Most Recent Messages in ICDs

Who is sorry they got the CRT-D?

Just wondering who is worse and wish they NEVER had a CRT-D?  The 66% success rate is terrible.

I have complete LBBB, EF of 10%.(was 20% in September 2016) ...never told I had Heart Failure until last month when I was sent to a HF Clinic. Just told I had a "weak heart." by local cardiologist for over 20 years. 

Can't take Beta Blockers or Spironolactone & many others.  

Doing OK on Lisinopril and Lasix (was taken off Maxide after 39...

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Swimming friendly EP

Can anyone recommend a distance swimming-friendly electrophysiologist in the UK? 

Thanks in anticipation! 

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Icd Alarm

From your Alarm 1st goes off to tell you your battery is running low, how long does it usually take to get a battery replacement I'm know almost two Months and only have an outpatient appointment for end of the month

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Icd implanted underneath the skin vs subpectoral

Hi folks, 

How many of you have your device (PM or ICD) implanted underneath the skin or subpectoral? How do you feel in terms of carrying out activities or just try to live a normal life? Are there any issues in regards to skin errosion or wire protruding for underneath skin or other problems if put subpectoral? I would love to hear from you.

Thank you so much for your comments/ sharing info!

 

Braveheart

 

 

 

&nb...

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Disney World

I am getting ready to leave for Disney World and have just started reading so many conflicting opinions on ICDs and roller coasters. I had my ICD placed 2 1/2 years ago more for pre-cautionary purposes. It does not even currently pace, they will unlock feature when needed. One cardiologist told me I had no restrictions and to have fun. The second cardiologist cautioned me against roller coasters saying that they had had patients have near shocks due to the movement of the rides. I am so...

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Lumpy and Bumpy!

  • by Ozzie
  • 2017-05-01 08:44:16
  • ICDs
  • 119 views
  • 5 comments

Hi fellow ICD implantees. Hade my ICD 2 weeks ago, my only concern is that where the incision was made and the ICD implanted feels VERY lumpy and bumpy under the skin, is this normal?

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Breastfeeding with an ICD

I am almost 8 months pregnant with my 3rd child.  (Survived SCA due to vtach at 8 weeks along and got my defibrillator...)  The medications I am on are compatible with breastfeeding and I would like to have this experience with this baby as well.  That being said, had anyone breastfed with a defibrillator?  Anything special that I need to do or be concerned about?  And would a breastpump interfere at all with the device?  Thank you for any feedback/help! &nb...

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new to this

hello,

I was a picture of health at 58 yrs young up until Jan 30th and started feeling light headed during workouts.

My doctor did a ekg and said it looked different than 5 yrs ago so scheduled a stress test.

Well 10 1/2 minutes into the test, my heart rate went from 160 to 240 and sustained Vtach for 10 minutes.

They ran every imaginable test and now I have this ICD in me due to none other than genetics.

This was and still is hard to except along with...

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Round 5 - Submuscular Implant Time

Hey all:

First, many thanks to memebrs and posters on this site for great information and your transparency.  It's nice to find a comunity of similarly situated individuals to open up to and share experiences. I'm undergoing another procedure a few days after the six month mark on my fourth surgery.  I'm new to the site and glad I found it.

Brief History (aka long story short):

Had my aortic valve replaced when I was a 20 year old Corporal in the M...

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I received my first icd shock

I am a new member and happy to have found a support group. Two days ago I received my first ICD shock and now im an emotional wreck.  I was told my heart went through V Fibrillation, so the device saved my life. Ive had an icd for about a year and a half now.  Coping is difficult 

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ICD is in, 3 days ago

Okay, everything went pretty well I think.  I find the site quite painful and it has a very deep itch. I am managing with the tylenol for pain though. I had two really crazy dizzy spells and I took my fitbit off (I don't know why I thought I needed it on) for now, at least until I get settled in.

I do feel a kind of comfort knowing that If I do get some "funny" spells like I do, then my ICD is my friend.

Thank you for everyone who has helped me.  I would ap...

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Nuclear stress test and ICD

Prior to another ablation doc wants me to have echo and nuclear stress test. My ICD has been set at pacing at 125 bpm and shock st 150. At moment my heart can go into arrythmia just sitting at computer. It goes straight to 106-110 bpm and normally lasts for a few minutes. However lately it has taken as long as 3 days before cardioverting. No fun. Now I have insurance, doc wants to do another ablation with an impeller. I guess the stress test is done to determine if I need the impeller.

...

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Pacemaker/ICD wires blocking my superior vena cava

  • by inch
  • 2017-04-15 19:51:25
  • ICDs
  • 108 views
  • 2 comments

The superior vena cava sits just above the right atrium.  Mine has two wires passing through it which in the past 6-8 months have grown vegitation or scar tissue that has nearly 100% blocked my svc.  Normally this would just kill you but my body saw it comming and built or expanded my colateral circulation (back doors around the svc to the ivc or the inferior vena cava.  SVC  all the blood from both arms, head and neck go to the svc then to the right atrium and on ward to...

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ICDs and Fitness Trackers

I have had my ICD in for 2 days, it just occurred to me that there might be a problem with wearing my Fitbit, Does anyone have any experience with this?

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pacemaker defib. replace

im looking for a place that does not charge you a arm and a leg to replace my device the place in Georgia where i got my first one want around  $100000 and i am disabled and only have medicare and they said i only have 2 volts left on mine so any info would be great .

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Shocks

AS I am getting more comfortable with the idea of have my first ICD, I have a few more questions I hope you folks can shed some light on.

My EP told me that because I am having an ICD implanted for arrhythmias I am at a greater risk of the ICD messing up, ie: shocking me unnecessarily and that I have a 10 to 15% chance of this happening, whereas an ICD implanted has 5-10% chance if implanted for other reasons. He bases these numbers on his own experience.

I am worried about this....

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Re: Epilepsy and VFIB arrest

Anyone else here have epilepsy that may have triggered SCA? I had ICD implanted after successful ROSC and before ICU/ recovery discharge 

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Odor

Someone posted about and odor coming from them. I didn't have to use deodarant very often. Since my ICD i smell like a rotting bag of onions in a damp dark basement.My poor husband and son have to deal, i feel bad. It gets so bad that i would be afraid to get a job.What's wierd about it, is that it doesn;t make my shirts smell it just comes from me.  I wsh my pits and it helps for a little while, then i smell all over again.

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Pacemaker

  • by Sona
  • 2017-03-22 01:44:00
  • ICDs
  • 208 views
  • 5 comments

What could be the life expectancy of someone who has been paced when he was of 3 and now 25 and pacemaker changed to defibrillator.Does this affects his life expectancy.

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ICD types

Hello everyone, I am pleased to find you! I will be getting my first ICD next month for Apical HCM and nonsustained Vtach, I have very few if any symptoms. I am nervous about it and I am trying to learn as much as possibe about them before hand. I have been given the choice of Boston Scientific DDD-ICD or Medtronic DDD-ICD. I really don't know any pros and cons, if anyone has experience with either or has any words of wisdom I would really like to hear from you.

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You know you're wired when...

You have a high-tech ticker.

Member Quotes

As for my pacemaker (almost 7 years old) I like to think of it in the terms of the old Timex commercial - takes a licking and keeps on ticking.