Most Recent Messages in ICDs
ERI Beeping - pattern & frequency ?
Hi Folks - nearly my ICD replacement after 9.5 years
Been told that when ERI is reached, my ICD will start beeping
Does anyone know if it's continuous, frequent or intermittent - what is the duration, periodicity?
Hope it doesn't beep when I sleep
Thanks in Advance 🙏🏼
Bi-Ventricular Pacing risks & concerns
Hi All! After 10 yrs with 2 lead ICD, never shocked & overall pacing of 1%, developed symptoms of SOB & rapid heart beats. Turned out to be 2 blockages, that were stented. Symptoms returned month later. One blockage had to be redone. Slower recovery this time. Eventually improved and now, months later, similar symptoms. Batteries on ICD near end and they're recommending upgrade to 3 lead bi-ventricular unit, just in case, because of heart block that shows during pacing of rig...
Newly Fitted with an implantable cardioverter defibrillator
Hello everyone!
I am a 64 years old man from Canada and two months ago I had an Implantable Cardioverter Defibrillator installed (if that is the correct word lol)
So probably like most of you that have one installled, I have a few questions about living with a ICD, I am meeting with my Doctor who implanted the ICD this week, but never have really discussed the Do's and Dont's with anyone.
I lucliky and happily found this club while doing some research, and I joi...
Heart pacemaker and the use of implanted glucose monitor.
I have a heart pacemaker, and I have been just recently diagnosed with type 2 Diabetes. Does anyone know if I can have an implanted glucose monitor, and will that be a problem that I already have a heart pacemaker..Thanks in advance
Misc updates
- by islandgirl
- 2024-08-05 23:55:18
- ICDs
- 208 views
- 5 comments
Firstly....I continue to be grateful as I celebrated my 8- year 'rebirthday' following a SCA.
I've also been plagued with 4 events since April with aflutter and atrial tach episodes with HR in the low to mid 250s, lasting 10-12 hrs and then 1-2 hr periods for up to 3 days. I've been instructed to go to the ER, even if I convert on my own. My EP is almost 3 hrs away, so that would mean going to a local ER and getting transferred to t...
Extreme heat (sauna) and cold (ice bath, cold river swimming) and ICDs
Hi, I have a traditional sauna at home that I adore spending time in. Are saunas generally thought to be ok for people with an ICD? I have had my ICD for three weeks and I was going to wait 2 months and slowly re-introduce myself to the sauna. any thoughts? My approach was going to be to limit the heat to 80% of what i used to go for and half the time. The sauna only reaches 92 degrees, max.
I'm also going to Italy in September. We usually splash around in the (very) cold rive...
ICD & AF
- by Graham Harry
- 2024-07-23 16:35:52
- ICDs
- 287 views
- 5 comments
I posted recently (29th June, ICD Review) and I thought I would give you an update.
The ICD was adjusted on 25/6 and my situation was to be discussed at the group meeting. Since then I have had two letters. The first from the EP saying: patient seen due to AF. Found to be in AT with a tachycardia rate of 100bpm with sudden drops to 55 with AP. Then went back to AT. Reprogrammed DDI with VP/S at 55. Sent patient for a walk to assess RR, he felt better with it on. Lead checks...
ICD and CGM - Is it safe
- by Breezy3694
- 2024-06-27 12:14:12
- ICDs
- 311 views
- 5 comments
Hey All - this post is mostly for awareness. Please share if you have similar experiences though
I’ve recently been diagnosed with Type 2 Diabetes. They finally prescribed a CGM for me. I was pretty excited because the finger pricking was getting old and painful.
Last night was my first night using CGM. Reading though what to expect i came across an article from the manufacturer of the CGM that said it wasn't recommending using yet as t...
MRI Conditioned/Compatible
My new Dr. at an Advanced Heart Failure clinic I was just referred to wants me to get a cardiac MRI done to see if they can figure out why I had such a quick slide into heart failure. I received a message that my ICD was not MRI compatible and they moved up my video appointment to discuss the possible risks of doing it anyway. I spoke with the Dr.'s nurse because my local cardio says his records show it is MRI compatible. The nurse said it might be a case of the generato...
ICD Repacing
A week ago, I had some rapid HR on a Sunday, and messaged my EP asking if anything was caught in the nightly download of info. I got a call back telling me that "no", nothing was flagged or alerted and sent to email, but they had me do an interrogation then. It showed 2 episodes of VT about a minute a part and showed the ICD was able to repace the heart both times. (Good to know it's working..) My question: Would one expect for a repacing due to VT...
