their ICD/CRT-D?   I’ve been reading a LOT of stories on here where people are getting multiple inappropriate shocks and the idea of that is just terrifying to me.  Is there anything I can do or should ask about in order to minimize this risk?  I’ve read something about SmartShock Technology – does anyone have any experience with this? Do all CRT-D devices have this tech...

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I am new here and would like to share experience and inspire (and be inspired) other people with ICD

Hi Everyone

I am 49yold and I am passionate about running. I started only 5 years ago, but it became part of my daily life. I was able to run Berlin Marathon in 2h58 and NY Marathon in 3h'03 min in November last year. Unfortunately I had a severe Vemtricular Tacquicardia in January this year (my heart went up to 280bpm..after an interval triaining run), followed by an ablation in April which ended up with a Tampane (hemorragy) and consequent 8 tacquicar...

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Teaching Hospitals and CRT-D Implant

  • by BarbD
  • 2018-10-02 10:05:10
  • ICDs
  • 152 views
  • 6 comments

I am currently going to a teaching hospital in Boston where my EP practices.  We are discussing implanting a CRT-D, and when I asked him if he’d be doing the surgery/procedure he just said “me and my assistant/fellow”. I asked whether he’d be at least doing the lead placement and he repeated me and my assistant would be doing it.  He saw that I was a bit uncomfortable with this and just said he’d be there the whole time overseeing everything.

He s...

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Pain

I have had constant pain since implantation that feels like I have a Nail lodgged in the muscle but that's not where it stops if only it were. At random points in time the site feels as if the nail was now funneling electricity from a Tenns unit into the area or it feels as if someone has struck said phantom nail hard enough to remind me the area is painful.

The first level of this pain has been so constant now that I can ignore it basicly blocking it out till it reminds me of...

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ICD battery life....

There have been alot of questions regarding how much battery life gets drained when an ICD fires.  Well, my experience with my Medtronic ICD:  In Feb 2018 battery life was 11.1 years.  On Sept 4th, 7 months later, it fired 5 times and now the battery life is 10.5 years.   So, the answer is it doesn't use much when it fires, but heck it sure feels like it does!   Hope this helps ease the mind of those who were wondering. 

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Pacemaker- A BOON TURNING INTO CURSE ?

I am a prospective candidate for Pacemaker as per my cardiologist, though I do not have any symptoms and leading peaceful retired life at 74 age.  Looking at a few posts, the following doubts cropped up. 

Q1:- Are there any cases where PM might cause hindrance to a peaceful death process for the patient on the deathbed?

Q2:- If it turns out to be an obstacle to a natural death for the patient, does USA law allows the deactivation of the device?  

Thanks

...

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New to the Club

I am scheduled to have my ICD implanted on 15 October. All of this is very new to me and overwhelming. The closer I get to my surgery date, I'm getting more anxious. I have a great medical team who determined this is the best treatment for me given my medical history.  What are some of the common and uncommon things I can expect during my 6 week recovery?

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Different Models of CRT-D Devices

  • by BarbD
  • 2018-09-20 14:02:11
  • ICDs
  • 243 views
  • 9 comments

How does the EP doctor decide which CRT-D device to use on a particular patient?  It looks like there are several manufacturers (Medtronic, Boston Scientific, St. Jude, ...?) and each manufacturer makes several models.  How do you know which one if the best one for you?  Are there specific ones that are better than others, or with better features I should be looking into?  Sorry - kind of overwhelmed here and trying to do some research.

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Warm flush sensation while driving

Hi, I am 2 months post ICD surgery. Today while driving I suddenly felt a warm flush sensation in the middle of my chest...my head started to feel woozy...and to keep from feeling like I was going to pass out/lose control of the vehicle...I started breathing heavily in and out to get me through. Has anyone ever experienced this before? Could it be related to the ICD? Or perhaps this is something I need to talk about with my family doctor?

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CRT-D: New and out of my mind with anxiety

  • by BarbD
  • 2018-09-17 14:15:27
  • ICDs
  • 256 views
  • 11 comments

I have cardiomyopathy with an EF of 35, and I wore a Zio patch for 2 weeks to evaluate palpitations.  The patch showed short runs of VT so it was recommended that I seean EP doctor.  Well I met with the EP doctor the other day, and he “offered” me the option of getting a CRT-D device.   I did some reading over the weekend and read about lots of different complications you can have from this surgery (stroke, heart attack, lead perforations/dislodgements/failures...

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Low Cholesterol level after ICD firing?

I know it's a long shot, but does anyone know if being zapped by your ICD would drop your cholesterol levels?  Or maybe if amiodarone would drop the levels.  I'm looking at my test results after my shock storm and total cholesteral is combined 119, with ldl and hdl 59 and 60.  Triglicerides are normal though.   Just wondering if anyone had experienced this while I wait to have another test done after Hurricane Florence moves out of here. 

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ICD implant

ROBO. I hardly think I would be on this forum if I had died. Stupid remark.

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ICD implant

When admitted to hospital I was MORIBUND, dead,. I was on life support, therfore unable to authorise anything. My next of kin were not notified. It was implanted to make some doctor feel good about himself.

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ICD beeps while out of country

  • by Cody7
  • 2018-09-09 14:27:22
  • ICDs
  • 100 views
  • 3 comments

Hello all, I have a Medtronic ICD I got 2 years ago and I’ve never had an arrhythmia, or a shock. I just arrived in Bologna, Italy which I was super excited for as it’s my first time out of country, so of course on my first day my ICD beeps for the first time ever. I called my DR and couldn’t really understand him that clearly. He said it probably was nothing but could be a bad lead or something about voltage but we needed to query the device, although he said it could wait...

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Warm defibulator site.

From day one, trouble. One night home,  next morning I felt sick, sick feeling in my head, then a cracking noise like a whip. 10x. Also the op sight hot every morning and other times during the day. 

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ICD Storm!

Just back from the hospital.  On Tuesday night my ICD fired.  I called 911, ambulance came and no sooner was I in the back when it fired again.  As they were putting in a port (catheder for giving meds) I told them it was going to fire again, they looked at me and then I yelled "Clear".  It fired again ripping the port out of my skin.  They finally got one in and while they were attaching the electrodes to my chest I told them it was happening again, yelled...

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ICD Iplant and Exercise

Hello to group, my first post so I have a Medtronic ICD and I really appreciate input or opinions, I'm 69 Years and like to exercise and weight lift but I've had to somewhat restrict my weightlifting, now I've been diagnosed with Prostate Cancer and will undergo Hormone therapy, one of things that can help is weight training to help prevent bone density loss, my question is looking for input regarding ICD implants, leads and relate to weight lifting, anybody else have an implant a...

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Revision

Hi, June 1st, 2018 I had my ICD implanted..never felt great or even better after the implant  I have LBBB. I had a icd revision on Aug 27th. The EP accused me of twiddling. The device had twisted and the leads were out and I was palpatating through my diaphragm. I don't think the leads were put in right. I did not twiddle. I feel like I have taken 10 steps backwards. Anyone else have these issues. I was scheduled for an adjustment to see about getting me more energy. Now back to squa...

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An ICD Barks!

Wife's HS reunion coming up and she's been communicating via text/e-mail with HS friends recently.. One of her best HS friends hubby has a PM with an ICD enabled.  Few days ago, wife's friend says she and her hubby were walking, and he just dropped to the ground. They were in a neighborhood setting, and locals called EMS - who arrived within minutes. The husband was  alive and was transported to a local ER and hospitalized for a couple days.  Later, it was foun...

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You know you're wired when...

Like the Energizer Bunny, you keep going.

Member Quotes

The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.