Most Recent Messages in ICDs

How did you feel after an ICD implant

  • by Johnl
  • 2018-04-21 03:18:46
  • ICDs
  • 120 views
  • 5 comments

I had a ICD implanted 4 weeks ago now and I have felt 10x worse since the surgery, I'm a 25 year old Male, very fit and active before implant and now I can barely get out of bed longer then half hour. 

I constantly have an odd feeling around the heart, it's hard to explain. Dizziness is more frequent then before. 

I thought it was normal to start with but it seems to get worse as time goes on,

Has anyone been through the same thing, is there something wrong...

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HAD AN EPISODE ALERT

DOCTOR CALLED ME SAYING I HAD AN EPISODE 2AM WHILE I WAS SLEEPING ???? IF IT HAPPENS AGAIN I HAVE TO GO INTO THE HOSPITAL.ANYONE HAVE A SIMILAR

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Blockages

IF I HAD A PARTIAL BLOCKAGE WOULD THE PACEMAKER MONITOR SHOW IT? I HAVE SHORTNESS OF BREATH AND CLEAN X RAYS OF CHEST

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Shocked 24 times Almost DIED....HELP

My first ICD was a single lead St. Jude device.  This was put in 2007 due to having an episode of VT.  I was also told that I had Cardio Myopathy.  Installing the device was like an insurance policy.  That device shocked me 7 times by reading SVT as VT 2 years later.  The unit was replaced due to a low battery, got an infection, and an IV for 6 months. 

The unit and the lead were removed in Nov. of 2013 and a dual unit installed on the right side  &nbs...

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recent crt-D -- new veins, hot feet

Hi all, 

so my mom has had her crt-D for LBBB and CHF for a couple of weeks and some interesting developments -- we've noticed "new" veins in her hands and wrists that were not noticable, or maybe didn't exist before -- could this be a sign of better circulation?  Also, her feet get very red and hot when she's asleep - could that also be a circulation thing? The body is so mysterious! She's my bionic mama <3. 

Before the surgery her EF w...

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CRT-D heartbeat still irregular?

I have had my CRT-D since 2/1/18 for LBBB. Everything has been going great. I am healing and Im feeling better each week. I have only had my first checkup 12 days after pm with tech. He said everything looked fine. I will see doctor in April. I am waiting to start cardio rehab so I can find out exercises I can do. I am ready to get back in shape. I have gotten myself walking one hour every morning with no discomfort or SOB. I have one concern. Whenever I take my bp at times my machine sh...

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MRI friendly ICD

Hi I’ve recently had a pacemaker fitted but now need an ICD. Are there any MRI friendly ICDs available privately in the UK? I assume they aren’t generally available on the NHS.

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Left ventricular pacing only?

Hi all, very new here. Appreciate this board so much. my mom was diagnosed with chf last April with an ef of 20% and LBBB. She was still doing Pilates last summer until she ended up with pneumonia and pleural effusion and was in and out of the hospital for months over the holidays. Her then cardiologist had failed to mention it would be good for her to get a pneumonia vaccine. At one point they had her on milrinone, things were so bad. But, she made it out and just had a Boston...

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New Pacemaker Club Member

Aloha Pacemaker Club,

New member and first post.  I have a question for y’all.  Are we able to post pictures and/or videos on here?

 

’O ka manawa lua.

Second chance heart.

- jon 

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Ground Hogs day

sitting here working on a painting and being the couch potato, American for lazy, I am didn't bother to turn off the television. Apparently some crime show was on detailing an actual murder in Texas. Now normally this wouldn't be a topic for this site but for the bizarre role a defibrillator played.

Now it seems this prominent man in a Texas town was discovered dead. During his autopsy they discovered he had a defibrillator implanted and being creative decided to see if the...

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Sure

Sure I get a lifetime achievement award and nobody informs me.

Blake why didn't you tell me I was banished from the site, I'd have worn my tux and gotten a date for the ceremony. Always last to know...or is Robin mistaken as usual?

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Many Shocks

I just had a lead come detached.  I was shocked continually for several minutes until we got enough magnts off our refrigerator, hour and a half later I was at the hospital and got to the hospital and had it turned off for REAL.  I now have a new ICD and I am very anxious it might happen again, although I have been assured it won't.  I guess what I need are some ideas to become less anxiious.

Thanks, Karen

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Many Shocks

I just had a lead come detached.  I was shocked continually for several minutes until we got enough magnts off our refrigerator, hour and a half later I was at the hospital and got to the hospital and had it turned off for REAL.  I now have a new ICD and I am very anxious it might happen again, although I have been assured it won't.  I guess what I need are some ideas to become less anxiious.

Thanks, Karen

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Medicare Supplement Ins.

  • by tonyp
  • 2018-02-27 20:12:41
  • ICDs
  • 138 views
  • 1 comments

I have had an ICD pacer/defib since 2013 but lost my supplemental insurance.  Does anyone know of an supplemental ins that allows for icds ?

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Phantom shocks

Aloha from Hawaii,

 

I have had a device since 2002 with no shocks ever. Today, after a meeting, I stood up and felt a bit dizzy. Something I have had happen before, no big deal.

However after I walked a few feet I felt a series of 6-9 shocks, starting at my feet and ending at my head. They were just a few seconds apart. They were not of the intensity of a shock that I was told to expect( like being kicked by a horse), more like the shock from an electrical ou...

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Scheduled for an ICD

I had a pademaker installed in 2014. No problems except my ejection fraction kept dropping. Its now 24%. I have dilated cardiomyopathy. My cardiologist suggested that the drop in EF may be because of what was referred to as "pacemaker syndrome. She has now scheduled me for an ICD. She stated that it may also improve my EF.

Any comments?
I am concerned about faulty shocks and jolts.

 

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Boston Scientific Resonate X4 CRT-D versus Medtronic Claria MRI Surescan CRT-D

Hello Everyone,

And thank you in advance for your feedback. The entire world of implantible cardiac rhythem management devices is competely new to me, so I appreciate all the feedback.

Between the newly FDA approved Boston Scientific Resonate X4 CRT-D, and the Medtronic Claria MRI Surecsan CRT-D device, which would you pick and why?

The Resonate has a longer battery life, and measures heart failure using 5 critera, and MRI safe up to 1.5 Tesla. While the Medtronic...

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Huge swelling after ICD insertion

I had my pacemaker replaced with an ICD on January 17, 2018.  The swelling was huge and I could not lift my arm (and till can’t all the way).  The swelling has gone down but here it is a month later and I still have a very tight spot, bruising and pain over and around the device - and my left arm is still not fully flexible.

Is this normal?

Ellie

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FIXING OF PERMANENT PACEMAKER

Dear Friends,

Iam new to this forum. Iam in India - Tamilnadu

my relative she is aged about 30 yrs has frequent dizziness sometimes for the past few days.so we taken her to hospital , after some days she was quite normal and doctors asked her to get discharge from hospital, during yesterday afternoon she again has some dizzines for few seconds and she was unconscious on that time.so doctors agin take ECG and other tests and finally told she needs a PACEMAKER hereafter as her heart...

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Roto tillers

Hi,  I had a Medtronic CRT-D pacer installed last week and I have a large garden that will need to be tilled in the spring.  I know about the distance I need to keep from the ignition system, but does anyone have expeience to advise if the vibration of the tiller will set off my ICD?  Aa jackhammer is used as an example in the pacer literature as a verbotten tool and while a tiller isn't that rough, there is more vibration than a lawn mower or snow blower.  Perhaps a r...

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Member Quotes

My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.