AV Node Ablation
- by Graham Harry
- 2024-06-18 11:41:43
- ICDs
- 256 views
- 2 comments
I wrote on 13th June about my high heart rates. Anyway I went to see my cardiologist yesterday and an ECG showed I was in AF and this is why I have felt unwell. We discussed the options. To cut a long story short, we agreed that I would have an AV Node ablation. Things were explained to me and my wife and I have also looked on line about the procedure. I will be totally dependent on my CRT-D for pacing but I can stop taking amiodarone. There is a 3 to 4 month waiting time on the NHS. Do any o...
High Heart Rate
- by Graham Harry
- 2024-06-13 12:55:17
- ICDs
- 276 views
- 1 comments
My CRT-D normally keeps my resting heart rate at 55/56 but this week I keep getting readings of 75 and occasionally up to 95. At the higher levels I feel unwell and just stay in bed. I'm on 10mg of bisoprolol and that used to keep me at 55. My home ECG says "possible AF" when at the high levels. I have an appointment with my cardiologist next week but I wondered if anyone else experiences this. Thanks.
Anyone with a Boston Scientific CRT-D been erroneously shocked multiple times?
I was recently working out and got shocked 6 times. My EP was pretty confident it was legit until he saw the interrogation. Has anyone experienced this? If so, did you receive any information about long term damage? My echo was abnormal and my EF was reduced from 52% to 43%. I feel like crap and have no confidence in my heart or device at this point.
Irregular beats
- by Graham Harry
- 2024-04-29 17:50:16
- ICDs
- 348 views
- 1 comments
After being unwell with arrhythmias for several weeks, I had an echocardiogram and a 7 day monitor. As it happened, these two tests were done during a period of feeling well which I have been this month up until recently. The echocardiogram result said: LV non-dilated with mild concentric hypertrophy (1.3cm), Systolic function normal at 65%, Left atrium borderline dilated, No other significant valve abnormalities,
7 day report had lots of stuff I don't understand but the summary was...
ICD pain
I first had a pacemaker inserted, then remove and an icd inserted. The icd was inserted 5 years ago. Recently i have had regular and consistent pain in my left breast. It will not go away. Has anyone ever had such a thing and what does it mean?
I will be having my icd battery replace next Spring.
Tattoos
- by dustinthompso74@hotmail.com
- 2024-03-29 15:49:22
- ICDs
- 425 views
- 2 comments
I have a pacemaker/Defibrillator (ICD). I would like to get a few small tattoos on opposite arm not on incision site. Doc is worried about an infection from the needles. Anyone ever hear of someone getting an infection at ICD site this way??
CRT-D and shoulder range of motion?
So I am just throwing this out there as a question. Has anyone experienced decreases in range of motion in their shoulder or shoulder and back pain on the same side as their CRT-D? I have had some serious left sided shoulder and back pain with decreased range of motion the last couple years despite exercising. At first I thought it was posture etc but I am starting to wonder if it's related to the location of my CRT-D. I am going to ask my EP about this but I am no...
Defibrillator activation
My pacemaker was placed Aug 2023. It is a Medtronic CRT-D.
Last Wednesday I was getting on my exercise mat to do morning stretches. Just got on my back when I experienced a shock which I initially thought was my demise! What a feeling.
As recommended by my ep doc we called 911 and got transported to the local hospital. After several tests, ecg, xray, bloodwork etc. they checked my pacemaker memory and determined that the defib was triggered by ventricular tachycardia.&nb...
Exercise following a shock
Hi All
Sorry for this long message but I need to give some background before asking some questions (if you dont mind)
I had a Medtronic ICD fitted about 2 and a half months ago (dual, pacemaker and defib) following a cardiac incident while out jogging that eventually led to me being shocked in hospital to get my heart rhythm back on track.
Turned out I had Arrthymgenic cardiomyopathy that had finally reached a point of "no return" (was told most likely ju...
Question about sensations during ICD self-check
Hi everyone,
I'm a new club-member and was recently implanted with a Boston Scientific Resonate HF ICD. Whenever the device runs a self-check, I feel a fluttering in my upper chest that extends up through my esophagus to the base of my throat. It's a very unpleasant feeling and has startled me a couple of times while I was driving. Has anyone else experienced this? I'm going to ask that the self-check feature be disabled when I go to my 3 month follow-up, but in the mea...
You know you're wired when...
You have a shocking personality.
Member Quotes
I am just now 40 but have had these blackouts all my life. I am thrilled with the pacer and would do it all over again.