Most Recent Messages in ICDs

Two weeks in

Almost two weeks since my implant procedure and things are going pretty ok. 
Healing remarkably fast (I usually do) despite being a diabetic. 

A little frustrated that my ICD doesn't do anything - just sits and watches in case I need it. I know that when I'm older I'll probably be thankful to have it.

Sleeping has been pretty rough - I tend to sleep on my stomach and haven't been able to since the procedure. Have bought a cheap butt/doughnut pil...

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Icd and coping

  • by ybono
  • 2018-08-07 19:58:06
  • ICDs
  • 107 views
  • 4 comments

Hello everyone this is my first message here I received my ICD back in May of this year I have horrible anxiety now my shoulder has never hurt so bad in my life im not sure what to do or how to cope but I'm glad that I'm not alone I am very thankful for this group

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Home from the hospital with new ICD

Now officially a part of the club! 
Got my implant on 8/1/18.
Home from the hospital 24 hours later.  

A little sore, a little overwhelmed - but greatly relived. 
Thanks to everyone here for all the info and guidance that got me this far! 

Added a couple pics to the gallery. 

‚ÄčAny tips on the healing process would be greatly appreciated! 

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ICD

Newbie here.  SCA 2/19/09, ICD 2/20/09.  No zaps, but several episodes where the ICD was "fighting" with my heart and within a hair of being zapped.  Ventricular pacing, preparing to have battery replaced before the end of 2019.

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New to this

Hi - new here. 60 year old male in southern AZ.  Went into cardiac arrest while jogging June 3.  Two bystanders called 911 and gave me CPR until EMTs arrived.  They're the reason I'm still alive.  Was airlifted to hospital in Tucson, and had an ICD implanted June 7, discharged the next day.  I was told my EF is 17% and that I have cardiomyopathy.  I'm on Entresto and carvedilol 2x per day.  Another echo scheduled Aug 22.  No history of heart...

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Big thumps

Two nights ago I woke up to what felt like big thumps in my chest.  They did not hurt.    No other symptoms but definately a feeling inside that one would take notice of.  Anyone have this type of experience?

Thanks!

Ellen

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Low EF not always best indicator for ICD placement....

Just came across this article for those considering an ICD and those wondering what, if any, benefit they may get:

Implantable Cardioverter-Defibrillator Implantation

Reduced left ventricular systolic function (LVEF ≤35 %) remains the sole arbiter in international guidelines for implantable cardioverter-defibrillator (ICD) therapy in heart failure patients.9,10 Paradoxically, 70–80 % of those who suffer sudden cardiac death (SCD) have an ejection fraction (EF) o...

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CRT-D Installed July 17th. Not Feeling Better

LVEF of between 15% and 30%, depends on which test they read. Anyway, went to my GP because of shortness of breath, where the PA did an ECG and found a LBBB. She freaked and told me she was going to get me an ambulance and take me to the ER. I drove.
I entered ER in February with shortness of breath. Many tests later and I have LBBB and a slightly enlarged LV with the low LVEF. I have no blockage, cardiomyopathy is due to chemo therapy for cancer in 2008.
I am taked Entresto, C...

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Getting my ICD...

Hey All, 

Posted about 4 months ago when I was diagnosed with endocarditis and was informed I'd likely need an implant... Had a follow-up Echo and Nuclear Stress Test last week. Echo showed I still have a low ejection rate of 20. Stress test showed no signs of heart disease. 

I see the Electrophysiologist this coming Tuesday. 

Anyone have suggestions of things I should ask the doctor?  

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ablation

  • by lb151
  • 2018-07-11 22:36:51
  • ICDs
  • 183 views
  • 4 comments

my doctor has recently been talking about doing an ablation and making me totally dependent on the pacer. I have been very resistant to the idea. I would like to hear any stories and ideas you guys have on this. Im scared of the idea and need some help

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implant location

I need a CRT-D implanted. I am left handed and the EP mentioned that having it implanted on my right side may cause a problem because the lead will be longer. He is recommending it to be on the left side even though I am left handed. Anyone else had it on the right side?

