Most Recent Messages in ICDs

UK Drivers

Does anyone know if you need to inform you insurance company that you have had an ICD fitted ?

I have not had any symptoms to date and have it fitted as a precaution as I have an underlying hereditary heart condition. 

Can any UK drivers please advise on their experience. 

Did you inform your insurer ? 

Did the cost of insurance rise dramatically ? 

 

Thanks as always !

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Ejection Fraction/Pacemaker

  • by JakeD
  • 2019-07-29 15:33:39
  • ICDs
  • 157 views
  • 4 comments

I have a pacemaker/defibulator combination with a three wire lead.  My EF prior to receiving the pacemaker/defibulator was 15-20.  My question is how can you get an  accurate echocardiogram if your heart is being pumped artifically with a pacemaker?  If the pacemaker was not inside me would I still have the same EF that I have with the pacemaker implanted in  me?

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Leaving Work

My primary care physician said that I work too hard and might consider disability.

I have had my device for 4 months today. I returned to my job  2 months after implant and ablation. I am working full-time but by Friday I am exhausted. I spend Saturday in bed giving my body the rest it seems to crave. Episodes of PTSD still exist but lessened. Though I am acutely aware of my heart beat. Because my issue appears to be genetic it's not going away, prompting me to dance between &q...

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Travel After ICD Shock

Hi,

I recently had a shock from my ICD. The Doctors office just told me to "keep on doing what I have been doing". I am planning a trip next month to France and wondered if there will be travel restrictions put on me due to my ICD going off. Also, will my remote monitor work in a different country? 

Thanks

 

 

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Cleveland Clinic

I'm scheduled to see Cardiologists Dr Wilkoff & two other MDs at Cleveland Clinic in Aug 2019.  Any advise for how to deal with hotels, transportation, apartment rental, etc while I will beT in Cleveland waiting on APPTs, Procedures or tests?

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ICD Activity Aftermath

Hi,

Has anyone else felt a little tired after your ICD is triggered? It has been a few days since my ICD went off and I find myself a little tired (also a bit anxious that this may happen again).

 

Thanks 

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ICD went off due to heart arrhythmia

Hi

I was told my ICD went off the other day. I had thought I fainted but the nurse said that the ICD shocked me out of it.

 

She said the Dr. will likely change my meds. What type of meds would help arrithmia? I also think that my Entresto has something to do with the arrithmia since my issues started after I was on a full dose.

 

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Putting third wire into CRT-D

Hi

Does anyone have a recommeneded EP in New York  to place a third wire into a CRT-D? My EP tried twice without success. He says I need someone who specializes in difficult placements of these wires.

 

 

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Long term recovery

  • by Renny
  • 2019-06-09 06:34:33
  • ICDs
  • 183 views
  • 2 comments

Hi. I have a crt device fitted eighteen months ago.  It’s complicated as I also have diabetes and kidney disease, but I find I’m still easily exhausted.  I'm only 64 and not quite ready to give up on it all just yet.  I can’t get answers as my docs are so pleased with my improved EF.  One just talks settings, the other medications.  My GP says I shoukd just accept what is.  So not me.  

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Medical I’d bracelet

hi y’all I had a ICD and crt-d put in a few days ago. Do I need to get a medical I’d bracelet 

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Warm sensation

  • by May13
  • 2019-05-29 22:21:11
  • ICDs
  • 220 views
  • 4 comments

I had an ICD placed two weeks ago.  Is it normal for it to sometimes feel warm?

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discomfort at night

hi does anyone else get scared when inbed? my pacemaker moves about and it frightens me but am told this is normal it is qute heavy too as I am very thin now but it has changed my life so hey ho x

 

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arm pain

I would like to thankyou both for your kind commentsand help here I had not realised maybe I could get help I know that Physio is useless and also tried acupuncture  no good   my arm was taped up and immobile for 5 hours so I gue that s why as you said just have to live with it now x  thanx again guys

 

 

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Twitching/muscle spasms

I received my BVICD 3 weeks ago. I have been experiencing twitching/muscle spasms over my whole body since i received the implant, mostly at night. Please let me know if any of you have had this experience and how you resolved it. Thank you

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Pain after surgery

I'm brand new to this group. I just turned 51 and was told 9 weeks ago i have cardiomyopathy. After several tests, angiogram, cardiac mri, chemical stress test etc they found i had a blockage in my circumflex artery. I was awaiting the stent procedure this month, was scheduled for May 9, 2019. On May 5th i passed out from Ventricular Tachycardia, was brought to hospital where 4 days later had an icd implanted. It is now approx 17 days later and i am in so much pain in my left shoulde...

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Lasik rejection due to ICD

Went to get evaluated for Lasik - but was rejected due to my ICD - was told that the laser equipment may interfere with my ICD (not the laser itself, obviously)

Anyone else experience this? Any alternatives or Opthalmologists that DO perform Lasik in an ICD friendly setup?

 

 

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Still new to this. All advice still welcomed... But, I feel much better and stronger.

I'm coming up on my two week mark after having my ICD implanted. My strength level has returned oh, the pain has subsided substantially, and I can no longer feel my heart beating when I used to feel my PVCs all day all night and everywhere in between. Evidently the medication they put me on which is Lisinopril with hydrochlorothiazide and a beta blocker the starts with the letter C and I still can't pronounce, is doing its job in conjunction with my new low salt diet, exercise, and&nb...

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Pregnancy/giving birth with an ICD/pacemaker

Hi! Soooo...my husband and I were trying for a baby before my unexpected cardiac arrest in December 2018. It has been 5 months (today) since my SCA (4.5 months since my ICD/pacemaker implant). My diagnosis was: Arrhythmogenic Mitral Valve Prolapse. I know this is a personal question, but do you think it's too soon to start trying for a baby again? I'm pretty stable emotionally, I think my ideal beta blocker dosage has been figured out (I'm on 5mg of bisoprolol - which is supposed...

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Pacemaker vs ICD

Hello, I was just wondering if someome could 'dumb down' the difference between a pacemaker and an ICD. Who would need an ICD? 

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S-ICD to ICD ?

The current discussion I'm having w/ my doctor is going from an S-ICD to an ICD because the device is picking up too much "muscle noise" when I play drums.  I'm wondering how common this sort of mis-reading happens.  Not neccessarily with just drummers, but with people who partake in activities that really work their chest muscles & lats.  Anyone here who's had to have their device changed?

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Member Quotes

I am no expert, but I believe that without the defibrillator that I have, I would be dead.