Most Recent Messages in Checkups & Settings

PM implant 2-1/2 weeks ago in Ecuador. Has follow up, was alarmed.

Ironically my handle, “SpiffyHeart was chosen as my o line name after having four cardiac ablatiions during my adult life.

yesterday, I had first follow up and reading of the recordings in my PM. 

(1) my Electrophysiology is ONLY doc to install pm’s without an 8 hr bus ride or plane ride to Quito in the Andes mountains.  Quito is also much higher altitude than my city of 8,500ft.

(2) He speaks Spanish, I speak beginner Spanish.  I have to take my o...

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Accelerometer Setting Adjustment

Hi group,

i recently had my accelerometer adjusted as I was having episodes of shortness of breath ,clamminess and heart pounding when I went from sitting on the lounge to standing.

i was referred to have a second opinion and he advised my cardiologist to decrease the sensivity .

About 20 minutes after having the setting changed I constantly feel uneasy,short of breath all the time and extremely fatigued. I am reaching out to see if anyone experienced this when they had the...

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Gasping

Hi All

This is Sonali. I want some suggestions. I am a pacemaker patient since 2016 , now a days when I walk faster I start sobing /gasping ,  I m worried,  my mum says it is due to weakness plus my rate response is also off 

Should I visit cardiologist. 

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Home Monitors

I have my post-op check tomorrow and was wondering about home monitors. The Medtronic Tech told me to ask for a monitor that I'd use with my iPhone vs a wall (plug-in) monitor(?). The phone option would seem like the natural choice; wondering why they wouldn't all be that type? Preferences.....? Since most of my symptoms (besides slow HR) were at night and I wasn't all that aware of them--kind of don't want to get too into the nitty gritty of reports, etc.

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Irregular Heart Rate

Hi, 

Since my last post i have seen my dr and technician and they have increased the rate to 60bpm which has seemed to have helped my fatigue. 

However last week my PM did an automatic check using the Boston Lattitude communicater that i have. 

Apparently all was ok, and i have been assured by my dr that no adjustments were made but over the past few days i have noticed my resting heart rate has increased to the 90's and i am having alot of...

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Medtronic CareLink

Hello Everyone,

I'm just wondering if anyone knows anything about how much pacemaker battery power is used when downloading pacemaker data via radiofrequency transmission, compared to a clinic download done by an attending Medtronic technician?

I believe remote downloads use more energy and potentially over years this could result in the pacemaker needing to be replaced sooner. But I don 't know how significant a difference this is - are we talking about months o...

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New Pacemaker

Hello I am 38 years old and just had a pacemaker installed for a 2:1 2nd degree AV block Mobitz ll. My heart rate began dropping into the 30s at night and I was having fatigue, shortness of breath, and increasingly severe dizzy spells. I have always been very active and run consistently.  I just had my first appointment 10 days after installation. I do feel better as my heart is beating more in rhythm. But I am still tired and winded very easily and now it seems my heart r...

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pacemaker settings

At my last check the I was told my pacemaker was " pacing at 98%" what exactly does that mean ?

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1st check up

What are good questions to ask at my first check up? Can my PM tell me when it was activated? Like date and time? or should I record these times? I have been waking up at night very alert, and not sure why. I feel like it could be mental since I was told that my heart was stopping for as long as 14 seconds in my sleep?? I'm 39 and in decent physical shape. I found out last week I needed a PM and surgery in 4 days (1/11/18)...it's a been a little quick for this guy. Thank god I fo...

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Feeling positive

Hi pacers hope everyone is doing well tonight. I went for my 10wks check on my pacemaker. They interrogated my pacemaker, adjusted the night setting from 70 down to 50. They also set the pacemaker on auto adjust so it only works when my heart needs it. my breathing is better, less pvc's, seems like my energy level is better. My cardiologist also thinks I could be blocked so we are doing a stress test on the 24th of January . hoping we are gonna get some answers. just thought I would give...

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Annual Check

I have a appointment to see the EP nurse this week.  I have my third Medtronic Sure Scan with defibrillation on 12/1/2016.  I have cardiac sarcoidosis which has caused my leads to be infected and they needed to be removed and replace.  Since getting this new pacemaker I have not had any problems and I'm really afraid of getting a check up since they like to make changes.  My husband likes to say, "If it's not broke, don't fix it".  I'm going...

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PACEMAKER RATE

My Pacemaker Rate is set at 50bpm i was wondering if this is very common. 

I still get feelings of severe fatigue some days and my heart rate sits in the low 50's. 

Technician mentioned last visit that it isnt actually pacing much at all due to the low rate it is set on. 

would it be worth asking Cardiologist about increasing the rate? 

I have also had issues with one of my leads oversensing which gives you a feeling of missed beats, they c...

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ER Again

I’m 3wks Post implant today. I was feeling good all day and then once again my HR went up to 150 then about 20 mi urges later to 170. I’m in the ER and they have received the info from Medtronic. My question is the ER Dr doesn’t seem concerned?! I’m very concerned!! Has this happened to anyone else? Thanks for the support! 

Linda

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Pacemaker checks

When they say you are pacing at a certain percentage..do they mean daily, weekly, or monthly? Thanks in advance..

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Skin deep

Just had to share this.

I saw my EP's PA at Duke yesterday--just a return visit to check on the tweaks to my settings done a couple of months ago. 

Before she put the donut over the pacemaker she asked, "May I have a look at your pacemaker, please?"

"Sure," I said, pulling down the neckline of my sweater to expose the area just below my collarbone, "but why? Nobody ever asked me to show them my pacemake before."

&qu...

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Physio

while having physio on my arm, i fainted with the pain, hb 47. I am set at 60. Pm checked told all ok. Anyone had this happen.

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Dialing in the Boston Scientific Accolade, RYTHMIQ, Lower Rate Limit, Paced AV Delay

Hi all--

Just had my leads and Medtronic Adapta pacemaker extracted several days ago and I am already trying to dial in my new BosSci system. I really appreciate the help I have gotten in the past on this website regarding my Adapta and how difficult it was to dial that one in: at the end of the day, it was a very poor choice for this cyclist and I'm pretty happy to see  it go. It never really worked for me, I was constantly overpaced just to be able to exercise. &nbs...

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Fatigue

A few weeks ago I posted a query about feeling low energy immediately following my implantation and lasting ever since. I've subsequently noticed that many people have shared a similar experience: a promise by the cardiologist of having much more energy once a pacemaker is implanted but finding exactly the reverse -- much lowered energy. So far I've not come across anyone who has reported the situation being corrected. In fact, most of the commenters appeared to have received the brus...

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Reliance

I just went in for my initial 2 week check up and the doctor said everything looks great. I told him that I could feel a strange knocking feeling (best way I can describe it) in my heart (R ventricle) sometimes. He at first didn’t believe me but then as they tested it the feeling started and I had him physical feel my HB and he confirmed this weird feeling and made some kind of adjustment. I still feel it but it’s not nearly as prominent. 

Anyway I asked him to change m...

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Merlin@Home

I have one of these monitors and would like to know if  it is worth the money i'm paying for the connection.

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You know you're wired when...

You name your daughter “Synchronicity”.

Member Quotes

I wasn't really self-conscious about it. I didn't even know I had one until around six or seven years old. I just thought I had a rock in my side.