I also asked to have the implant below the muscle. Has anyone had issues having it below the muscle vs. in a pocket below the skin?

 

 

 

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Not keeping to set speed

  • by dalep
  • 2018-06-28 20:45:24
  • ICDs
  • 233 views
  • 10 comments

Hello I have a 2 lead St Jude set at Miniumum of 6o BPM fitted 2 weeks ago, for the first week and a half all has been fine , and my lower heart rate has been a steady 60 + / - 1

For the last 2 or 3 days its been dropping to 50 +/- 1 instead of 60

I initially thought my Apple watch has having a senior moment, but i tried using a medical grade monitor, same thing.Last night 49 for 30 mins, the 50 for 2 hours, only went back to 60 when i sat up.

I called the hospital and...

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CRT-D choice

My EP has suggested two companies and models for my implant this coming Monday...He installs about 60% Medtronic and 30% St. Jude...the other 10% are replacements where the implant dictates the same equipment as original...he has made it clear that he has no preference in the two models and feels they are both great technology and the the others are also good he just likes to go with what he knows best which are Med and StJ...The two models are Medtronic Claria DTMA1Q and St Jude Assurance MP...

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ICD, Roller Coaster

Hello!  I have an ICD by Medtronic implanted since 2016!  No problems so far.  I am wondering if I can go on a BIG, FAST Roller coaster!  More specifically, the ones at Cedar Point, Ohio!  I have already booked a tour of the park with my best friend this September.  I am more concerned about the ones using magnetic force to slow/speed the rides up and down.  My cardiologist who installed it said I should be ok but I did not mention the magnets with him. &nbs...

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99% paced

What does it mean when they say I'm 99% paced?

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ICD

In August of 2016 I had an emergency pacemaker implant.  All was fine and I was back to myself very quickly.  In January of 2018, my pacemaker was removed and replaced with an ICD because of ventricular tachycardia.  The recover was not so easy.  I had major swelling at the sight.  Now the swelling is all down, but the site is painful.  Also, You can see the device and what looks like leads.  I’m not so concerned about the look of the site, but the con...

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ICD extreme tenderness & pain

I am 45 years old. I have had Hypertrophic Cardiomyopathy since birth but, was not diagnosed until I was 13 yrs old.  Been on meds since then. I got an ICD on Jan 23, 2018 & am experiencing  EXTREME tenderness, pain in area & below of ICD. Can not barely touch it without pain & I get tingling & pain there. It is extremely bulged out.  Is this normal to be hurting there still after 4 months??  I am so sick & tired of it. I a...

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iCD in power plant

New to the forum, first post.  After having an ablation done for a fib a few years ago, two weeks ago I suffered a ventricular tachycardia and had an icd implanted. I am an engineer in a power facility with two 4000 KW steam turbine generators as well as transformers, electrical breakers, diesel generators, etc. I am having trouble finding out if it’s safe for me to go back to work or if I have to retire two years early. If anyone has any input regarding th...

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ICD Fired this morning 4:10 AM

Implanted Feb 28, 2018. I was told most people live a complete life with it never going off.

I called 911 and was taken to the local hopital, xray blood tests and sent home with. Well it did exacly what it was supposed to do and good luck, these things go off all the time.

I will call my GP and cardiologist on monday, but now I'm worried that things are just going to go downhill from here. When will if fire next, what can I expect? How can I go to sleep tonight?

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1st day of cardiac rehab

My mom: CRT-d implanted March 2018.  Being tested for heart transplant due to ef of 20% along with NYHA class iii symptoms. Cardiopulmonary stress test seems to indicate transplant is in the future. Let’s prove them wrong! 

Started cardiac rehab yesterday. Bp was a bit low 84/49. She felt fine so they let her start. 10 mins walking on treadmill. Kept her hr below 106bpm. She said afterward that she was disappointed in her performance - I reminded her that it was onl...

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You know you're wired when...

You make store alarms beep.

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