Most Recent Messages in ICDs

Swelling on icd device after a week

So my name is CJ, I’m 25 years old and I had to get a ICD installed In me. I had the surgery last week on Tuesday and was released from the hospital on Thursday last week. I’m getting worried because I didn’t notice swelling until yesterday, it may have been gradually swelling over the days but it’s been over a week since the surgery so why is it swelling now? Any advice please.... thank you

P.S. I started icing it today

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ICD vibrating - Medtronic DVMC3D4

Hi Folks

I think I ran across a thread on this before, but thought I would ask anyway. Has anyone else experienced vibrations coming from their ICD? No alarm, just a slight vibration that lasts a few seconds and repeats twice. This has happened a few times ...

I've only had this thing a year, so any feedback would be helpful.

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CRT-D and increased ef

I am being. Upgraded to a crt-d from an icd. Has anyone experienced an improved ef after installation?

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Decision to get an ICD

  • by Donny
  • 2019-09-16 21:11:40
  • ICDs
  • 398 views
  • 18 comments

Hi, thank you for the support that this group offers!  I’m a 62 year old male and am trying to weigh the risks and benefits of having an ICD implanted and would love any and all perspectives and inputs that you can provide.

According to my doctors, I am on the “cusp” of needing an ICD. I have a slight risk of having a heart attack, but only slight. I guess any risk is not a good one. I have medium hypertrophic cardiomyopathy, meaning that the wall of my heart has...

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What type to choose

What LVEF % justifies 2 wire or 3 wire? What determend if Med's working or not?

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UK Drivers

Does anyone know if you need to inform you insurance company that you have had an ICD fitted ?

I have not had any symptoms to date and have it fitted as a precaution as I have an underlying hereditary heart condition. 

Can any UK drivers please advise on their experience. 

Did you inform your insurer ? 

Did the cost of insurance rise dramatically ? 

 

Thanks as always !

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Ejection Fraction/Pacemaker

  • by JakeD
  • 2019-07-29 15:33:39
  • ICDs
  • 278 views
  • 4 comments

I have a pacemaker/defibulator combination with a three wire lead.  My EF prior to receiving the pacemaker/defibulator was 15-20.  My question is how can you get an  accurate echocardiogram if your heart is being pumped artifically with a pacemaker?  If the pacemaker was not inside me would I still have the same EF that I have with the pacemaker implanted in  me?

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Leaving Work

My primary care physician said that I work too hard and might consider disability.

I have had my device for 4 months today. I returned to my job  2 months after implant and ablation. I am working full-time but by Friday I am exhausted. I spend Saturday in bed giving my body the rest it seems to crave. Episodes of PTSD still exist but lessened. Though I am acutely aware of my heart beat. Because my issue appears to be genetic it's not going away, prompting me to dance between &q...

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Travel After ICD Shock

Hi,

I recently had a shock from my ICD. The Doctors office just told me to "keep on doing what I have been doing". I am planning a trip next month to France and wondered if there will be travel restrictions put on me due to my ICD going off. Also, will my remote monitor work in a different country? 

Thanks

 

 

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Cleveland Clinic

I'm scheduled to see Cardiologists Dr Wilkoff & two other MDs at Cleveland Clinic in Aug 2019.  Any advise for how to deal with hotels, transportation, apartment rental, etc while I will beT in Cleveland waiting on APPTs, Procedures or tests?

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ICD Activity Aftermath

Hi,

Has anyone else felt a little tired after your ICD is triggered? It has been a few days since my ICD went off and I find myself a little tired (also a bit anxious that this may happen again).

 

Thanks 

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ICD went off due to heart arrhythmia

Hi

I was told my ICD went off the other day. I had thought I fainted but the nurse said that the ICD shocked me out of it.

 

She said the Dr. will likely change my meds. What type of meds would help arrithmia? I also think that my Entresto has something to do with the arrithmia since my issues started after I was on a full dose.

 

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Putting third wire into CRT-D

Hi

Does anyone have a recommeneded EP in New York  to place a third wire into a CRT-D? My EP tried twice without success. He says I need someone who specializes in difficult placements of these wires.

 

 

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Long term recovery

  • by Renny
  • 2019-06-09 06:34:33
  • ICDs
  • 254 views
  • 2 comments

Hi. I have a crt device fitted eighteen months ago.  It’s complicated as I also have diabetes and kidney disease, but I find I’m still easily exhausted.  I'm only 64 and not quite ready to give up on it all just yet.  I can’t get answers as my docs are so pleased with my improved EF.  One just talks settings, the other medications.  My GP says I shoukd just accept what is.  So not me.  

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Medical I’d bracelet

hi y’all I had a ICD and crt-d put in a few days ago. Do I need to get a medical I’d bracelet 

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Warm sensation

  • by May13
  • 2019-05-29 22:21:11
  • ICDs
  • 300 views
  • 4 comments

I had an ICD placed two weeks ago.  Is it normal for it to sometimes feel warm?

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discomfort at night

hi does anyone else get scared when inbed? my pacemaker moves about and it frightens me but am told this is normal it is qute heavy too as I am very thin now but it has changed my life so hey ho x

 

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arm pain

I would like to thankyou both for your kind commentsand help here I had not realised maybe I could get help I know that Physio is useless and also tried acupuncture  no good   my arm was taped up and immobile for 5 hours so I gue that s why as you said just have to live with it now x  thanx again guys

 

 

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Twitching/muscle spasms

I received my BVICD 3 weeks ago. I have been experiencing twitching/muscle spasms over my whole body since i received the implant, mostly at night. Please let me know if any of you have had this experience and how you resolved it. Thank you

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Pain after surgery

I'm brand new to this group. I just turned 51 and was told 9 weeks ago i have cardiomyopathy. After several tests, angiogram, cardiac mri, chemical stress test etc they found i had a blockage in my circumflex artery. I was awaiting the stent procedure this month, was scheduled for May 9, 2019. On May 5th i passed out from Ventricular Tachycardia, was brought to hospital where 4 days later had an icd implanted. It is now approx 17 days later and i am in so much pain in my left shoulde...

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You have a dymo-powered bike.

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To tell you the truth I never even give it a second thought. While growing up it never stopped me from doing anything and to this day my girlfriend or my kids need to remind me that I have one!