Most Recent Messages in Checkups & Settings

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too many changes...

Hi everyone! Its me again...i was wondering if any one knows if changing your pacemaker setting a lot has any effect on your heart. Since i had my pacemaker implanted i have not had a setting that has lasted more than a couple of months. My doc says it may take some time to get the correct settings for me and my heart problems. I was wondering if any one has had this happen as well and if it is normal to keep having my settings changed after 3 years so often. As you may already know, i have comp...

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High Heart Rate

I got my new Medtronic Adapta about six weeks ago. This is my second pm for my Kappa lasted seven & half years.
My old one had the perfect settings for me from begining.
This one have been tweaked four times EP & factory rep.I think the Adapta has so many new features that getting the setting right is diffcult.Walking upstairs my heart will be 90 but I am breathing good.
Would love to hear your views.Settings has been changed a few times.Only my pulse rate is high compared to my K...

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Appointment!

Ok, well the doctor I saw today actually cared about me! So refreshing!!!! The first thing he said (well, besides greeting us) was (in my own words) "Well, your legs look mottled and your hands have a bluish tint. I am pretty sure you have Raynaud's Disease." I figured that out months ago! And then he said that my slow heavy heart beats may be caused due to a possibly ill - calibrated sleep mode on my pacer, which is programmed to go down to 50 b.p.m. So, he turned it off! I am still feeling the...

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Moving to England....anyone know a great cardiologist??

I think i'm moving to England in the next few months. I'll be close-ish to London, so more than happy to make to commute for a great specialist.

If anyone knows of one, preferably that deals with young patients, or patients of NCS, please pass on their details!!!

Thanks
Lyds

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first check up

today was my site checkup. the RN said all looked good but still no lifting or driving.

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Surprised that follow up not sooner

I received my ICD on April 7, 2009. I had a wound check on April 17. When I left the doctor's office they said they'd let me know when the follow up was. I heard from them and they scheduled my follow up for 3 mos. That seemed kind of long with no intermediate follow up following the implant. What's the norm that most of you have heard about that first post implant follow up timing?

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blue hands etc update

Hey guys.
So I went to see my consultant about my blue hand and what I thought were palpitations and all is good. He said that my blue hands were nothing to worry about as it is probably Reynards disease which is a good thing in a way. And the 'palpitations' - he said that even though I have a dual pacemaker, my ventricular lead isnt turned on. BUT it can still pace from time to time if it thinks it needs to. So this is what he thinks is happening because he says that when the ventricul...

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Isn´t my average pacing HR very slow?

Hi my friends, I had an EKG holter monitor two weeks ago and it siggests that my PM generate the beating at all time so I am 100% dependant (beacuse of SA and AV node ablations). I have a question - it showed that my average HR is just 67/min. Isn´t it very slow? I said to my doc that the HR is not going up very much when I am active and do something, but he didn´t say a word. My setting is 60-140/min, but it never went to 140. Do you think that 67/min is slow for me? I am 23 years old and would...

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arrhythmia Log

Could someone explain how the arrhythmia log works as it processes the information it receives from the heart. I have a 1283 Guidiant model. Jan

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About Nagging...

When you post 'go nag' nag some more; keep nagging, etc; are seeing the Dr. more than 1 time in 3 months?

My insurance dictated that I could not see the cardiologist (insurance would not pay for the visit) until 3 months after the pm surgery.

At the 3 month appointment, there were problems and I was told to come back in 6 months. At that point, I may be able to start dialing in for the pm interrogation and see the Dr 1 time a year.

Are you seeing (nagging) the...

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Min heart rate setting

With my first pacemaker, 1997 Medtronic I had a resting pulse of 80 and no problems for 9 years until I needed a new battery in 2006. Got a St Jude and now my resting pulse is around 62. Here's my problem, I frequently have episodes of what I call pulse pauses, pauses happen 4 to 6 times a minute, where the next pulse is a bit late, but immediately returns to normal again for awhile until the next pause. This is very annoying and quite uncomfortable and goes on for many hours. Seems to me if my...

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Pacer noise

I have had discovery 1283 for about 6 years -I have this noise that is like morris code or tapping at different times of the day. I notice it most at night. Would it be some type of setting that is monitoring me. I have been assured that the pacer has no moving parts so it is not possible, however I think I know a heart beat and a tapping sound with a bit of rythm. If anyone has any ideas I would like them. Jan

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Getting PM adjusted...again

I had my pacemaker adjusted this past Wednesday for the first time. The goal was to help me sleep better. Well, it didn't work. Still woke up many times during the night and still felt a "flicking" sensation in my chest.

So, my doctor wants to see me again this afternoon. I hate missing so much work. I'm going to have to come in on the weekend just to catch up.

Very frustrated at this point and the doctor is already talking about putting me on sleeping pills, which I'd...

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Pacer self check

I was going to reply to the question of the self check below but it has already gone way down the page, so I thought I would post a new message. I have my self check set at 09:45 on a Tuesday. I like it then as I am aware when it happens and I know that my PM is still working. Every now and then I may be doing something active at this time such as a bodypump class. I still feel it kick in at the same time, but something tells the pacemaker check that this is not a good time. The check stopss and...

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First check up down..

Hey all...just wanted everyone to know that I had my one-week check up today and things are looking good. I got the staples out (and almost passed out in the process), and my incision looks awesome...no swelling!!! All the tests looked good, and I was able to get my self-test time changed to 3am and my sleep mode adjusted a bit, so I can get a good nights sleep and hopefully sleep through the self test. I am currently using my PM 11% of the time - not bad in the grand scheme, but enough to ma...

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Fluid build up

I read several people's questioning of the need to have fluid monitors. Fluid build up is a sign the heart ain't ticking too well..in fact the worse it works the more fluid you have and eventually you become short of breath, are tired, have no energy etc...sound familiar?
I take Aldactone for fluid retention rather than lasix. My monitor went off for the first time since September 2007...scared the s..t out of me...I think it is the fluid monitor because I have been short of breath lately.<...

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Metronic Adapta ADDR01

I had my pacer replased about ten days ago . My old one lasted seven & half years - Medrotic Kappa.
My new one listed above,I had my settings already changed twice & it may be tweaked again. I get a little short of breath. My old one worked so perfect from the begining.
I am aactive person & would like to hear from others that has this type.

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2 week follow up today

Well, I go in for my two week follow-up today. I plan to let my cardiologist and my electro-physiologist both know about this website and recommend that they tell people with and getting PM's or ICD's about it. Also, I can feel my PM when it starts beating for my heart, I presume that this is nor normal and will be asking them about that as well. I will let everyone know how things go.

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PM armpain 4months

Hi all, well I have had my PM 4months now. Had my settings changed 2weeks ago, they put it in passive mode.That helped with the heart beat in my throat,probleming I was having.My PM was put nearly in my armpit so they had already turned the movement censor off. My arm was doing so good ,pained only now and then if I moved a wrong way.I am left handed so my PM is on the right side,I know this sounds crazy but since the settings change 2 wks ago, my arm gets like a bad cramp in the upper part and...

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Checkup and Replacement Info

I just finished my checkup and all is great. The current prevarication is that this pacer should easily last another year.

While I was there and the cardiologist was in a talkative mood, I ask about the replacement procedure. This was at 9:00AM and he said if I had needed a replacement today he would have ask me to skip lunch and meet him at the outpatient clinic this afternoon. He figured it would take less than an hour. I ask him about how he handles the issue of my being 100% depe...

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You know you're wired when...

You’re officially battery-operated.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.