Most Recent Messages in Checkups & Settings

Rate response

Thanks Ian. I’ll see how it is and see my GP - Cardiologist if no better.  I have no confidence at all in the pacemaker technician in our area.  However I have an excellent GP and cardiologist. 

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Rate response setting

 I recently had my rate response setting changed as my heart rate Has not exceeded 100 bpm on exertion. I was last checked a year ago.  Since the change I am suffering from fatigue and exhaustion I’m not able to go for my usual walks. At times I also feel as though I have a sort of ache in my heart not really chest pain this is new. Has anyone else had a similar experience ? I am thinking of ringing the technician so that I can be seen again is that appropriate?...

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USB Adapter

Are there other, less expensive USB adapters that work with the Merlin Home Transmitter. The St. Jude option seems somewhat expensive.

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CRT apparent diaphragm stimulation

4 weeks post CRT-P implant, all good except apparent diaphragm pacing because when I lay on my back especially it creates a constant regular jumping in my chest/left side area   I live 600 miles from Clinic where done have not yet returned . They say it can be adjusted ?   Has anyone experienced this.   Thank you.  

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The setting parameters when there’s no underlying rhythm.

Hi,

My 6 year old went into complete heart block last February following an open heart surgery, and she had a pm placed on Valentine’s Day. I know the bottom parameter is 80 and the top is 180. She’s sleeping (fairly deep sleep) and her heart rate is 90-93 instead of 80 like it was in the hospital. She had her first pm appt with the ep on March 25, all looked good. Can anyone explain why it would be 10-13 bpm higher than the low setting at sleep? She doesn’t have a fev...

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Too slow

Hi all!

Going on 4 years now with a PM

When my pacemaker (AV block III) was put in, they were going to set the low frequency at 70, high at 130.

I admit that I didn't fully understand, and I thought such a high "low" would make for sleep problems. So I had them set it at 50 -- 130.

Starting about 2 1/2 years ago I started having extreme fatigue, especially after an adreliline flow (good or bad). I would feel this way for hours (a feeling of getting up too...

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Wtf

I got my pacemaker in Jan 2019. I'm not happy about the scar. That's not what bothers me though, it's actually kinda funny cause people aren't used to seeing someone so young with a pacemaker, so they ask " OMG did you get stabbed?" It's the little shocks I keep getting every now and then. Is that normal?

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Pacemaker stops pacing as I increase intensity of work out

Hi! I started training for marathon last year, it was a gradual slow training process as my trainer knew I have pacemaker. I was also going to the pacemaker clinic several times and they made several tweaks on my pacemaker setting. However, late last year I wasn't able to join the marathon I signed up for because as we started our training for uphill, I noticed I have some fainting episodes. I went back to clinic and they've done a holter monitoring and it showed several SVTs but...

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Medtronic A3DR01 Pacing Modes

I am an active 63 year old male who has had a Medtronic A3DR01 since December 2017 due to third degree heart block.  I was initially set in MVP mode and was pacing the left ventrical at around 30-35% of the time.  After about 1 year I was told that I was missing ventricular beats and was reset to DDD mode with a 0.250 second lag.  I am now pacing at about 80% of the time.  My reading tells me that it is best to minimize left ventricle pacing, so this makes me unc...

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Response rate settings

Hi everyone, I would like an opinion on this.  I was in a serious motor scooter accident almost two years ago.  24 days in hospital, right leg broken in four places, brain injury, the list goes on.  Eight months later, I passed out while singing in a choir concert.  Started seeing a cardiologist and had all tests including electrophysiology, could find nothing.  They implanted a loop recorder with hopes to catch something.  Four months later, I almost passed out...

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CLS in Biotronik good or bad?

I had a Biotronik inserted 3 days ago. Me pulse races to hr of 120-130 with minor, minimal exertion. I have read on some posts that some EPS feel that the system’s CLS is the problem, and this feature should be turned off . Anyone have any experience or opinions?

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Upper heart rate too fast after AV node ablation

I have just had an AV node ablation a couple of days ago.  The pacemaker was implanted 6 weeks ago.  The lower rate is set to 80bpm which is not too comfortable as my own rate was low 60's. But my problem is that if I do anything remotely active my pulse shoots up to 140 or more.  What is going on?  I am scared to move.  I have phoned hospital, but will have to wait over the weekend.   Can anyone advise please?

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New Pacemaker WAY too sensitive

Just received a Biotronik for SSS  and CI. 3 days post op. I’m in good shape and, until recently , always had basal HR in 40s. Device is set at 40/150. However, now my basal hr is in 70s. I feel uncomfortable with a fluttering feeling in my chest. When I do very simple action like walk up stairs,it goes to 84. When I walk a quarter mile I get tachycardia with hr 120-130, and I have to sit down- worrying about passing out. Want to go back in and get this pm removed!  I was told...

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Explanation

Hi All, Is it possible someone can tell me a little about the device follow up report. The secretary gave me a copy . It say's 5600 rate drop episodes. , 3 non sustained  VT - SVT,  3  AT/ AF episodes 45 sec plus 8 mode switches less than 45 secs.  I am now atrially paced at 74% and ventricular at 13%. I Have never been vent paced , always less than .01 % Could someone please help me understand what this means. Thanks, and have a great wknd. I have a dual chamber medtr...

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Feeling restless

Hi everyone,

Really pleased I found this forum. Would be grateful for any help. 

I have had a dual lead ICD fitted for the last 15 years and two ablations for AF and SVT. For the most part I have coped well and not had any problems. Over the past past few weeks though I have been feeling distinct malaise - restless, sweating, insomnia. In short I just can’t relax which is leaving me in a misery.

i recently has a regular echo and my cardiologist checked o...

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Overdrive pacing

Does anyone have overdrive pacing on their pacemaker and why should it be on? 

 

Liz

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Questions and more questions

Hello to all. As others have said, finding this site 6 weeks ago, after that casual "complete-heartblock-you-need-a-pacemaker" day, has been so meaningful to feel, listen and learn from others.

I have an appointment with the cardiologist next week and I wondered if anyone had any suggestions as to what I should ask about. Sorry for the length of this message.

While I was in the hospital getting a dual chamber PM (3 leads), my bp continued to be higher. I'd...

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EPISODES

had p/m and now icd for 2 years,now experiencing episodes ( 2 IN A WEEK) .ANY SIMILAR ?

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Pm settings

Had my pm put in last October- I’ve noticed that when I exercise or get do something strenuous when my heart rate should be high it beats down to the 60bpm range which makes me not feel well my range is set at 60-160 just wondering if anyone experienced this also and what I should have my settings at I have a Medtronic icd- Thanks in advance Aaron 

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Can heart rate affect fluid retention?

I have kidney disease stage 3 and heart disease. I have had my St Jude Pacemaker since 2015 for SSS, low setting currently at 60 BPM.  I  limit sodium intake to 2300 mg (usually less) and limit fluid intake to 64 oz (both per Nephrologist advice). If I have 2 lb weight gain, I take Lasix.

I feel hesitant to take Lasix since it is hard on kidneys but know excess fluid is hard on the heart

I'm wondering... if I had my low rate higher, such as 70 BPM, would I have less...

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You know you're wired when...

You have a dymo-powered bike.

Member Quotes

In fact after the final "tweaks" of my pacemaker programming at the one year check up it is working so well that I forget I have it.